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Brain MRI Question

Forums General Melanoma Community Brain MRI Question

  • Post
    nancyg
    Participant

      Hi

      Is it protocol to have a Brain MRI after being diagnosed stage IV? In all cases? Or some?

      Thanks for any info you can offer!

      Nancy

    Viewing 11 reply threads
    • Replies
        Kim K
        Participant

          If symptomatic, absolutely.

          If initially now stage IV, usually an MRI is done to establish a baseline and to help qualify for clinical trials with brain met exculsions.  The best brain scan is done with IV contrast (gadolinium) and with as high a tesla machine you can get.  The greater the magnet strength, the finer detail / smaller tumors can be found.

          My scans are done on a 3T machine.  I have to remember to ask if they are going to scan me with that versus the 1.5T machine.  On one scan they forgot.

          After that, it depends on you and your doc.  Personally brain mets scare the %^#%@! outta me and I want to find them early and often should they arise.  By the time you have symptoms, they generally are numerous, growing fast, or are large / bleeding.  It depends on how aggressive your disease is as well.  Mine was indolent.  There isn't a set schedule for stage IV as the disease is unique in its behaviour for everyone.

          I have been NED for over 3.5 years and only do a brain MRI annually now.  If I were to have any suspicious symptoms though, it would trigger a scan.  This long out from IL-2 though, my oncs are getting comfortable I will continue to have a durable remission.  Me too.

          Best of luck,

          KK

          Kim K
          Participant

            If symptomatic, absolutely.

            If initially now stage IV, usually an MRI is done to establish a baseline and to help qualify for clinical trials with brain met exculsions.  The best brain scan is done with IV contrast (gadolinium) and with as high a tesla machine you can get.  The greater the magnet strength, the finer detail / smaller tumors can be found.

            My scans are done on a 3T machine.  I have to remember to ask if they are going to scan me with that versus the 1.5T machine.  On one scan they forgot.

            After that, it depends on you and your doc.  Personally brain mets scare the %^#%@! outta me and I want to find them early and often should they arise.  By the time you have symptoms, they generally are numerous, growing fast, or are large / bleeding.  It depends on how aggressive your disease is as well.  Mine was indolent.  There isn't a set schedule for stage IV as the disease is unique in its behaviour for everyone.

            I have been NED for over 3.5 years and only do a brain MRI annually now.  If I were to have any suspicious symptoms though, it would trigger a scan.  This long out from IL-2 though, my oncs are getting comfortable I will continue to have a durable remission.  Me too.

            Best of luck,

            KK

            Kim K
            Participant

              If symptomatic, absolutely.

              If initially now stage IV, usually an MRI is done to establish a baseline and to help qualify for clinical trials with brain met exculsions.  The best brain scan is done with IV contrast (gadolinium) and with as high a tesla machine you can get.  The greater the magnet strength, the finer detail / smaller tumors can be found.

              My scans are done on a 3T machine.  I have to remember to ask if they are going to scan me with that versus the 1.5T machine.  On one scan they forgot.

              After that, it depends on you and your doc.  Personally brain mets scare the %^#%@! outta me and I want to find them early and often should they arise.  By the time you have symptoms, they generally are numerous, growing fast, or are large / bleeding.  It depends on how aggressive your disease is as well.  Mine was indolent.  There isn't a set schedule for stage IV as the disease is unique in its behaviour for everyone.

              I have been NED for over 3.5 years and only do a brain MRI annually now.  If I were to have any suspicious symptoms though, it would trigger a scan.  This long out from IL-2 though, my oncs are getting comfortable I will continue to have a durable remission.  Me too.

              Best of luck,

              KK

              casagrayson
              Participant

                So is a 1.5T open MRI without contrast of *any* use in looking for micromets?

                  Kim K
                  Participant

                    Depends on the size.  You can google the technical info and radiology articles to learn about how small a met can be found with or without contrast as well as the strength of the machine.

                    Kim K
                    Participant

                      Depends on the size.  You can google the technical info and radiology articles to learn about how small a met can be found with or without contrast as well as the strength of the machine.

                      Kim K
                      Participant

                        Depends on the size.  You can google the technical info and radiology articles to learn about how small a met can be found with or without contrast as well as the strength of the machine.

                      casagrayson
                      Participant

                        So is a 1.5T open MRI without contrast of *any* use in looking for micromets?

                        casagrayson
                        Participant

                          So is a 1.5T open MRI without contrast of *any* use in looking for micromets?

                          Tina D
                          Participant

                            I think in most cases, one will be done to establish baseline, and as part of initial staging. I remember when I had my first distant met, and I was all relieved when my PET was clear… then the Dr said we would have to do a brain MRI to be certain. ugh!! It was clear, but sure caused some apprehension on my part. So, yes… I would say it is pretty normal protocol.

                            Tina

                            Tina D
                            Participant

                              I think in most cases, one will be done to establish baseline, and as part of initial staging. I remember when I had my first distant met, and I was all relieved when my PET was clear… then the Dr said we would have to do a brain MRI to be certain. ugh!! It was clear, but sure caused some apprehension on my part. So, yes… I would say it is pretty normal protocol.

                              Tina

                              Tina D
                              Participant

                                I think in most cases, one will be done to establish baseline, and as part of initial staging. I remember when I had my first distant met, and I was all relieved when my PET was clear… then the Dr said we would have to do a brain MRI to be certain. ugh!! It was clear, but sure caused some apprehension on my part. So, yes… I would say it is pretty normal protocol.

                                Tina

                                UrsulaZ
                                Participant

                                  hi Nancy —

                                  I had an MRI of my brain when I was diagnosed with stage IV — even though I had no neurological symptoms. (I then had another one four weeks later when I was entering a clinical trial, because it was an exclusion criteria…) 

                                  UrsulaZ
                                  Participant

                                    hi Nancy —

                                    I had an MRI of my brain when I was diagnosed with stage IV — even though I had no neurological symptoms. (I then had another one four weeks later when I was entering a clinical trial, because it was an exclusion criteria…) 

                                    UrsulaZ
                                    Participant

                                      hi Nancy —

                                      I had an MRI of my brain when I was diagnosed with stage IV — even though I had no neurological symptoms. (I then had another one four weeks later when I was entering a clinical trial, because it was an exclusion criteria…) 

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