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clinical trials for stage IIIC
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clinical trials for stage IIIC

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  • Post
    • November 29, 2010 at 8:41 pm
    NeilG
    Participant

      Recently had a recurrence on my back after being NED for 2+years. I was initially stage 3a and went through the year of interferon. Now I had an intransit metastasis under left shoulder blade. I had the surgery and am currently looking for adjuvant treatment. I am having problems finding clinical trials and debating on doing one. Has anyone w/ a intransit melanoma gone through a clinical trial and what are some good resources to find one. Thanks so much for the help, it is much needed.

      God bless.

      Recently had a recurrence on my back after being NED for 2+years. I was initially stage 3a and went through the year of interferon. Now I had an intransit metastasis under left shoulder blade. I had the surgery and am currently looking for adjuvant treatment. I am having problems finding clinical trials and debating on doing one. Has anyone w/ a intransit melanoma gone through a clinical trial and what are some good resources to find one. Thanks so much for the help, it is much needed.

      God bless.

    Viewing 5 reply threads
    • Replies
        • November 30, 2010 at 3:34 am
        makedoandmend
        Participant

          I am stage IIIb and also looking for a tiral. So far the ipi adjuvant tiral seems the most promising to me but there is 50/50 chance of getting a placebo.  There are other trials like vaccine, oncovex etc. The best resource is http://www.clinicaltrials.gov  That is the most obvious one so hopefully some more experienced members can offer more insight. 

          -patrick

          • November 30, 2010 at 3:34 am
          makedoandmend
          Participant

            I am stage IIIb and also looking for a tiral. So far the ipi adjuvant tiral seems the most promising to me but there is 50/50 chance of getting a placebo.  There are other trials like vaccine, oncovex etc. The best resource is http://www.clinicaltrials.gov  That is the most obvious one so hopefully some more experienced members can offer more insight. 

            -patrick

            • November 30, 2010 at 8:50 pm
            dian in spokane
            Participant

              I advanced to stage IV via sub cutaneous tumor back in late 08. All I wanted was to get the tumor out, so I did, only to discover that there were really no trials or treatments available for me because I was disease free.

              It's a hard plae to be..but..also it's great that you are currently NED again.

              Patrick mentioned that 50/50 ipi trial, and that might be one of the only ones out there for you if you are disease free. ( searching Clinicaltrials.gov is too overwheming for you, please be aware that you can call the American Cancer Society, and they will arrange to do an interview with you and do the searching for you, mailing you a list of possible trials within a couple of days)

              For me, I had a second sub Q which popped up within weeks of my surgery in early 09, and I found a vaccine trial that interested me. They took that tumor and used it to make my vaccine (it's the MacVac Trial at Hoag hospital in Calif)

              Right now, you are probably in watch and wait mode unless or untill you develop another in transit. When that happens, you might try to resist the very normal impulse to get that thing OUT asap, because more trials will be open for you if you have some sort of measurable disease.

              For what it's worth.. I would NOT have gone into a trial that would have required me keeping the tumor. But using the tumor for a treatment suited my sensibilites.

              Good Luck to you. I hope you just get to STAY NED!

               

              dian

              • November 30, 2010 at 8:50 pm
              dian in spokane
              Participant

                I advanced to stage IV via sub cutaneous tumor back in late 08. All I wanted was to get the tumor out, so I did, only to discover that there were really no trials or treatments available for me because I was disease free.

                It's a hard plae to be..but..also it's great that you are currently NED again.

                Patrick mentioned that 50/50 ipi trial, and that might be one of the only ones out there for you if you are disease free. ( searching Clinicaltrials.gov is too overwheming for you, please be aware that you can call the American Cancer Society, and they will arrange to do an interview with you and do the searching for you, mailing you a list of possible trials within a couple of days)

                For me, I had a second sub Q which popped up within weeks of my surgery in early 09, and I found a vaccine trial that interested me. They took that tumor and used it to make my vaccine (it's the MacVac Trial at Hoag hospital in Calif)

                Right now, you are probably in watch and wait mode unless or untill you develop another in transit. When that happens, you might try to resist the very normal impulse to get that thing OUT asap, because more trials will be open for you if you have some sort of measurable disease.

                For what it's worth.. I would NOT have gone into a trial that would have required me keeping the tumor. But using the tumor for a treatment suited my sensibilites.

                Good Luck to you. I hope you just get to STAY NED!

                 

                dian

                • November 30, 2010 at 10:13 pm
                ChristineL
                Participant

                  I find the website below easier to navigate, but that's just personal preference.  Good luck, we're here for you!

                  http://www.cancer.gov/search/SearchClinicalTrials.aspx

                    • December 1, 2010 at 2:04 am
                    dian in spokane
                    Participant

                      I concur! It's been so long since I had to do a clinical trial search that I didn't remember that. 🙂

                      • December 1, 2010 at 2:04 am
                      dian in spokane
                      Participant

                        I concur! It's been so long since I had to do a clinical trial search that I didn't remember that. 🙂

                      • November 30, 2010 at 10:13 pm
                      ChristineL
                      Participant

                        I find the website below easier to navigate, but that's just personal preference.  Good luck, we're here for you!

                        http://www.cancer.gov/search/SearchClinicalTrials.aspx

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