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Change over to chest X-ray only?
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Change over to chest X-ray only?

› Forums › General Melanoma Community › Change over to chest X-ray only?

  • Post
    • December 17, 2014 at 10:37 pm
    Who_am_i
    Participant

      I seriously made my new oncologist upset when they posted my CT results in my account before I had my appt to go over the results. I cancelled my appt based upon the stable results. I am IIIB positive ulceration, mitosis 18, one node positive. 18 mo out from dx. The new oncologist called on phone to blast me and said I would now go to chest X-rays only?! Is that the usual progression of watch and wait?

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    • Replies
        • December 18, 2014 at 4:19 am
        Lil0909
        Participant
          I’m 3a and my onc (melanoma specialst) just wants to do chest xray after initial pet/CT right after diagnosis… I’ve been wondering the same question as you.
          • December 18, 2014 at 4:19 am
          Lil0909
          Participant
            I’m 3a and my onc (melanoma specialst) just wants to do chest xray after initial pet/CT right after diagnosis… I’ve been wondering the same question as you.
            • December 18, 2014 at 4:19 am
            Lil0909
            Participant
              I’m 3a and my onc (melanoma specialst) just wants to do chest xray after initial pet/CT right after diagnosis… I’ve been wondering the same question as you.
              • December 18, 2014 at 5:25 am
              Marianne quinn
              Participant

                You are at high risk of  progression. Melanoma can show up anywhere. I would think a CAT scan every 6 months is more commonly done in a case such as yours.

                i think it is unwise of you to cancel your appointment. You need to have a good working relationship with your doctor. You are at very high risk of reoccurrence. It is unfortunate that your scan was posted prior to your appointment, but unless you are skilled in interpreting scans and lab work, missing your appointment because you are angry is foolish. Good luck to you.

                • December 18, 2014 at 5:25 am
                Marianne quinn
                Participant

                  You are at high risk of  progression. Melanoma can show up anywhere. I would think a CAT scan every 6 months is more commonly done in a case such as yours.

                  i think it is unwise of you to cancel your appointment. You need to have a good working relationship with your doctor. You are at very high risk of reoccurrence. It is unfortunate that your scan was posted prior to your appointment, but unless you are skilled in interpreting scans and lab work, missing your appointment because you are angry is foolish. Good luck to you.

                  • December 18, 2014 at 5:25 am
                  Marianne quinn
                  Participant

                    You are at high risk of  progression. Melanoma can show up anywhere. I would think a CAT scan every 6 months is more commonly done in a case such as yours.

                    i think it is unwise of you to cancel your appointment. You need to have a good working relationship with your doctor. You are at very high risk of reoccurrence. It is unfortunate that your scan was posted prior to your appointment, but unless you are skilled in interpreting scans and lab work, missing your appointment because you are angry is foolish. Good luck to you.

                    • December 18, 2014 at 1:25 pm
                    eturner82
                    Participant

                      I'm not 100% sure but I think there is a certain window of time that results have to be put into the chart due to it being your record and the law.

                      • December 18, 2014 at 1:25 pm
                      eturner82
                      Participant

                        I'm not 100% sure but I think there is a certain window of time that results have to be put into the chart due to it being your record and the law.

                        • December 18, 2014 at 1:25 pm
                        eturner82
                        Participant

                          I'm not 100% sure but I think there is a certain window of time that results have to be put into the chart due to it being your record and the law.

                          • December 21, 2014 at 4:30 am
                          Who_am_i
                          Participant

                            I should say I did not cancel my appt because I was angry, I cancelled because it was 100 miles for the ct scan then 100 miles to be told the scan was stable. I am questioning how I can be repeatedly told I am at such a high risk for recurrence but am now being switched to chest X-rays only. Doesn't make since to me.

                            • December 21, 2014 at 4:30 am
                            Who_am_i
                            Participant

                              I should say I did not cancel my appt because I was angry, I cancelled because it was 100 miles for the ct scan then 100 miles to be told the scan was stable. I am questioning how I can be repeatedly told I am at such a high risk for recurrence but am now being switched to chest X-rays only. Doesn't make since to me.

                              • December 21, 2014 at 4:30 am
                              Who_am_i
                              Participant

                                I should say I did not cancel my appt because I was angry, I cancelled because it was 100 miles for the ct scan then 100 miles to be told the scan was stable. I am questioning how I can be repeatedly told I am at such a high risk for recurrence but am now being switched to chest X-rays only. Doesn't make since to me.

                                  • December 21, 2014 at 4:31 am
                                  Who_am_i
                                  Participant

                                    Sence, sorry

                                    • December 21, 2014 at 4:31 am
                                    Who_am_i
                                    Participant

                                      Sence, sorry

                                      • December 21, 2014 at 4:31 am
                                      Who_am_i
                                      Participant

                                        Sence, sorry

                                        • December 23, 2014 at 2:32 am
                                        Squash
                                        Participant

                                          CT scans have a lot of radiation so backing off them is not such a bad thing im my opinion even thou you are high risk.

                                           

                                          • December 23, 2014 at 2:32 am
                                          Squash
                                          Participant

                                            CT scans have a lot of radiation so backing off them is not such a bad thing im my opinion even thou you are high risk.

                                             

                                            • December 23, 2014 at 2:32 am
                                            Squash
                                            Participant

                                              CT scans have a lot of radiation so backing off them is not such a bad thing im my opinion even thou you are high risk.

                                               

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