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Carbo/Taxol = Happy Dance!!

Forums General Melanoma Community Carbo/Taxol = Happy Dance!!

  • Post
    MeNDave
    Participant

    Just wanted to post our good news, first time in four years of battling the beast.  Dave's recent decline took IPI off the table, as his LDH was over 8000 (yes, that's 8k, not 800).  The cancer was spreading quickly, and his onc told us that we may have to face the fact that we couldn't keep ahead of it.  The day before he was released from the hospital, Dave did one round of carbo/taxol.  After being bed ridden for 5 days, he did a complete turn around – even going back to work.  He went in for his bloodwork yesterday and his LDH has dropped to 2390 – s

    Just wanted to post our good news, first time in four years of battling the beast.  Dave's recent decline took IPI off the table, as his LDH was over 8000 (yes, that's 8k, not 800).  The cancer was spreading quickly, and his onc told us that we may have to face the fact that we couldn't keep ahead of it.  The day before he was released from the hospital, Dave did one round of carbo/taxol.  After being bed ridden for 5 days, he did a complete turn around – even going back to work.  He went in for his bloodwork yesterday and his LDH has dropped to 2390 – still high, but much better.  The one met in his chest that could be felt has shrunk to half it's size.  His oncologist was thrilled with the results, and we were over the moon!  FINALLY…. something is working.  Plan now is to do one more round next week, then scan on June 1.  If all goes well, he will start IPI in June, as we know that this is only a "bridge" treatment.  His energy level has increased, and we are decreasing the methadone, steroids, and gabapatin.

    I can't tell you how happy we are! 

    All my best to all the mel warriors – don't ever, ever give up!

    Maria

Viewing 35 reply threads
  • Replies
      deardad
      Participant

      That's wonderful news, I'm so happy to hear Dave is improving. 

      Nahmi from Melbourne

      deardad
      Participant

      That's wonderful news, I'm so happy to hear Dave is improving. 

      Nahmi from Melbourne

      deardad
      Participant

      That's wonderful news, I'm so happy to hear Dave is improving. 

      Nahmi from Melbourne

      susanr
      Participant

      Great news Maria !!!!!  Very happy for you guys.  Please keep us posted.  I will watch for your posts.

      susanr
      Participant

      Great news Maria !!!!!  Very happy for you guys.  Please keep us posted.  I will watch for your posts.

      susanr
      Participant

      Great news Maria !!!!!  Very happy for you guys.  Please keep us posted.  I will watch for your posts.

      susanr
      Participant

      Maria,

      Thank you for your response to some of my posts re: my brother.  Prior to the good news, I know it was very tough and you were kind enough to help others while taking care of Dave.  Keep us posted on how he does.

      Thanks Susan-NY

      susanr
      Participant

      Maria,

      Thank you for your response to some of my posts re: my brother.  Prior to the good news, I know it was very tough and you were kind enough to help others while taking care of Dave.  Keep us posted on how he does.

      Thanks Susan-NY

      susanr
      Participant

      Maria,

      Thank you for your response to some of my posts re: my brother.  Prior to the good news, I know it was very tough and you were kind enough to help others while taking care of Dave.  Keep us posted on how he does.

      Thanks Susan-NY

      aldakota22
      Participant

      Always a real joy to read such positive news for one of us.Praying it only keeps getting better.Till we are ale NED.  Al

      aldakota22
      Participant

      Always a real joy to read such positive news for one of us.Praying it only keeps getting better.Till we are ale NED.  Al

      aldakota22
      Participant

      Always a real joy to read such positive news for one of us.Praying it only keeps getting better.Till we are ale NED.  Al

      Phil S
      Participant
      Maria, Thanks for the update, I have been wondering how Dave was doing! Great News, glad he can get back to work, and life can be somewhat normal, and its super that’s he is feeling better. Take care of yourself,too! God Bless, Valerie (Phil’s wife)
      Phil S
      Participant
      Maria, Thanks for the update, I have been wondering how Dave was doing! Great News, glad he can get back to work, and life can be somewhat normal, and its super that’s he is feeling better. Take care of yourself,too! God Bless, Valerie (Phil’s wife)
      Phil S
      Participant
      Maria, Thanks for the update, I have been wondering how Dave was doing! Great News, glad he can get back to work, and life can be somewhat normal, and its super that’s he is feeling better. Take care of yourself,too! God Bless, Valerie (Phil’s wife)
      Karin L
      Participant

      I hardly know what to say but that I am SO  happy for you both!!!  With a LDH that high I am sure you were scared.  Mine was 3800 and when it dropped during treatment my doctor all but hopped and skipped into the room to show us the results.  It kept going downhill from there and I wish that for Dave also.  Happy dance!

       

      Karin

      Karin L
      Participant

      I hardly know what to say but that I am SO  happy for you both!!!  With a LDH that high I am sure you were scared.  Mine was 3800 and when it dropped during treatment my doctor all but hopped and skipped into the room to show us the results.  It kept going downhill from there and I wish that for Dave also.  Happy dance!

       

      Karin

      Karin L
      Participant

      I hardly know what to say but that I am SO  happy for you both!!!  With a LDH that high I am sure you were scared.  Mine was 3800 and when it dropped during treatment my doctor all but hopped and skipped into the room to show us the results.  It kept going downhill from there and I wish that for Dave also.  Happy dance!

       

      Karin

      hope4cure1
      Participant

      Maria, that is the best news!!!!!  You deserved to finally get some good news.  Here's to your new course of positive results!!

      Hope

      hope4cure1
      Participant

      Maria, that is the best news!!!!!  You deserved to finally get some good news.  Here's to your new course of positive results!!

      Hope

      hope4cure1
      Participant

      Maria, that is the best news!!!!!  You deserved to finally get some good news.  Here's to your new course of positive results!!

      Hope

      lhaley
      Participant

      Love hearing good news!  He must be feeling so much better to be back to work.

      Linda

      lhaley
      Participant

      Love hearing good news!  He must be feeling so much better to be back to work.

      Linda

      lhaley
      Participant

      Love hearing good news!  He must be feeling so much better to be back to work.

      Linda

      s Mom
      Participant

      Hi Maria,

      We're doing the happy dance over here with you!!  Woohooo!!!

      Bridgette (Jeff's Mom)

      s Mom
      Participant

      Hi Maria,

      We're doing the happy dance over here with you!!  Woohooo!!!

      Bridgette (Jeff's Mom)

      s Mom
      Participant

      Hi Maria,

      We're doing the happy dance over here with you!!  Woohooo!!!

      Bridgette (Jeff's Mom)

      Maria and Dave,
      Brooks and I were SO very happy to hear the great news! you’re fighters always. Keeping you in our prayers, chins up!!!
      Maria and Dave,
      Brooks and I were SO very happy to hear the great news! you’re fighters always. Keeping you in our prayers, chins up!!!
      Maria and Dave,
      Brooks and I were SO very happy to hear the great news! you’re fighters always. Keeping you in our prayers, chins up!!!
      ErikaNFam
      Participant

      Hi Maria,

      I am being pulled different ways by different Doctors.  One saying BioChemo will give the highest chance of a response and the other doctor saying it is too toxic an the difference between BioChemo and regular chemo, the carbo/taxol.

      I was wondering, where your disease was and was it widespread?  I have a significant amount of mets on my liver.  MY Ldh is now 1000, which I know puts me at a decreased chance of the them being effective.

      Can you tell me how you chose to do the Chemo and not biochemo?  I'm also curious the statistics on response rates that they quoted you.

      ErikaNFam
      Participant

      Hi Maria,

      I am being pulled different ways by different Doctors.  One saying BioChemo will give the highest chance of a response and the other doctor saying it is too toxic an the difference between BioChemo and regular chemo, the carbo/taxol.

      I was wondering, where your disease was and was it widespread?  I have a significant amount of mets on my liver.  MY Ldh is now 1000, which I know puts me at a decreased chance of the them being effective.

      Can you tell me how you chose to do the Chemo and not biochemo?  I'm also curious the statistics on response rates that they quoted you.

      ErikaNFam
      Participant

      Hi Maria,

      I am being pulled different ways by different Doctors.  One saying BioChemo will give the highest chance of a response and the other doctor saying it is too toxic an the difference between BioChemo and regular chemo, the carbo/taxol.

      I was wondering, where your disease was and was it widespread?  I have a significant amount of mets on my liver.  MY Ldh is now 1000, which I know puts me at a decreased chance of the them being effective.

      Can you tell me how you chose to do the Chemo and not biochemo?  I'm also curious the statistics on response rates that they quoted you.

      ErikaNFam
      Participant

      Hi Maria,

      I am being pulled different ways by different Doctors.  One saying BioChemo will give the highest chance of a response and the other doctor saying it is too toxic an the difference between BioChemo and regular chemo, the carbo/taxol.

      I was wondering, where your disease was and was it widespread?  I have a significant amount of mets on my liver.  MY Ldh is now 1000, which I know puts me at a decreased chance of the them being effective.

      Can you tell me how you chose to do the Chemo and not biochemo?  I'm also curious the statistics on response rates that they quoted you.

      ErikaNFam
      Participant

      Hi Maria,

      I am being pulled different ways by different Doctors.  One saying BioChemo will give the highest chance of a response and the other doctor saying it is too toxic an the difference between BioChemo and regular chemo, the carbo/taxol.

      I was wondering, where your disease was and was it widespread?  I have a significant amount of mets on my liver.  MY Ldh is now 1000, which I know puts me at a decreased chance of the them being effective.

      Can you tell me how you chose to do the Chemo and not biochemo?  I'm also curious the statistics on response rates that they quoted you.

      ErikaNFam
      Participant

      Hi Maria,

      I am being pulled different ways by different Doctors.  One saying BioChemo will give the highest chance of a response and the other doctor saying it is too toxic an the difference between BioChemo and regular chemo, the carbo/taxol.

      I was wondering, where your disease was and was it widespread?  I have a significant amount of mets on my liver.  MY Ldh is now 1000, which I know puts me at a decreased chance of the them being effective.

      Can you tell me how you chose to do the Chemo and not biochemo?  I'm also curious the statistics on response rates that they quoted you.

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