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Brain Mets after 1 Year NED on ZEL
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Brain Mets after 1 Year NED on ZEL

› Forums › General Melanoma Community › Brain Mets after 1 Year NED on ZEL

  • Post
    • June 20, 2013 at 1:29 pm
    Snickers60
    Participant

      Hello – long time no talk…………..   

      I wanted to give you a quick update on Wayne  – especially for those on ZEL ! 

      Hello – long time no talk…………..   

      I wanted to give you a quick update on Wayne  – especially for those on ZEL ! 

      Last Thursday was a devastating day for Wayne and me.   We learned that while Zel is still working great on his body – (still clean one year later) – he had 2 brain mets and a meningioma (benign)    They will be doing Gamma Knife next Friday – the 28th at MDA !    To say that learning this news the day before Wayne's one year NED mark was hard is an understatement.   As many of you know, learning you have brain mets is a different and devastating kind of animal.  However, we are beginning to get our berrings, put our gloves back on, and FIGHT this beast like never before.  We head back next Thursday for the surgery.  

      We were planning on going out to dinner THAT night to celebrate the ONE YEAR NED MARK !    :-((((((   How sad is that…….yes, it was SAD !   I cried my eyeballs out for days instead. 

      They are talking about possibly trying him on Temodar, WITH the ZEL, after the Gamma Knife.

      All prayers would be much appreciated.

      Nancy (devoted wife of 3 X Warrior Wayne) 

      We are anxious to hear from Dick_K ?    Anyone heard from him lately ?   

    Viewing 8 reply threads
    • Replies
        • June 20, 2013 at 5:55 pm
        aldakota22
        Participant

          Nancy,  wipe those tears from your eyes.You have been through much worse news and came out OK. Keep your PMA for Fridays procedure.Wayne and you are  fighters.You have a great team of doctors behind you.Just another detour to navigate.You have my prayers plus those of so many more who follow your posts.Beat the Beast.       Al

          • June 20, 2013 at 5:55 pm
          aldakota22
          Participant

            Nancy,  wipe those tears from your eyes.You have been through much worse news and came out OK. Keep your PMA for Fridays procedure.Wayne and you are  fighters.You have a great team of doctors behind you.Just another detour to navigate.You have my prayers plus those of so many more who follow your posts.Beat the Beast.       Al

            • June 20, 2013 at 5:55 pm
            aldakota22
            Participant

              Nancy,  wipe those tears from your eyes.You have been through much worse news and came out OK. Keep your PMA for Fridays procedure.Wayne and you are  fighters.You have a great team of doctors behind you.Just another detour to navigate.You have my prayers plus those of so many more who follow your posts.Beat the Beast.       Al

              • June 22, 2013 at 8:24 am
              Owl
              Participant

                Dear Nancy,

                thank you for sharing your thaughts with us. I believe that this is a devastating moment for you both and I admire your strength to already be back, ready for fighting. Go on and kill this beast!

                My thaughts are with you both,

                Jenny

                • June 22, 2013 at 8:24 am
                Owl
                Participant

                  Dear Nancy,

                  thank you for sharing your thaughts with us. I believe that this is a devastating moment for you both and I admire your strength to already be back, ready for fighting. Go on and kill this beast!

                  My thaughts are with you both,

                  Jenny

                  • June 22, 2013 at 8:24 am
                  Owl
                  Participant

                    Dear Nancy,

                    thank you for sharing your thaughts with us. I believe that this is a devastating moment for you both and I admire your strength to already be back, ready for fighting. Go on and kill this beast!

                    My thaughts are with you both,

                    Jenny

                    • June 27, 2013 at 1:55 pm
                    Tina D
                    Participant

                      Nancy,

                      I hate to hear this for you guys. Praying for you as he undergoes this gamma knife. It is ok to cry your eyes out, I would have, too… but I am sure by now you are back in the fight, and praying every day for the best outcome. Take this battle one day at a time, one step at a time.Praying with you!

                      Tina

                      • June 27, 2013 at 1:55 pm
                      Tina D
                      Participant

                        Nancy,

                        I hate to hear this for you guys. Praying for you as he undergoes this gamma knife. It is ok to cry your eyes out, I would have, too… but I am sure by now you are back in the fight, and praying every day for the best outcome. Take this battle one day at a time, one step at a time.Praying with you!

                        Tina

                        • June 27, 2013 at 1:55 pm
                        Tina D
                        Participant

                          Nancy,

                          I hate to hear this for you guys. Praying for you as he undergoes this gamma knife. It is ok to cry your eyes out, I would have, too… but I am sure by now you are back in the fight, and praying every day for the best outcome. Take this battle one day at a time, one step at a time.Praying with you!

                          Tina

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