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Brain cancer proressing
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Brain cancer proressing

› Forums › General Melanoma Community › Brain cancer proressing

  • Post
    • May 27, 2012 at 7:27 am
    ElaineLinn
    Participant

      I have not been on line for quit a while because of spending more time in the hospital. As you know I have been batting Melanoma for quit a while now. It has progress to the brain and dr. are afraid that it has move to the spinal fluid. If it is in the spin there is no cure and the only way to tell is if I let them do a spinal tap. I refused the spinal tap because the dr. are 99.9 percent sure that it has so that pretty well tells me that it is and I dont want poked and probed any more.

      I have not been on line for quit a while because of spending more time in the hospital. As you know I have been batting Melanoma for quit a while now. It has progress to the brain and dr. are afraid that it has move to the spinal fluid. If it is in the spin there is no cure and the only way to tell is if I let them do a spinal tap. I refused the spinal tap because the dr. are 99.9 percent sure that it has so that pretty well tells me that it is and I dont want poked and probed any more. I want to enjoy what time I have left with my family and friends , so while I am still able that is what I am goin to do. But I will not give up the battle I am just resting for a while. The dr. told me this week that if it is the cancer in my spin I will know soon and will have around 3 to 12 months . So I am dong chemo and radiation this week to try and kill the 3 new tumors that I have and will have new scans  in a f ew months. But I feel better now then I have in a long time. I am still able to do things and able to get around.  I love and enjoy life but from here on out I am going to enjoy it along with my faimly. I want to say I wish you all the best in your fight and please dont ever give up the fight , maybe on day soon they will find a cure and then ther will be no more pain and suffering from this diese. God bless you and and remember he love us all

    Viewing 29 reply threads
    • Replies
        • May 27, 2012 at 11:18 am
        aldakota22
        Participant

          God bless you .May you enjoy your time with family on the long end of the time line.Will be in my prayers. you are one very brave warrior.   Al

          • May 27, 2012 at 11:18 am
          aldakota22
          Participant

            God bless you .May you enjoy your time with family on the long end of the time line.Will be in my prayers. you are one very brave warrior.   Al

            • May 27, 2012 at 11:18 am
            aldakota22
            Participant

              God bless you .May you enjoy your time with family on the long end of the time line.Will be in my prayers. you are one very brave warrior.   Al

              • May 27, 2012 at 11:23 am
              deardad
              Participant

                I'm glad you are feeling better firstly, but I'm sorry to hear that things are progressing.

                Enjoy your precious family time and I hope that you might be able to remain strong and courageous through this battle. My father is declining with brain mets and it's been a very stressful and sad time for our very close knit family. We are spending all the time we can with him and trying to remain upbeat and positive inspite of what's lays ahead.

                You are in my prayers.

                Nahmi from Melbourne

                • May 27, 2012 at 11:23 am
                deardad
                Participant

                  I'm glad you are feeling better firstly, but I'm sorry to hear that things are progressing.

                  Enjoy your precious family time and I hope that you might be able to remain strong and courageous through this battle. My father is declining with brain mets and it's been a very stressful and sad time for our very close knit family. We are spending all the time we can with him and trying to remain upbeat and positive inspite of what's lays ahead.

                  You are in my prayers.

                  Nahmi from Melbourne

                  • May 27, 2012 at 11:23 am
                  deardad
                  Participant

                    I'm glad you are feeling better firstly, but I'm sorry to hear that things are progressing.

                    Enjoy your precious family time and I hope that you might be able to remain strong and courageous through this battle. My father is declining with brain mets and it's been a very stressful and sad time for our very close knit family. We are spending all the time we can with him and trying to remain upbeat and positive inspite of what's lays ahead.

                    You are in my prayers.

                    Nahmi from Melbourne

                    • May 27, 2012 at 12:58 pm
                    SStamps
                    Participant
                      God bless you and your family. Did your Dr say you have leptomeningeal? My husband developed leptomeningeal when a spinal tumor was found. Dr. Papadopolous at MDAnderson is his doctor he does a treatment for leptomeningeal it is a treatment he will have to do for the rest of his life. He has a patient that has been doing this treatment for 17 years! There aren’t many doctors that do this treatment he is the only one at MDAnerson that does the treatment.
                      My husband started this treatment on 12-14-11 and his spine looks good on MRI. If you have any questions you can email me anytime.
                      We will be praying for you and your family
                      Samantha
                      • May 27, 2012 at 12:58 pm
                      SStamps
                      Participant
                        God bless you and your family. Did your Dr say you have leptomeningeal? My husband developed leptomeningeal when a spinal tumor was found. Dr. Papadopolous at MDAnderson is his doctor he does a treatment for leptomeningeal it is a treatment he will have to do for the rest of his life. He has a patient that has been doing this treatment for 17 years! There aren’t many doctors that do this treatment he is the only one at MDAnerson that does the treatment.
                        My husband started this treatment on 12-14-11 and his spine looks good on MRI. If you have any questions you can email me anytime.
                        We will be praying for you and your family
                        Samantha
                        • May 27, 2012 at 12:58 pm
                        SStamps
                        Participant
                          God bless you and your family. Did your Dr say you have leptomeningeal? My husband developed leptomeningeal when a spinal tumor was found. Dr. Papadopolous at MDAnderson is his doctor he does a treatment for leptomeningeal it is a treatment he will have to do for the rest of his life. He has a patient that has been doing this treatment for 17 years! There aren’t many doctors that do this treatment he is the only one at MDAnerson that does the treatment.
                          My husband started this treatment on 12-14-11 and his spine looks good on MRI. If you have any questions you can email me anytime.
                          We will be praying for you and your family
                          Samantha
                          • May 27, 2012 at 1:20 pm
                          JC
                          Participant

                            I am sorry you are going through this.  I read your profile and see your initial diagnosis was Stage I, < 1mm.  This is the thing that really gets me always – people, doctors, etc. . . want to tell the Stage I patients you're "good to go" and you won't have to deal with this melanoma again after surgery.  Clearly, that is not the case.  So, the "watch" "wait" "do nothingness" that Stage I patients are told – seems just rolling the dice and hoping you get lucky.  Is that really where medicine is still at this point?

                            • May 27, 2012 at 1:20 pm
                            JC
                            Participant

                              I am sorry you are going through this.  I read your profile and see your initial diagnosis was Stage I, < 1mm.  This is the thing that really gets me always – people, doctors, etc. . . want to tell the Stage I patients you're "good to go" and you won't have to deal with this melanoma again after surgery.  Clearly, that is not the case.  So, the "watch" "wait" "do nothingness" that Stage I patients are told – seems just rolling the dice and hoping you get lucky.  Is that really where medicine is still at this point?

                              • May 27, 2012 at 1:20 pm
                              JC
                              Participant

                                I am sorry you are going through this.  I read your profile and see your initial diagnosis was Stage I, < 1mm.  This is the thing that really gets me always – people, doctors, etc. . . want to tell the Stage I patients you're "good to go" and you won't have to deal with this melanoma again after surgery.  Clearly, that is not the case.  So, the "watch" "wait" "do nothingness" that Stage I patients are told – seems just rolling the dice and hoping you get lucky.  Is that really where medicine is still at this point?

                                • May 27, 2012 at 2:12 pm
                                CarolA
                                Participant

                                  You are brave and loving.   Your message is inspirational on many levels.   I am angry for you of for your new diagnosis, but happy that your outlook has you at this place that you are sharing your message of living  life with us.   I will go foward today with a much more positive attitude and outlook to life, family and incidental issues that can be so magnified, so stupidly.

                                  God bless you and yours.    I will think of you and send up a prayer.    As you know, we are all individuals in this battle.   I hope your individuality in your fight gives you a lot of good days, feeling good, and enjoying your family. 

                                  CarolA 

                                  • May 27, 2012 at 2:12 pm
                                  CarolA
                                  Participant

                                    You are brave and loving.   Your message is inspirational on many levels.   I am angry for you of for your new diagnosis, but happy that your outlook has you at this place that you are sharing your message of living  life with us.   I will go foward today with a much more positive attitude and outlook to life, family and incidental issues that can be so magnified, so stupidly.

                                    God bless you and yours.    I will think of you and send up a prayer.    As you know, we are all individuals in this battle.   I hope your individuality in your fight gives you a lot of good days, feeling good, and enjoying your family. 

                                    CarolA 

                                    • May 27, 2012 at 2:12 pm
                                    CarolA
                                    Participant

                                      You are brave and loving.   Your message is inspirational on many levels.   I am angry for you of for your new diagnosis, but happy that your outlook has you at this place that you are sharing your message of living  life with us.   I will go foward today with a much more positive attitude and outlook to life, family and incidental issues that can be so magnified, so stupidly.

                                      God bless you and yours.    I will think of you and send up a prayer.    As you know, we are all individuals in this battle.   I hope your individuality in your fight gives you a lot of good days, feeling good, and enjoying your family. 

                                      CarolA 

                                      • May 28, 2012 at 4:04 am
                                      Ali
                                      Participant

                                        Good luck to you!  God bless.

                                        • May 28, 2012 at 4:04 am
                                        Ali
                                        Participant

                                          Good luck to you!  God bless.

                                          • May 28, 2012 at 4:04 am
                                          Ali
                                          Participant

                                            Good luck to you!  God bless.

                                            • May 28, 2012 at 11:49 am
                                            Fen
                                            Participant

                                              God bless you, Elaine. I admire your courage and attitude.  Thank you for your thoughts – I know they'll help many of us get our priorities right.   Fen

                                              • May 28, 2012 at 11:49 am
                                              Fen
                                              Participant

                                                God bless you, Elaine. I admire your courage and attitude.  Thank you for your thoughts – I know they'll help many of us get our priorities right.   Fen

                                                • May 28, 2012 at 11:49 am
                                                Fen
                                                Participant

                                                  God bless you, Elaine. I admire your courage and attitude.  Thank you for your thoughts – I know they'll help many of us get our priorities right.   Fen

                                                  • May 29, 2012 at 2:48 am
                                                  KRob
                                                  Participant

                                                    May God continue to grant you the courage, strength, and wisdom that you so obviously possess.

                                                    Hold tight to your faith~ it will give you peace.

                                                    • May 29, 2012 at 2:48 am
                                                    KRob
                                                    Participant

                                                      May God continue to grant you the courage, strength, and wisdom that you so obviously possess.

                                                      Hold tight to your faith~ it will give you peace.

                                                        • May 29, 2012 at 3:55 am
                                                        NYKaren
                                                        Participant

                                                          Thank you for taking the time to share with us…you are one strong lady.

                                                          You are in my prayers,

                                                          karen

                                                          • May 29, 2012 at 3:55 am
                                                          NYKaren
                                                          Participant

                                                            Thank you for taking the time to share with us…you are one strong lady.

                                                            You are in my prayers,

                                                            karen

                                                            • May 29, 2012 at 3:55 am
                                                            NYKaren
                                                            Participant

                                                              Thank you for taking the time to share with us…you are one strong lady.

                                                              You are in my prayers,

                                                              karen

                                                            • May 29, 2012 at 2:48 am
                                                            KRob
                                                            Participant

                                                              May God continue to grant you the courage, strength, and wisdom that you so obviously possess.

                                                              Hold tight to your faith~ it will give you peace.

                                                              • May 30, 2012 at 1:48 am
                                                              s Mom
                                                              Participant

                                                                Sorry to hear of this – you are in my thoughts and prayers.

                                                                Jeff's Mom

                                                                • May 30, 2012 at 1:48 am
                                                                s Mom
                                                                Participant

                                                                  Sorry to hear of this – you are in my thoughts and prayers.

                                                                  Jeff's Mom

                                                                  • May 30, 2012 at 1:48 am
                                                                  s Mom
                                                                  Participant

                                                                    Sorry to hear of this – you are in my thoughts and prayers.

                                                                    Jeff's Mom

                                                                    • May 30, 2012 at 3:14 pm
                                                                    acortes
                                                                    Participant

                                                                      You are not alone! My sister is battling with the same and they are giving her weeks. Unfortunately her spine is swollen and the brain tumors have taken her ability to stand up. Do not give up! No matter what you are told, know that faith works wonders and that you are not alone. My prayers are with you and your family!

                                                                      Ana

                                                                      • May 30, 2012 at 3:14 pm
                                                                      acortes
                                                                      Participant

                                                                        You are not alone! My sister is battling with the same and they are giving her weeks. Unfortunately her spine is swollen and the brain tumors have taken her ability to stand up. Do not give up! No matter what you are told, know that faith works wonders and that you are not alone. My prayers are with you and your family!

                                                                        Ana

                                                                        • May 30, 2012 at 3:14 pm
                                                                        acortes
                                                                        Participant

                                                                          You are not alone! My sister is battling with the same and they are giving her weeks. Unfortunately her spine is swollen and the brain tumors have taken her ability to stand up. Do not give up! No matter what you are told, know that faith works wonders and that you are not alone. My prayers are with you and your family!

                                                                          Ana

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