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Confused

Forums General Melanoma Community Confused

  • Post
    btcedarr
    Participant

      I have asked my dermatologist and onc surgeon and have never received a straight answer. I was diagnosed 1b with clear margins after a WLE and a negative SLN. I keep reading about people in similiar circumstances that evolve into other stages without another primary. How does this spread???

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        jennunicorn
        Participant

          On a forum like this you are more likely to read about someone who was first diagnosed stage 1 and some years or so later they are stage 3 or 4. That is not the norm though. With stage 1 you have a very small percentage that melanoma will recur and/or spread to distant areas of your body. It could be that some cells came off the primary tumor and ended up in the blood stream or lymphatic system and were kept in check for a while by one's immune system and eventually it started growing a tumor somewhere when the immune system couldn't control the cancer cells any longer. But, again, that is NOT the norm for stage 1 and after having the WLE you no longer have melanoma which is awesome and you should just be going to your follow up appointments and living life. Don't worry about the what ifs of your future, none of us can predict where we will be a year from now. And there is no reason to spend energy and time worrying about whether melanoma might come back. 

          All the best,

          jennunicorn
          Participant

            On a forum like this you are more likely to read about someone who was first diagnosed stage 1 and some years or so later they are stage 3 or 4. That is not the norm though. With stage 1 you have a very small percentage that melanoma will recur and/or spread to distant areas of your body. It could be that some cells came off the primary tumor and ended up in the blood stream or lymphatic system and were kept in check for a while by one's immune system and eventually it started growing a tumor somewhere when the immune system couldn't control the cancer cells any longer. But, again, that is NOT the norm for stage 1 and after having the WLE you no longer have melanoma which is awesome and you should just be going to your follow up appointments and living life. Don't worry about the what ifs of your future, none of us can predict where we will be a year from now. And there is no reason to spend energy and time worrying about whether melanoma might come back. 

            All the best,

            jennunicorn
            Participant

              On a forum like this you are more likely to read about someone who was first diagnosed stage 1 and some years or so later they are stage 3 or 4. That is not the norm though. With stage 1 you have a very small percentage that melanoma will recur and/or spread to distant areas of your body. It could be that some cells came off the primary tumor and ended up in the blood stream or lymphatic system and were kept in check for a while by one's immune system and eventually it started growing a tumor somewhere when the immune system couldn't control the cancer cells any longer. But, again, that is NOT the norm for stage 1 and after having the WLE you no longer have melanoma which is awesome and you should just be going to your follow up appointments and living life. Don't worry about the what ifs of your future, none of us can predict where we will be a year from now. And there is no reason to spend energy and time worrying about whether melanoma might come back. 

              All the best,

              ed williams
              Participant

                Hi btcedarr, I am going to give you acouple of links to videos from MIF, I hope they will help you with understanding the staging process. https://www.youtube.com/watch?v=YrW4UdkCu8I and the second onehttps://www.youtube.com/watch?v=eofW8d4J6sI    Best wishes!!! Ed

                ed williams
                Participant

                  Hi btcedarr, I am going to give you acouple of links to videos from MIF, I hope they will help you with understanding the staging process. https://www.youtube.com/watch?v=YrW4UdkCu8I and the second onehttps://www.youtube.com/watch?v=eofW8d4J6sI    Best wishes!!! Ed

                  ed williams
                  Participant

                    Hi btcedarr, I am going to give you acouple of links to videos from MIF, I hope they will help you with understanding the staging process. https://www.youtube.com/watch?v=YrW4UdkCu8I and the second onehttps://www.youtube.com/watch?v=eofW8d4J6sI    Best wishes!!! Ed

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