Bridgette (Jeff’s Mom)
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Bridgette (Jeff’s Mom)

› Forums › General Melanoma Community › Bridgette (Jeff’s Mom)

  • Post
    • May 19, 2012 at 3:57 pm
    killmel
    Participant

    Hi Bridgette,

     

    I hope the meetings with Dr. Ribas & Hamid went well for your son.

    Did the doctor concur with Dr. Weber opinion? The worst is when the doctors cannot agree on a recommended treatment. What were their recommendations?

    I live in Vegas & still looking for assitance to travel to Dr. Ribas in California.Was you son ableto get assistance with his flight to CA?/

    I wish your son continued success with his Zeboraf treatment.

    Marie

    Hi Bridgette,

     

    I hope the meetings with Dr. Ribas & Hamid went well for your son.

    Did the doctor concur with Dr. Weber opinion? The worst is when the doctors cannot agree on a recommended treatment. What were their recommendations?

    I live in Vegas & still looking for assitance to travel to Dr. Ribas in California.Was you son ableto get assistance with his flight to CA?/

    I wish your son continued success with his Zeboraf treatment.

    Marie

Viewing 8 reply threads
  • Replies
      • May 20, 2012 at 4:06 pm
      s Mom
      Participant

      Hi Marie,

      All the good doctors agree on the present course of treatment – stay on Zelboraf.  But…when pressed about the eventual resistance issue, their opinions changed.  One suggested MEK, one suggested chemo variations… With the aggressiveness of Jeff's cancer, we would have to move fast.  They all agreed on that.  But, it's good that we have lots of options.  The difficult thing is trying to figure out which is the best option and who our "quarterback" will be (those were the sports terms used by Hamid – my son is very much into football).  Dr. Hamid drew out a huge chart with all the possible options, and  Dr. Ribas was great, very knowledgeable about Zelboraf – glad Jeff got a chance to see him.  

      We used PAL services for Florida and Angel Flights for California – (Southwest vouchers).   We had to show need (Jeff hasn't been able to work consistently), and his doctor had to fill out some forms.  Try calling Amanda Ranieri at PALS or Dana Buchman at Angel Flights.  These two ladies were fantastic and will help you out if you qualify for their services.  We now have a special place in our hearts for Southwest Airlines – very nice people.

      How are you doing?  I hope you get a chance to meet with Dr. Ribas – he's a great doctor.  Let me know if you get any help with flights.  Take care and God Bless!!

      Bridgette (Jeff's Mom)

       

       

       

      • May 20, 2012 at 4:06 pm
      s Mom
      Participant

      Hi Marie,

      All the good doctors agree on the present course of treatment – stay on Zelboraf.  But…when pressed about the eventual resistance issue, their opinions changed.  One suggested MEK, one suggested chemo variations… With the aggressiveness of Jeff's cancer, we would have to move fast.  They all agreed on that.  But, it's good that we have lots of options.  The difficult thing is trying to figure out which is the best option and who our "quarterback" will be (those were the sports terms used by Hamid – my son is very much into football).  Dr. Hamid drew out a huge chart with all the possible options, and  Dr. Ribas was great, very knowledgeable about Zelboraf – glad Jeff got a chance to see him.  

      We used PAL services for Florida and Angel Flights for California – (Southwest vouchers).   We had to show need (Jeff hasn't been able to work consistently), and his doctor had to fill out some forms.  Try calling Amanda Ranieri at PALS or Dana Buchman at Angel Flights.  These two ladies were fantastic and will help you out if you qualify for their services.  We now have a special place in our hearts for Southwest Airlines – very nice people.

      How are you doing?  I hope you get a chance to meet with Dr. Ribas – he's a great doctor.  Let me know if you get any help with flights.  Take care and God Bless!!

      Bridgette (Jeff's Mom)

       

       

       

      • May 20, 2012 at 4:06 pm
      s Mom
      Participant

      Hi Marie,

      All the good doctors agree on the present course of treatment – stay on Zelboraf.  But…when pressed about the eventual resistance issue, their opinions changed.  One suggested MEK, one suggested chemo variations… With the aggressiveness of Jeff's cancer, we would have to move fast.  They all agreed on that.  But, it's good that we have lots of options.  The difficult thing is trying to figure out which is the best option and who our "quarterback" will be (those were the sports terms used by Hamid – my son is very much into football).  Dr. Hamid drew out a huge chart with all the possible options, and  Dr. Ribas was great, very knowledgeable about Zelboraf – glad Jeff got a chance to see him.  

      We used PAL services for Florida and Angel Flights for California – (Southwest vouchers).   We had to show need (Jeff hasn't been able to work consistently), and his doctor had to fill out some forms.  Try calling Amanda Ranieri at PALS or Dana Buchman at Angel Flights.  These two ladies were fantastic and will help you out if you qualify for their services.  We now have a special place in our hearts for Southwest Airlines – very nice people.

      How are you doing?  I hope you get a chance to meet with Dr. Ribas – he's a great doctor.  Let me know if you get any help with flights.  Take care and God Bless!!

      Bridgette (Jeff's Mom)

       

       

       

      • May 20, 2012 at 6:23 pm
      killmel
      Participant

      Thanks Marie, would you have the specific telephone number for these 2 service & people. Marie

      • May 20, 2012 at 6:23 pm
      killmel
      Participant

      Thanks Marie, would you have the specific telephone number for these 2 service & people. Marie

      • May 20, 2012 at 6:23 pm
      killmel
      Participant

      Thanks Marie, would you have the specific telephone number for these 2 service & people. Marie

      • May 20, 2012 at 9:05 pm
      LynnLuc
      Participant

      I have Dr Weber and I think he's great!. One thing with melanoma is we have to be just as aggressive as it is.  Hope all goes well!

      • May 20, 2012 at 9:05 pm
      LynnLuc
      Participant

      I have Dr Weber and I think he's great!. One thing with melanoma is we have to be just as aggressive as it is.  Hope all goes well!

      • May 20, 2012 at 9:05 pm
      LynnLuc
      Participant

      I have Dr Weber and I think he's great!. One thing with melanoma is we have to be just as aggressive as it is.  Hope all goes well!

Viewing 8 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics