Brain surgery went fine
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Brain surgery went fine

› Forums › General Melanoma Community › Brain surgery went fine

  • Post
    • March 14, 2012 at 9:25 pm
    ElaineLinn
    Participant
    Its been a while since I have been on here to update you all. But it has been a hard few weeks in the hospital. I finally got to go home on Monday. I decided to do a part of a clinical trial called Bendamustine , I had to have 3 IV infusions before the brain surgery , then after the last infusion I had to go directly to surgery.. So far so good very little sideeffectrs But still particially blind because of the tumor, but the dr. seems to think that my sight willl return, but if not I am ok with that as long as I am alive to raise my kids.

    Its been a while since I have been on here to update you all. But it has been a hard few weeks in the hospital. I finally got to go home on Monday. I decided to do a part of a clinical trial called Bendamustine , I had to have 3 IV infusions before the brain surgery , then after the last infusion I had to go directly to surgery.. So far so good very little sideeffectrs But still particially blind because of the tumor, but the dr. seems to think that my sight willl return, but if not I am ok with that as long as I am alive to raise my kids. They put my IPPI on hold untill after the radiation on the brain then I should be back to that. Lets pray that the 2 IPPI will cure my lung mets so I can work on this brain now . Thank you all for your thoughts and prayers. Also I am sorry for all the miss spellings but I cant see to well LOL

Viewing 11 reply threads
  • Replies
      • March 14, 2012 at 10:18 pm
      cltml
      Participant

      Home on Monday after brain surgey and posting on Wednesday.  That's not bad!  I think we can do with a few mispelled words in order to learn from your experience.  Thanks for taking the time to give us an update.  Congrats on the successful surgey and keep us up-to-date as best you can.

      cltml

      • March 14, 2012 at 10:18 pm
      cltml
      Participant

      Home on Monday after brain surgey and posting on Wednesday.  That's not bad!  I think we can do with a few mispelled words in order to learn from your experience.  Thanks for taking the time to give us an update.  Congrats on the successful surgey and keep us up-to-date as best you can.

      cltml

      • March 14, 2012 at 10:18 pm
      cltml
      Participant

      Home on Monday after brain surgey and posting on Wednesday.  That's not bad!  I think we can do with a few mispelled words in order to learn from your experience.  Thanks for taking the time to give us an update.  Congrats on the successful surgey and keep us up-to-date as best you can.

      cltml

      • March 15, 2012 at 12:22 am
      Maxximom
      Participant

      Elaine.. I am so glad that you are back home and that your brain surgery is over.It sounds like you are doing very well. I am sure that your sight will return soon. I wish I could make the type here bigger..but I did use Bold type. I can't use bad eyesight as a excuse for my bad spelling or typing..LOLI am sorry that we didn't meet up while you were here in Columbus.. but please let me know when you come again and if I can be of anyt help to you..I mean it!!!!I had to see Dr Kendra today as I have had really severe Diarrhea since my last Ippi last Thursday and for a few days just before.. I am on Prednisone now.. but I will start a seperate thread about this so I don't hijack your news.Just try and recover now and enjoy your family.

      Joan

      • March 15, 2012 at 12:22 am
      Maxximom
      Participant

      Elaine.. I am so glad that you are back home and that your brain surgery is over.It sounds like you are doing very well. I am sure that your sight will return soon. I wish I could make the type here bigger..but I did use Bold type. I can't use bad eyesight as a excuse for my bad spelling or typing..LOLI am sorry that we didn't meet up while you were here in Columbus.. but please let me know when you come again and if I can be of anyt help to you..I mean it!!!!I had to see Dr Kendra today as I have had really severe Diarrhea since my last Ippi last Thursday and for a few days just before.. I am on Prednisone now.. but I will start a seperate thread about this so I don't hijack your news.Just try and recover now and enjoy your family.

      Joan

      • March 15, 2012 at 12:22 am
      Maxximom
      Participant

      Elaine.. I am so glad that you are back home and that your brain surgery is over.It sounds like you are doing very well. I am sure that your sight will return soon. I wish I could make the type here bigger..but I did use Bold type. I can't use bad eyesight as a excuse for my bad spelling or typing..LOLI am sorry that we didn't meet up while you were here in Columbus.. but please let me know when you come again and if I can be of anyt help to you..I mean it!!!!I had to see Dr Kendra today as I have had really severe Diarrhea since my last Ippi last Thursday and for a few days just before.. I am on Prednisone now.. but I will start a seperate thread about this so I don't hijack your news.Just try and recover now and enjoy your family.

      Joan

      • March 15, 2012 at 1:16 am
      lhaley
      Participant

      I'm glad that you are home and hope that your vision comes back soon.  

      Can you explain what Bendamustine is with this trial?    I did the radiation first and then the surgery.  Mine was done this way because of the depth of tumor.

      Linda 

      • March 15, 2012 at 1:16 am
      lhaley
      Participant

      I'm glad that you are home and hope that your vision comes back soon.  

      Can you explain what Bendamustine is with this trial?    I did the radiation first and then the surgery.  Mine was done this way because of the depth of tumor.

      Linda 

      • March 15, 2012 at 1:16 am
      lhaley
      Participant

      I'm glad that you are home and hope that your vision comes back soon.  

      Can you explain what Bendamustine is with this trial?    I did the radiation first and then the surgery.  Mine was done this way because of the depth of tumor.

      Linda 

      • March 15, 2012 at 3:17 pm
      aldakota22
      Participant

      You have been through a lot recently.Great that the dr thinks your eyesight will return.Praying that it does and that  your condition only gets better and better.  Keep us updated  Al

        • March 16, 2012 at 1:22 pm
        NYKaren
        Participant
        I hope all goes well. You have a great attitude.
        Please keep us posted.
        All the best,
        karen
        • March 16, 2012 at 1:22 pm
        NYKaren
        Participant
        I hope all goes well. You have a great attitude.
        Please keep us posted.
        All the best,
        karen
        • March 16, 2012 at 1:22 pm
        NYKaren
        Participant
        I hope all goes well. You have a great attitude.
        Please keep us posted.
        All the best,
        karen
      • March 15, 2012 at 3:17 pm
      aldakota22
      Participant

      You have been through a lot recently.Great that the dr thinks your eyesight will return.Praying that it does and that  your condition only gets better and better.  Keep us updated  Al

      • March 15, 2012 at 3:17 pm
      aldakota22
      Participant

      You have been through a lot recently.Great that the dr thinks your eyesight will return.Praying that it does and that  your condition only gets better and better.  Keep us updated  Al

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