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Completed Yervoy….Scan Results….Next Step
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Completed Yervoy….Scan Results….Next Step

› Forums › General Melanoma Community › Completed Yervoy….Scan Results….Next Step

  • Post
    • October 9, 2014 at 3:10 am
    MattF
    Participant

      Quick Update

      Stage IV in Dec 2013

      BRAF Combo MEK and TAF …Dec 2013 to Jun 2014

      Yervoy completed a couple weeks ago.

       

      Latest PET/CT showed some of the tumors have shrunk, some grown and some stable….there are however a few new items that showed up.

      Paperwork and Authorization went in today for Keytruda. Which Doctor hopes starts within the next 14 days.

      Just as backround….I have a number of tumors on my thighs, pelis etc and have had radiation there…..also 7 Mets in brain and have had SSR to brain in Aug 2014.  I am borderline Anemic…..I also have swelling in feet and ankles over the last 4 weeks…

      Thoughts on the plan….

       

      I mean Keytruda is pretty much next right?

       

      Matt

    Viewing 8 reply threads
    • Replies
        • October 9, 2014 at 11:43 am
        ecc26
        Participant

          Your story is sounding a lot like mine. Yes, I think PD-1 is the next step (assuming they don't make you try a BRAFi first- are you + or -, I can't remember?) Hopefully it works for you as well as it has for me- minus the radiation necrosis and resulting craniotomy 😉 It is, at least, the easiest thing I've ever been on, so that's a plus!

          Best of luck!

          -Eva

          • October 9, 2014 at 11:43 am
          ecc26
          Participant

            Your story is sounding a lot like mine. Yes, I think PD-1 is the next step (assuming they don't make you try a BRAFi first- are you + or -, I can't remember?) Hopefully it works for you as well as it has for me- minus the radiation necrosis and resulting craniotomy 😉 It is, at least, the easiest thing I've ever been on, so that's a plus!

            Best of luck!

            -Eva

            • October 9, 2014 at 11:43 am
            ecc26
            Participant

              Your story is sounding a lot like mine. Yes, I think PD-1 is the next step (assuming they don't make you try a BRAFi first- are you + or -, I can't remember?) Hopefully it works for you as well as it has for me- minus the radiation necrosis and resulting craniotomy 😉 It is, at least, the easiest thing I've ever been on, so that's a plus!

              Best of luck!

              -Eva

              • October 9, 2014 at 2:45 pm
              Ginger8888
              Participant

                Good luck, i was one of the fortunate ones that Yervoy is working..

                  • October 9, 2014 at 6:29 pm
                  Carole K
                  Participant

                    Matt what a story you have, Look up the patnet for JAG.  He is an amazing survivor after 7 craniotomies and is back at work full time.  Please know I am here for you in any way you need me to be. You have a lot of courage and I commend your optimism..  Stay positie  Big Hugs

                    Love and Light

                    Carole

                    IT'S A BEAUTIFUL DAY !!!! I OPEEND MY EYES!!!

                    • October 9, 2014 at 6:29 pm
                    Carole K
                    Participant

                      Matt what a story you have, Look up the patnet for JAG.  He is an amazing survivor after 7 craniotomies and is back at work full time.  Please know I am here for you in any way you need me to be. You have a lot of courage and I commend your optimism..  Stay positie  Big Hugs

                      Love and Light

                      Carole

                      IT'S A BEAUTIFUL DAY !!!! I OPEEND MY EYES!!!

                      • October 9, 2014 at 6:29 pm
                      Carole K
                      Participant

                        Matt what a story you have, Look up the patnet for JAG.  He is an amazing survivor after 7 craniotomies and is back at work full time.  Please know I am here for you in any way you need me to be. You have a lot of courage and I commend your optimism..  Stay positie  Big Hugs

                        Love and Light

                        Carole

                        IT'S A BEAUTIFUL DAY !!!! I OPEEND MY EYES!!!

                      • October 9, 2014 at 2:45 pm
                      Ginger8888
                      Participant

                        Good luck, i was one of the fortunate ones that Yervoy is working..

                        • October 9, 2014 at 2:45 pm
                        Ginger8888
                        Participant

                          Good luck, i was one of the fortunate ones that Yervoy is working..

                          • October 9, 2014 at 8:26 pm
                          BrianP
                          Participant

                            Hey Matt,

                            Keytruda does seem like the obvious next step doesn't it.  Sounds particularly good in that you can start it so soon.  I guess if I were in your shoes I might take a quick look to see if there are any promising Anti-Pd1 combo options such as with anti-KIR or something like that.  I'm not saying there are any good options like that but I'd take a quick look at those type of options.  Other than that I'd be singing and tap dancing all the way to the infusion center for my first dose of Keytruda in two weeks.  Best of luck to you Matt.  Hope the swelling and anemia improve.

                            Brian 

                            • October 9, 2014 at 8:26 pm
                            BrianP
                            Participant

                              Hey Matt,

                              Keytruda does seem like the obvious next step doesn't it.  Sounds particularly good in that you can start it so soon.  I guess if I were in your shoes I might take a quick look to see if there are any promising Anti-Pd1 combo options such as with anti-KIR or something like that.  I'm not saying there are any good options like that but I'd take a quick look at those type of options.  Other than that I'd be singing and tap dancing all the way to the infusion center for my first dose of Keytruda in two weeks.  Best of luck to you Matt.  Hope the swelling and anemia improve.

                              Brian 

                              • October 9, 2014 at 8:26 pm
                              BrianP
                              Participant

                                Hey Matt,

                                Keytruda does seem like the obvious next step doesn't it.  Sounds particularly good in that you can start it so soon.  I guess if I were in your shoes I might take a quick look to see if there are any promising Anti-Pd1 combo options such as with anti-KIR or something like that.  I'm not saying there are any good options like that but I'd take a quick look at those type of options.  Other than that I'd be singing and tap dancing all the way to the infusion center for my first dose of Keytruda in two weeks.  Best of luck to you Matt.  Hope the swelling and anemia improve.

                                Brian 

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