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Brother diagnosed with metastatic melanoma.best hospital for treatment?
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Brother diagnosed with metastatic melanoma.best hospital for treatment?

› Forums › General Melanoma Community › Brother diagnosed with metastatic melanoma.best hospital for treatment?

  • Post
    • April 3, 2016 at 2:38 pm
    Nilaypatel21
    Participant

       1 year back detected with left eye choroidal melanoma with negative pet ct for any otherparts in body.so enucleation and left modified radical neck disection done.

      but 1 day before pet ct suggestive of metastatic melanoma to both lobes of liver and left illiac bone.we are from india.

      can you guide us which is the best hospital for further treatment in world/usa/india?

    Viewing 5 reply threads
    • Replies
        • April 3, 2016 at 11:10 pm
        Maria C
        Participant

          Hi there –

          My vote would be John Hopkins in Baltimore, MD, one of the top melanoma centers in the US which has recently been awarded an infusion of funding specifically for immunotherapy research. Learn more here:

          http://bigstory.ap.org/article/f7143c5b9b6142b3bef71f984771006d/biden-helping-johns-hopkins-launch-anti-cancer-effort

          All good wishes,

           

          • April 3, 2016 at 11:10 pm
          Maria C
          Participant

            Hi there –

            My vote would be John Hopkins in Baltimore, MD, one of the top melanoma centers in the US which has recently been awarded an infusion of funding specifically for immunotherapy research. Learn more here:

            http://bigstory.ap.org/article/f7143c5b9b6142b3bef71f984771006d/biden-helping-johns-hopkins-launch-anti-cancer-effort

            All good wishes,

             

              • April 5, 2016 at 6:33 am
              Nilaypatel21
              Participant

                what about md anderson?

                i am from india.so do not know much about usa hospitals.

                thank you

                • April 5, 2016 at 11:23 am
                Maria C
                Participant

                  MD Anderson would be a good choice too. The top melanoma hospitals I'm aware of in the U.S. are MD Anderson (Texas), John Hopkins (Maryland), Sloan (New York), Dana Farber (Boston), and Smilow/Yale (Connecticut). I suggested John Hopkins because of the new Immunotherpay Institute that has been slated for development there, but you'll find top melanoma specialists at MD Anderson as well.

                   

                   

                  • April 5, 2016 at 11:23 am
                  Maria C
                  Participant

                    MD Anderson would be a good choice too. The top melanoma hospitals I'm aware of in the U.S. are MD Anderson (Texas), John Hopkins (Maryland), Sloan (New York), Dana Farber (Boston), and Smilow/Yale (Connecticut). I suggested John Hopkins because of the new Immunotherpay Institute that has been slated for development there, but you'll find top melanoma specialists at MD Anderson as well.

                     

                     

                    • April 5, 2016 at 11:23 am
                    Maria C
                    Participant

                      MD Anderson would be a good choice too. The top melanoma hospitals I'm aware of in the U.S. are MD Anderson (Texas), John Hopkins (Maryland), Sloan (New York), Dana Farber (Boston), and Smilow/Yale (Connecticut). I suggested John Hopkins because of the new Immunotherpay Institute that has been slated for development there, but you'll find top melanoma specialists at MD Anderson as well.

                       

                       

                      • April 5, 2016 at 6:33 am
                      Nilaypatel21
                      Participant

                        what about md anderson?

                        i am from india.so do not know much about usa hospitals.

                        thank you

                        • April 5, 2016 at 6:33 am
                        Nilaypatel21
                        Participant

                          what about md anderson?

                          i am from india.so do not know much about usa hospitals.

                          thank you

                        • April 3, 2016 at 11:10 pm
                        Maria C
                        Participant

                          Hi there –

                          My vote would be John Hopkins in Baltimore, MD, one of the top melanoma centers in the US which has recently been awarded an infusion of funding specifically for immunotherapy research. Learn more here:

                          http://bigstory.ap.org/article/f7143c5b9b6142b3bef71f984771006d/biden-helping-johns-hopkins-launch-anti-cancer-effort

                          All good wishes,

                           

                          • April 4, 2016 at 10:11 pm
                          Tamils
                          Participant

                            Thomas Jefferson University in Philadelphia specializes in ocular melanoma, and Dr Takami Sato is well-known for his work in the area.  It is one of the only hospitals to specialize in treating metastatic ocular melanoma.  Most other hospitals, even those that are centers of excellence in melanoma, will treat OM no differently than regular melanoma.  I would recommend at least researching and calling them.

                              • April 5, 2016 at 6:34 am
                              Nilaypatel21
                              Participant

                                what about md anderson?

                                i am from india.so do not know much about usa hospitals.

                                thank you

                                • April 5, 2016 at 6:34 am
                                Nilaypatel21
                                Participant

                                  what about md anderson?

                                  i am from india.so do not know much about usa hospitals.

                                  thank you

                                  • April 5, 2016 at 6:34 am
                                  Nilaypatel21
                                  Participant

                                    what about md anderson?

                                    i am from india.so do not know much about usa hospitals.

                                    thank you

                                    • April 5, 2016 at 12:37 pm
                                    Janner
                                    Participant

                                      MD Anderson is a great hospital and it treats lots of melanoma.  But the previous poster has a point.  Any hospital you go to is going to see LOTS more skin/cutaneous melanoma than ocular melanoma.  No hospital has higher survival rates than other hospitals, but you should really focus on finding ones who have ocular melanoma specialists.  Ocular melanoma has different responses to drugs than cutaneous melanoma.  The other thing you could possibly research is where clinical trials regarding ocular melanoma are taking place.  http://www.clinicaltrials.gov.  I'm not suggesting you try to participate in a clinical trial, but ones specific to ocular melanoma are most likely going to be offered at institutions who treat more OM and have specialists who are more focused on OM.

                                      There is an ocular melanoma bulletin board on this site: http://https://www.melanoma.org/find-support/patient-community/cure-om-forum.  Those are the folks you should be asking because they are dealing with the same disease.

                                      Germany also tends to be quite progressive and is much closer than the USA – you might want to look at see what options exist there.  Also Australia has the highest cutaneous melanoma rates in the world so might be another place to check as well.

                                      • April 5, 2016 at 12:37 pm
                                      Janner
                                      Participant

                                        MD Anderson is a great hospital and it treats lots of melanoma.  But the previous poster has a point.  Any hospital you go to is going to see LOTS more skin/cutaneous melanoma than ocular melanoma.  No hospital has higher survival rates than other hospitals, but you should really focus on finding ones who have ocular melanoma specialists.  Ocular melanoma has different responses to drugs than cutaneous melanoma.  The other thing you could possibly research is where clinical trials regarding ocular melanoma are taking place.  http://www.clinicaltrials.gov.  I'm not suggesting you try to participate in a clinical trial, but ones specific to ocular melanoma are most likely going to be offered at institutions who treat more OM and have specialists who are more focused on OM.

                                        There is an ocular melanoma bulletin board on this site: http://https://www.melanoma.org/find-support/patient-community/cure-om-forum.  Those are the folks you should be asking because they are dealing with the same disease.

                                        Germany also tends to be quite progressive and is much closer than the USA – you might want to look at see what options exist there.  Also Australia has the highest cutaneous melanoma rates in the world so might be another place to check as well.

                                        • April 5, 2016 at 12:37 pm
                                        Janner
                                        Participant

                                          MD Anderson is a great hospital and it treats lots of melanoma.  But the previous poster has a point.  Any hospital you go to is going to see LOTS more skin/cutaneous melanoma than ocular melanoma.  No hospital has higher survival rates than other hospitals, but you should really focus on finding ones who have ocular melanoma specialists.  Ocular melanoma has different responses to drugs than cutaneous melanoma.  The other thing you could possibly research is where clinical trials regarding ocular melanoma are taking place.  http://www.clinicaltrials.gov.  I'm not suggesting you try to participate in a clinical trial, but ones specific to ocular melanoma are most likely going to be offered at institutions who treat more OM and have specialists who are more focused on OM.

                                          There is an ocular melanoma bulletin board on this site: http://https://www.melanoma.org/find-support/patient-community/cure-om-forum.  Those are the folks you should be asking because they are dealing with the same disease.

                                          Germany also tends to be quite progressive and is much closer than the USA – you might want to look at see what options exist there.  Also Australia has the highest cutaneous melanoma rates in the world so might be another place to check as well.

                                        • April 4, 2016 at 10:11 pm
                                        Tamils
                                        Participant

                                          Thomas Jefferson University in Philadelphia specializes in ocular melanoma, and Dr Takami Sato is well-known for his work in the area.  It is one of the only hospitals to specialize in treating metastatic ocular melanoma.  Most other hospitals, even those that are centers of excellence in melanoma, will treat OM no differently than regular melanoma.  I would recommend at least researching and calling them.

                                          • April 4, 2016 at 10:11 pm
                                          Tamils
                                          Participant

                                            Thomas Jefferson University in Philadelphia specializes in ocular melanoma, and Dr Takami Sato is well-known for his work in the area.  It is one of the only hospitals to specialize in treating metastatic ocular melanoma.  Most other hospitals, even those that are centers of excellence in melanoma, will treat OM no differently than regular melanoma.  I would recommend at least researching and calling them.

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