› Forums › General Melanoma Community › Confirmed Brain Mets
- This topic has 81 replies, 10 voices, and was last updated 9 years, 5 months ago by
keepthefaith11.
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- July 4, 2016 at 4:19 pm
So really bad news. My had had the MRI today even though they could not complete it due to him not cooperating. They were however able to see he has 13, yes, 13 brain mets of varying sizes…Please, someone give me some guidance..
WHAT do we do now…Annie
- Replies
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- July 4, 2016 at 6:01 pm
Dangit! I am so sorry. Not sure if flying back to the states would be possible or not in order to start treatment. You can check this list for international melanoma facilities: http://melanomainternational.org/web-resources/global-resources/#.V3qivPkrK00
I know others on here with more experience will have more advice for you.
Keeping you and your family in my thoughts.
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- July 4, 2016 at 6:01 pm
Dangit! I am so sorry. Not sure if flying back to the states would be possible or not in order to start treatment. You can check this list for international melanoma facilities: http://melanomainternational.org/web-resources/global-resources/#.V3qivPkrK00
I know others on here with more experience will have more advice for you.
Keeping you and your family in my thoughts.
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- July 4, 2016 at 6:11 pm
Thank you Jenn. It means a lot. Trying to stay positive and hoping that the treatment will kick it’s rear! Thank you for the link. Amazingly enough, included in the listing for their country is exactly the hospital he is at. I am assuming that is good news that the website would have that exact Hospital on their list. Hopefully they will agree with my treatment plan.Annie
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- July 4, 2016 at 6:11 pm
Thank you Jenn. It means a lot. Trying to stay positive and hoping that the treatment will kick it’s rear! Thank you for the link. Amazingly enough, included in the listing for their country is exactly the hospital he is at. I am assuming that is good news that the website would have that exact Hospital on their list. Hopefully they will agree with my treatment plan.Annie
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- July 4, 2016 at 11:07 pm
Am I wrong or does Dr. Luke argue that there is no abscopal effect???http://www.medpagetoday.com/reading-room/asco/melanoma/57185
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- July 4, 2016 at 11:07 pm
Am I wrong or does Dr. Luke argue that there is no abscopal effect???http://www.medpagetoday.com/reading-room/asco/melanoma/57185
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- July 4, 2016 at 11:07 pm
Am I wrong or does Dr. Luke argue that there is no abscopal effect???http://www.medpagetoday.com/reading-room/asco/melanoma/57185
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- July 5, 2016 at 4:55 am
Annie,
I think its the last paragraph causing the confusion. The article supports the use of the combined therapy of radiation and immunotherapy. Radiation alone is not a long-term solution. You can destroy, or surgically remove a tumor, but you are going to have melanoma cells left behind. Only through a systemic immune response are we going to beat the beast. The evidence is mounting that the abscopal effect is real, although like everything else, there is no guarantee of an individual response. This is my understanding.
Gary
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- July 5, 2016 at 4:55 am
Annie,
I think its the last paragraph causing the confusion. The article supports the use of the combined therapy of radiation and immunotherapy. Radiation alone is not a long-term solution. You can destroy, or surgically remove a tumor, but you are going to have melanoma cells left behind. Only through a systemic immune response are we going to beat the beast. The evidence is mounting that the abscopal effect is real, although like everything else, there is no guarantee of an individual response. This is my understanding.
Gary
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- July 5, 2016 at 4:55 am
Annie,
I think its the last paragraph causing the confusion. The article supports the use of the combined therapy of radiation and immunotherapy. Radiation alone is not a long-term solution. You can destroy, or surgically remove a tumor, but you are going to have melanoma cells left behind. Only through a systemic immune response are we going to beat the beast. The evidence is mounting that the abscopal effect is real, although like everything else, there is no guarantee of an individual response. This is my understanding.
Gary
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- July 5, 2016 at 11:43 am
Thank you for the clarification Gary. That sounds encouraging. It did read a little bit confusing.Annie
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- July 5, 2016 at 11:43 am
Thank you for the clarification Gary. That sounds encouraging. It did read a little bit confusing.Annie
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- July 5, 2016 at 11:43 am
Thank you for the clarification Gary. That sounds encouraging. It did read a little bit confusing.Annie
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- July 4, 2016 at 6:11 pm
Thank you Jenn. It means a lot. Trying to stay positive and hoping that the treatment will kick it’s rear! Thank you for the link. Amazingly enough, included in the listing for their country is exactly the hospital he is at. I am assuming that is good news that the website would have that exact Hospital on their list. Hopefully they will agree with my treatment plan.Annie
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- July 4, 2016 at 6:01 pm
Dangit! I am so sorry. Not sure if flying back to the states would be possible or not in order to start treatment. You can check this list for international melanoma facilities: http://melanomainternational.org/web-resources/global-resources/#.V3qivPkrK00
I know others on here with more experience will have more advice for you.
Keeping you and your family in my thoughts.
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- July 5, 2016 at 7:10 am
Hi Annie, it sounds like he won't be able to travel on an airplane for various reasons including needing an intravenous too sure seizure control. Is that right? If that is the case, it sounds like he'll need to get treated over there so he can be stable to fly back home.
What happens for me at two completely different hospitals I was treated at, is they did a standard process for each medical Center, which is to convene a multi-disciplinary tumor board. It would consist of oncologists, neurosurgeons, and radiation oncologists, and probably radiologists. They would together decide on what course of Crete meant to recommend. It might be radiation, a craniotomy, systemic treatment, or some combination of those. For that many frame mats, some kind of beam radiation, like gamma knife, would probably be part of the treatment mix.
I think that's where things would be next for your dad. If he wants to get his team involved back home, as a second opinion, maybe there is a way that can be done. How it works to be an American getting treated in Europe, I don't know. But it sounds so far like he's getting the scans and other treatments that he needs so far.
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- July 5, 2016 at 7:10 am
Hi Annie, it sounds like he won't be able to travel on an airplane for various reasons including needing an intravenous too sure seizure control. Is that right? If that is the case, it sounds like he'll need to get treated over there so he can be stable to fly back home.
What happens for me at two completely different hospitals I was treated at, is they did a standard process for each medical Center, which is to convene a multi-disciplinary tumor board. It would consist of oncologists, neurosurgeons, and radiation oncologists, and probably radiologists. They would together decide on what course of Crete meant to recommend. It might be radiation, a craniotomy, systemic treatment, or some combination of those. For that many frame mats, some kind of beam radiation, like gamma knife, would probably be part of the treatment mix.
I think that's where things would be next for your dad. If he wants to get his team involved back home, as a second opinion, maybe there is a way that can be done. How it works to be an American getting treated in Europe, I don't know. But it sounds so far like he's getting the scans and other treatments that he needs so far.
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- July 5, 2016 at 7:10 am
Hi Annie, it sounds like he won't be able to travel on an airplane for various reasons including needing an intravenous too sure seizure control. Is that right? If that is the case, it sounds like he'll need to get treated over there so he can be stable to fly back home.
What happens for me at two completely different hospitals I was treated at, is they did a standard process for each medical Center, which is to convene a multi-disciplinary tumor board. It would consist of oncologists, neurosurgeons, and radiation oncologists, and probably radiologists. They would together decide on what course of Crete meant to recommend. It might be radiation, a craniotomy, systemic treatment, or some combination of those. For that many frame mats, some kind of beam radiation, like gamma knife, would probably be part of the treatment mix.
I think that's where things would be next for your dad. If he wants to get his team involved back home, as a second opinion, maybe there is a way that can be done. How it works to be an American getting treated in Europe, I don't know. But it sounds so far like he's getting the scans and other treatments that he needs so far.
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- July 5, 2016 at 11:39 am
Kyle, thank you. My family is actually from Europe. I am the one who move to America and my parents spend part of the Year here. So he is essentially home. Although they like it better here now.I am pretty sure they are meeting today to discuss. I just hope they won’t start talking about full brain radiation since there are multiple Mets. I read that places like Yale still do gamma knife on multiple lesions. Even 20 lesions and Beyond. Is that correct?
Annie
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- July 5, 2016 at 11:39 am
Kyle, thank you. My family is actually from Europe. I am the one who move to America and my parents spend part of the Year here. So he is essentially home. Although they like it better here now.I am pretty sure they are meeting today to discuss. I just hope they won’t start talking about full brain radiation since there are multiple Mets. I read that places like Yale still do gamma knife on multiple lesions. Even 20 lesions and Beyond. Is that correct?
Annie
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- July 5, 2016 at 11:39 am
Kyle, thank you. My family is actually from Europe. I am the one who move to America and my parents spend part of the Year here. So he is essentially home. Although they like it better here now.I am pretty sure they are meeting today to discuss. I just hope they won’t start talking about full brain radiation since there are multiple Mets. I read that places like Yale still do gamma knife on multiple lesions. Even 20 lesions and Beyond. Is that correct?
Annie
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- July 5, 2016 at 10:03 am
So sorry, Annie.
I know this was the last news you wanted to hear. I agree with all that the others have stated. There are many studies regarding brain mets generally, radiation and the abscopal effect, and the synergy between systemic therapy and radiation…be it BRAFi or immunotherapy…and their positive effect on melanoma generally and brain mets specifically. Just use the search bubble if you are interested…but you probably know all that. It sounds like the folks caring for your dad are moving along in his care….hopefully they will have a treatment plan in place very soon. Hang in there. Yours, c
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- July 5, 2016 at 10:03 am
So sorry, Annie.
I know this was the last news you wanted to hear. I agree with all that the others have stated. There are many studies regarding brain mets generally, radiation and the abscopal effect, and the synergy between systemic therapy and radiation…be it BRAFi or immunotherapy…and their positive effect on melanoma generally and brain mets specifically. Just use the search bubble if you are interested…but you probably know all that. It sounds like the folks caring for your dad are moving along in his care….hopefully they will have a treatment plan in place very soon. Hang in there. Yours, c
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- July 5, 2016 at 10:03 am
So sorry, Annie.
I know this was the last news you wanted to hear. I agree with all that the others have stated. There are many studies regarding brain mets generally, radiation and the abscopal effect, and the synergy between systemic therapy and radiation…be it BRAFi or immunotherapy…and their positive effect on melanoma generally and brain mets specifically. Just use the search bubble if you are interested…but you probably know all that. It sounds like the folks caring for your dad are moving along in his care….hopefully they will have a treatment plan in place very soon. Hang in there. Yours, c
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- July 5, 2016 at 11:42 am
Celeste, thank you. I have read about the abscopal effect of radiation and immunotherapy. There also seem to be a strong correlation between better outcomes with combination radiation and BRAF drugs. I am assuming that radiation and immunotherapy is still the way to go right? When would the BRAF Inhibitors enter the picture?Also, is it true that braf positive people seem to have a much better response rate to radiation therapy? Thank you everyone for your help, you are invaluable!
Annie
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- July 5, 2016 at 11:42 am
Celeste, thank you. I have read about the abscopal effect of radiation and immunotherapy. There also seem to be a strong correlation between better outcomes with combination radiation and BRAF drugs. I am assuming that radiation and immunotherapy is still the way to go right? When would the BRAF Inhibitors enter the picture?Also, is it true that braf positive people seem to have a much better response rate to radiation therapy? Thank you everyone for your help, you are invaluable!
Annie
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- July 5, 2016 at 11:42 am
Celeste, thank you. I have read about the abscopal effect of radiation and immunotherapy. There also seem to be a strong correlation between better outcomes with combination radiation and BRAF drugs. I am assuming that radiation and immunotherapy is still the way to go right? When would the BRAF Inhibitors enter the picture?Also, is it true that braf positive people seem to have a much better response rate to radiation therapy? Thank you everyone for your help, you are invaluable!
Annie
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- July 6, 2016 at 2:48 am
Hi again Annie,
I've never heard that folks that are BRAF positive do better with radiation than other folks. Deciding to go with BRAFi vs immunotherapy first…is a bit of a crap shoot…as was discussed in my post "Choose your poison". However, folks with a high tumor burder often use BRAFi to decrease the burden rapidly then switch to immunotherapy (as it works best with the lowest tumor burden possible) before resistance develops. But…certainly…radiation…combined with either is statistically proven to be the best bet….as is SRS vs WBR.
yours, c
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- July 6, 2016 at 12:49 pm
Celeste, thank you. What would be considered high tumor burden? Do you know if they can do surgery incase there are bigger tumors and then zap the smaller ones with SRS?Annie
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- July 6, 2016 at 12:49 pm
Celeste, thank you. What would be considered high tumor burden? Do you know if they can do surgery incase there are bigger tumors and then zap the smaller ones with SRS?Annie
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- July 6, 2016 at 2:11 pm
Hi Annie, I am sure Celeste will give you some information but I thought I might give you a couple of good links about Melanoma and brain surgery and stereotatic treatments. Wishing you and your family the best!!!! Ed https://www.youtube.com/watch?v=TIxCAo8xzj0
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- July 6, 2016 at 2:11 pm
Hi Annie, I am sure Celeste will give you some information but I thought I might give you a couple of good links about Melanoma and brain surgery and stereotatic treatments. Wishing you and your family the best!!!! Ed https://www.youtube.com/watch?v=TIxCAo8xzj0
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- July 6, 2016 at 2:11 pm
Hi Annie, I am sure Celeste will give you some information but I thought I might give you a couple of good links about Melanoma and brain surgery and stereotatic treatments. Wishing you and your family the best!!!! Ed https://www.youtube.com/watch?v=TIxCAo8xzj0
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- July 6, 2016 at 10:04 pm
Ed, thank you. Seems as though in my dad’s case, with high numer of mets, UCLA would not do SRS but rather full brain. Sound like he doesn’t give much hope to people with multiple leisons. -
- July 6, 2016 at 10:04 pm
Ed, thank you. Seems as though in my dad’s case, with high numer of mets, UCLA would not do SRS but rather full brain. Sound like he doesn’t give much hope to people with multiple leisons. -
- July 6, 2016 at 10:04 pm
Ed, thank you. Seems as though in my dad’s case, with high numer of mets, UCLA would not do SRS but rather full brain. Sound like he doesn’t give much hope to people with multiple leisons. -
- July 6, 2016 at 10:09 pm
Hey Annie,
Ed's resources are good ones…as ever!! "High" and "low" tumor burden are rather subjective with no absolute answers…unfortunately. There are some studies that have looked at computing the combined volume of all the patient's tumors in order to obtain total tumor volume and created correlations between tumor volume and prognosis. But, most oncologists make a basic judgement call as to whether tumor burden is categorized as high or low. To the other point…yes…sometimes folks have surgical removal of some tumors AND SRS to others….within the same treatment phase/plan. Hang tough. c
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- July 6, 2016 at 10:09 pm
Hey Annie,
Ed's resources are good ones…as ever!! "High" and "low" tumor burden are rather subjective with no absolute answers…unfortunately. There are some studies that have looked at computing the combined volume of all the patient's tumors in order to obtain total tumor volume and created correlations between tumor volume and prognosis. But, most oncologists make a basic judgement call as to whether tumor burden is categorized as high or low. To the other point…yes…sometimes folks have surgical removal of some tumors AND SRS to others….within the same treatment phase/plan. Hang tough. c
-
- July 6, 2016 at 10:09 pm
Hey Annie,
Ed's resources are good ones…as ever!! "High" and "low" tumor burden are rather subjective with no absolute answers…unfortunately. There are some studies that have looked at computing the combined volume of all the patient's tumors in order to obtain total tumor volume and created correlations between tumor volume and prognosis. But, most oncologists make a basic judgement call as to whether tumor burden is categorized as high or low. To the other point…yes…sometimes folks have surgical removal of some tumors AND SRS to others….within the same treatment phase/plan. Hang tough. c
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- July 7, 2016 at 12:16 am
Thank you Celeste. I am so afraid the treatment team will recommend full brain and not even consider SRS. Why would UCLA be so against it when places like YALE are doing it???? -
- July 7, 2016 at 12:16 am
Thank you Celeste. I am so afraid the treatment team will recommend full brain and not even consider SRS. Why would UCLA be so against it when places like YALE are doing it???? -
- July 7, 2016 at 12:16 am
Thank you Celeste. I am so afraid the treatment team will recommend full brain and not even consider SRS. Why would UCLA be so against it when places like YALE are doing it???? -
- July 6, 2016 at 12:49 pm
Celeste, thank you. What would be considered high tumor burden? Do you know if they can do surgery incase there are bigger tumors and then zap the smaller ones with SRS?Annie
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- July 6, 2016 at 2:48 am
Hi again Annie,
I've never heard that folks that are BRAF positive do better with radiation than other folks. Deciding to go with BRAFi vs immunotherapy first…is a bit of a crap shoot…as was discussed in my post "Choose your poison". However, folks with a high tumor burder often use BRAFi to decrease the burden rapidly then switch to immunotherapy (as it works best with the lowest tumor burden possible) before resistance develops. But…certainly…radiation…combined with either is statistically proven to be the best bet….as is SRS vs WBR.
yours, c
-
- July 6, 2016 at 2:48 am
Hi again Annie,
I've never heard that folks that are BRAF positive do better with radiation than other folks. Deciding to go with BRAFi vs immunotherapy first…is a bit of a crap shoot…as was discussed in my post "Choose your poison". However, folks with a high tumor burder often use BRAFi to decrease the burden rapidly then switch to immunotherapy (as it works best with the lowest tumor burden possible) before resistance develops. But…certainly…radiation…combined with either is statistically proven to be the best bet….as is SRS vs WBR.
yours, c
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- July 5, 2016 at 1:13 pm
Annie, so sorry to hear about your dad's brain mets. I recently had a conversation on these boards with Eva, who also gets them 11-15 at a time – she inspired me and maybe her story will be helpful/hopeful to you & your dad as well:
Wishing your dad an excellent & progressive team & treatment plan!!
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- July 5, 2016 at 1:13 pm
Annie, so sorry to hear about your dad's brain mets. I recently had a conversation on these boards with Eva, who also gets them 11-15 at a time – she inspired me and maybe her story will be helpful/hopeful to you & your dad as well:
Wishing your dad an excellent & progressive team & treatment plan!!
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- July 5, 2016 at 1:13 pm
Annie, so sorry to hear about your dad's brain mets. I recently had a conversation on these boards with Eva, who also gets them 11-15 at a time – she inspired me and maybe her story will be helpful/hopeful to you & your dad as well:
Wishing your dad an excellent & progressive team & treatment plan!!
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- July 5, 2016 at 3:41 pm
Thank you so much for sharing Maria. It certainly gives me hope to read those posts.My dad is now awake and eating after sleeping for 2 straight days after the seziures. He is very confused and has no idea what has happened. Also he is having some issues with speech since the second run of seziures. They call it Postictal effect. Just so hard to see him like this.
Doctor was saying to my mom they have to wait for the swelling to go down before they start treatment. I am hoping the decision will be to do the Gamma radiation, even with so many mets.
Doctor was given a letter with my thoughts on treatment plan and my phone number.He is on steriods for swelling.
Annie
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- July 5, 2016 at 3:41 pm
Thank you so much for sharing Maria. It certainly gives me hope to read those posts.My dad is now awake and eating after sleeping for 2 straight days after the seziures. He is very confused and has no idea what has happened. Also he is having some issues with speech since the second run of seziures. They call it Postictal effect. Just so hard to see him like this.
Doctor was saying to my mom they have to wait for the swelling to go down before they start treatment. I am hoping the decision will be to do the Gamma radiation, even with so many mets.
Doctor was given a letter with my thoughts on treatment plan and my phone number.He is on steriods for swelling.
Annie
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- July 5, 2016 at 3:41 pm
Thank you so much for sharing Maria. It certainly gives me hope to read those posts.My dad is now awake and eating after sleeping for 2 straight days after the seziures. He is very confused and has no idea what has happened. Also he is having some issues with speech since the second run of seziures. They call it Postictal effect. Just so hard to see him like this.
Doctor was saying to my mom they have to wait for the swelling to go down before they start treatment. I am hoping the decision will be to do the Gamma radiation, even with so many mets.
Doctor was given a letter with my thoughts on treatment plan and my phone number.He is on steriods for swelling.
Annie
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- July 5, 2016 at 4:14 pm
Elisabeth Camaur founded Camaur Crampton Family Law as a resource to help clients through divorce and child custody turmoil with a focus on the future. “Instead of regretfully looking back and affixing blame, I like to look forward.
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- July 5, 2016 at 4:14 pm
Elisabeth Camaur founded Camaur Crampton Family Law as a resource to help clients through divorce and child custody turmoil with a focus on the future. “Instead of regretfully looking back and affixing blame, I like to look forward.
-
- July 5, 2016 at 4:14 pm
Elisabeth Camaur founded Camaur Crampton Family Law as a resource to help clients through divorce and child custody turmoil with a focus on the future. “Instead of regretfully looking back and affixing blame, I like to look forward.
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- July 6, 2016 at 3:34 am
Hi Annie,
Thinking of you and wondering how your dad is doing tonight? I am hoping they go with gamma knife too, although they may need to split the treatment over a couple days because each met I believe takes 10-15 minutes to zap…? Wondering too if his mind will clear once the swelling goes down. Please keep us posted – you and your family are in my thoughts & prayers.
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- July 6, 2016 at 11:12 am
Hello Annie,
here my wife story if could help
she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.
Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.
they was really rapid growing.
To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening
she received WBR for 20 days, i do not remeber the dose, and this had a great effect.
at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.
No collateral effect eccept hair loss
Antonio
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- July 6, 2016 at 12:40 pm
Antonio, thank you for this inspiring story. It really helps. I feel if they can get the tumors to go down we can deal with new leisons if they appear. Seems SRS is really efficient keeping disease under control.Annie
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- July 6, 2016 at 12:40 pm
Antonio, thank you for this inspiring story. It really helps. I feel if they can get the tumors to go down we can deal with new leisons if they appear. Seems SRS is really efficient keeping disease under control.Annie
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- July 6, 2016 at 12:40 pm
Antonio, thank you for this inspiring story. It really helps. I feel if they can get the tumors to go down we can deal with new leisons if they appear. Seems SRS is really efficient keeping disease under control.Annie
-
- July 6, 2016 at 11:12 am
Hello Annie,
here my wife story if could help
she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.
Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.
they was really rapid growing.
To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening
she received WBR for 20 days, i do not remeber the dose, and this had a great effect.
at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.
No collateral effect eccept hair loss
Antonio
-
- July 6, 2016 at 11:12 am
Hello Annie,
here my wife story if could help
she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.
Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.
they was really rapid growing.
To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening
she received WBR for 20 days, i do not remeber the dose, and this had a great effect.
at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.
No collateral effect eccept hair loss
Antonio
-
- July 6, 2016 at 12:45 pm
Thank you Maria for asking. My mom said he was speaking better today and remembered a car appointment that had to be canceled. There does not seem to be an issue woth cognition or memory which is good.He did say his brain feels “strange”, so I am sure there is lots of pressure in there. I am thinking they will need to do more than one session of SRS.
Thank you, Annie
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- July 6, 2016 at 12:45 pm
Thank you Maria for asking. My mom said he was speaking better today and remembered a car appointment that had to be canceled. There does not seem to be an issue woth cognition or memory which is good.He did say his brain feels “strange”, so I am sure there is lots of pressure in there. I am thinking they will need to do more than one session of SRS.
Thank you, Annie
-
- July 6, 2016 at 12:45 pm
Thank you Maria for asking. My mom said he was speaking better today and remembered a car appointment that had to be canceled. There does not seem to be an issue woth cognition or memory which is good.He did say his brain feels “strange”, so I am sure there is lots of pressure in there. I am thinking they will need to do more than one session of SRS.
Thank you, Annie
-
- July 6, 2016 at 12:45 pm
Thank you Maria for asking. My mom said he was speaking better today and remembered a car appointment that had to be canceled. There does not seem to be an issue woth cognition or memory which is good.He did say his brain feels “strange”, so I am sure there is lots of pressure in there. I am thinking they will need to do more than one session of SRS.
Thank you, Annie
-
- July 6, 2016 at 12:45 pm
Thank you Maria for asking. My mom said he was speaking better today and remembered a car appointment that had to be canceled. There does not seem to be an issue woth cognition or memory which is good.He did say his brain feels “strange”, so I am sure there is lots of pressure in there. I am thinking they will need to do more than one session of SRS.
Thank you, Annie
-
- July 6, 2016 at 12:45 pm
Thank you Maria for asking. My mom said he was speaking better today and remembered a car appointment that had to be canceled. There does not seem to be an issue woth cognition or memory which is good.He did say his brain feels “strange”, so I am sure there is lots of pressure in there. I am thinking they will need to do more than one session of SRS.
Thank you, Annie
-
- July 6, 2016 at 3:34 am
Hi Annie,
Thinking of you and wondering how your dad is doing tonight? I am hoping they go with gamma knife too, although they may need to split the treatment over a couple days because each met I believe takes 10-15 minutes to zap…? Wondering too if his mind will clear once the swelling goes down. Please keep us posted – you and your family are in my thoughts & prayers.
-
- July 6, 2016 at 3:34 am
Hi Annie,
Thinking of you and wondering how your dad is doing tonight? I am hoping they go with gamma knife too, although they may need to split the treatment over a couple days because each met I believe takes 10-15 minutes to zap…? Wondering too if his mind will clear once the swelling goes down. Please keep us posted – you and your family are in my thoughts & prayers.
-
- July 6, 2016 at 10:54 pm
Hi Annie – Also check out "Patina's" postings about her mother –
17 mets treated in one day with gamma knife, I believe, at USC Norris Comprehensive Cancer Center, LA.
Best thoughts and wishes are with you!!
Barb
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- July 6, 2016 at 10:54 pm
Hi Annie – Also check out "Patina's" postings about her mother –
17 mets treated in one day with gamma knife, I believe, at USC Norris Comprehensive Cancer Center, LA.
Best thoughts and wishes are with you!!
Barb
-
- July 6, 2016 at 10:54 pm
Hi Annie – Also check out "Patina's" postings about her mother –
17 mets treated in one day with gamma knife, I believe, at USC Norris Comprehensive Cancer Center, LA.
Best thoughts and wishes are with you!!
Barb
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- July 6, 2016 at 11:37 pm
Absolutely!! And this from Eva: https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/quick-update-thursday
19 brain mets treated in one go with Gamma knife!!! AND….it's her 5th procedure!!! Seek locations that can use SRS or Gamma Knife!!! They do exist!! Best, celeste
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- July 6, 2016 at 11:37 pm
Absolutely!! And this from Eva: https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/quick-update-thursday
19 brain mets treated in one go with Gamma knife!!! AND….it's her 5th procedure!!! Seek locations that can use SRS or Gamma Knife!!! They do exist!! Best, celeste
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- July 6, 2016 at 11:37 pm
Absolutely!! And this from Eva: https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/quick-update-thursday
19 brain mets treated in one go with Gamma knife!!! AND….it's her 5th procedure!!! Seek locations that can use SRS or Gamma Knife!!! They do exist!! Best, celeste
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- July 7, 2016 at 12:22 am
Thank you Barb and Celeste. I sure can use the encouragement! What makes me nervous is that you really do not have choices in their country. You go to the state hospitals and that is it. His hospital is a prominent research hospital and recommended on the Melanoma International website though. I hope they will be progressive.Annie
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- July 7, 2016 at 12:22 am
Thank you Barb and Celeste. I sure can use the encouragement! What makes me nervous is that you really do not have choices in their country. You go to the state hospitals and that is it. His hospital is a prominent research hospital and recommended on the Melanoma International website though. I hope they will be progressive.Annie
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- July 7, 2016 at 12:22 am
Thank you Barb and Celeste. I sure can use the encouragement! What makes me nervous is that you really do not have choices in their country. You go to the state hospitals and that is it. His hospital is a prominent research hospital and recommended on the Melanoma International website though. I hope they will be progressive.Annie
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