The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Clean scans — what a relief!

Forums General Melanoma Community Clean scans — what a relief!

  • Post
    Dynasysman
    Participant

    Just learned that the scans I took yestereday make me NED.  So one year after I first found the lumpy lymph node (Melanoma of Unknown Primary), seven months after a PET-CT revealed a second tumor in the same space (but my ONC misread it), three months after an ultrasound-biopsy confirmed it, I am NED and one-year progresion free.

    Just learned that the scans I took yestereday make me NED.  So one year after I first found the lumpy lymph node (Melanoma of Unknown Primary), seven months after a PET-CT revealed a second tumor in the same space (but my ONC misread it), three months after an ultrasound-biopsy confirmed it, I am NED and one-year progresion free.

    Look, melanoma is a sneaky, nasty disease, so you never know what comes next.  But for those of you just entering Stage 3 or first discovering an unknown primary, it's not an immediate death sentence.  And for those of you who "got it early", well, maybe you did!

Viewing 15 reply threads
  • Replies
      Erinmay22
      Participant

      woo hoo!!!  that's good great to hear!

      Erinmay22
      Participant

      woo hoo!!!  that's good great to hear!

      FormerCaregiver
      Participant

      Congratulations on the excellent scan results! NED is always a great thing to have!

      Best wishes

      Frank from Australia

      FormerCaregiver
      Participant

      Congratulations on the excellent scan results! NED is always a great thing to have!

      Best wishes

      Frank from Australia

      Gene_S
      Participant

      Celebrate that wonderful news.  Congratulations!!!!!!!

      Gene_S
      Participant

      Celebrate that wonderful news.  Congratulations!!!!!!!

      justlittleoleme
      Participant

      Congrats on NED!

      justlittleoleme
      Participant

      Congrats on NED!

      lhaley
      Participant

      Yeah!  Great news!!

      Linda

      lhaley
      Participant

      Yeah!  Great news!!

      Linda

      JerryfromFauq
      Participant

      Whoopeee, Glad you got to met that NED fellow!  Tell him to stay around a few decades!

      JerryfromFauq
      Participant

      Whoopeee, Glad you got to met that NED fellow!  Tell him to stay around a few decades!

        Dynasysman
        Participant

        Sounds like a plan…

        Dynasysman
        Participant

        Sounds like a plan…

      ValinMtl
      Participant

      Doing the happy happy dance for you.  I'm hoping to be NED in the future!!!  So right melanoma is sneak, nasty and you never know what it could throw next..be vigilant no matter what stage.  Val

      ValinMtl
      Participant

      Doing the happy happy dance for you.  I'm hoping to be NED in the future!!!  So right melanoma is sneak, nasty and you never know what it could throw next..be vigilant no matter what stage.  Val

        Vermont_Donna
        Participant

        Sooooo happy for you….and what a relief!!!

        Vermont_Donna, stage 3a, NED

        Vermont_Donna
        Participant

        Sooooo happy for you….and what a relief!!!

        Vermont_Donna, stage 3a, NED

      Lauri England
      Participant

      What wonderful news.  Congrats!!!

      Lauri England
      Participant

      What wonderful news.  Congrats!!!

Viewing 15 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.