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Could someone expain this to me?
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Could someone expain this to me?

› Forums › Mucosal Melanoma Community › Could someone expain this to me?

  • Post
    • October 28, 2014 at 1:51 pm
    mary1233
    Participant

      I am currently in remission for mucosal melanoma, so I may be overreacting.

      I have two sisters who are dealing with moles removed by dermatologists who found cancer "in situ". They are planning to follow up with the dermatologist.

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    • Replies
        • October 28, 2014 at 1:53 pm
        mary1233
        Participant

          It posted before I could finish. Am I crazy to insist that they should at least get a second opinion from an oncologist?

          • October 28, 2014 at 1:53 pm
          mary1233
          Participant

            It posted before I could finish. Am I crazy to insist that they should at least get a second opinion from an oncologist?

            • October 28, 2014 at 1:53 pm
            mary1233
            Participant

              It posted before I could finish. Am I crazy to insist that they should at least get a second opinion from an oncologist?

              • October 28, 2014 at 2:53 pm
              Janner
              Participant

                Most oncologists won't see a stage 0 patient.  In situ is confined to the epidermis only and basically has close to a 100% survival rate.  You can insist, but there isn't anything an oncologist can do for them.  A derm is really just fine.  Surgical removal is the standard of care, then regular skin checks.  The risk for another primary is higher than the risk for recurrence from this type of lesion.  In the end, it's whatever your sisters feel comfortable doing!

                • October 28, 2014 at 2:53 pm
                Janner
                Participant

                  Most oncologists won't see a stage 0 patient.  In situ is confined to the epidermis only and basically has close to a 100% survival rate.  You can insist, but there isn't anything an oncologist can do for them.  A derm is really just fine.  Surgical removal is the standard of care, then regular skin checks.  The risk for another primary is higher than the risk for recurrence from this type of lesion.  In the end, it's whatever your sisters feel comfortable doing!

                  • October 28, 2014 at 2:53 pm
                  Janner
                  Participant

                    Most oncologists won't see a stage 0 patient.  In situ is confined to the epidermis only and basically has close to a 100% survival rate.  You can insist, but there isn't anything an oncologist can do for them.  A derm is really just fine.  Surgical removal is the standard of care, then regular skin checks.  The risk for another primary is higher than the risk for recurrence from this type of lesion.  In the end, it's whatever your sisters feel comfortable doing!

                    • October 28, 2014 at 3:17 pm
                    CHD
                    Participant

                      Mary,

                      You didn't say whether their in situ was cutaneous or mucosal?  I too have been dealing with mucosal melanoma, and if these were my sisters and the in situ was mucosal, I would push them to see an oncologist, even at stage 0, no question.

                      But even with cutaneous melanoma in situ, if you pushed toward recommending an oncologist, that wouldn't make you crazy. Having had melanoma that is not at all sun related and is thought to have a genetic etiology, I do tend to wonder if my relatives, including my kids, may be more at risk for this riskier form of melanoma that it is not all sun related too.  And having a first-degree relative with mucosal melanoma, and having now shown that their bodies have produced a melanoma once, does that warrant closer followup?  It might not hurt to have them to discuss some of this with an oncologist.  Or if that seems drastic, do you still follow up with a melanoma specialist you could ask?

                       

                      • October 28, 2014 at 3:17 pm
                      CHD
                      Participant

                        Mary,

                        You didn't say whether their in situ was cutaneous or mucosal?  I too have been dealing with mucosal melanoma, and if these were my sisters and the in situ was mucosal, I would push them to see an oncologist, even at stage 0, no question.

                        But even with cutaneous melanoma in situ, if you pushed toward recommending an oncologist, that wouldn't make you crazy. Having had melanoma that is not at all sun related and is thought to have a genetic etiology, I do tend to wonder if my relatives, including my kids, may be more at risk for this riskier form of melanoma that it is not all sun related too.  And having a first-degree relative with mucosal melanoma, and having now shown that their bodies have produced a melanoma once, does that warrant closer followup?  It might not hurt to have them to discuss some of this with an oncologist.  Or if that seems drastic, do you still follow up with a melanoma specialist you could ask?

                         

                        • October 28, 2014 at 3:17 pm
                        CHD
                        Participant

                          Mary,

                          You didn't say whether their in situ was cutaneous or mucosal?  I too have been dealing with mucosal melanoma, and if these were my sisters and the in situ was mucosal, I would push them to see an oncologist, even at stage 0, no question.

                          But even with cutaneous melanoma in situ, if you pushed toward recommending an oncologist, that wouldn't make you crazy. Having had melanoma that is not at all sun related and is thought to have a genetic etiology, I do tend to wonder if my relatives, including my kids, may be more at risk for this riskier form of melanoma that it is not all sun related too.  And having a first-degree relative with mucosal melanoma, and having now shown that their bodies have produced a melanoma once, does that warrant closer followup?  It might not hurt to have them to discuss some of this with an oncologist.  Or if that seems drastic, do you still follow up with a melanoma specialist you could ask?

                           

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