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BRAF/MEK Trial Scan Results – Disappointing

Forums General Melanoma Community BRAF/MEK Trial Scan Results – Disappointing

  • Post
    Eileen L
    Participant

    Just got my scan results from this past Friday, after being on the BRAF/MEK Roche trial (Zelboraf and a MEK inhibitor) for 12 weeks. The good news: The adrenal gland tumor shrank a bit more and the nodule in the lingular area of my lung is stable, both are basically non-reactive. The bad news, there is a new small lung nodule in my right upper lobe, just 8 mm.  Although non-reactive on the PET, apparantly mets this small frequently don't light up on the PET. Awaiting call form my doctor to discuss.

    Just got my scan results from this past Friday, after being on the BRAF/MEK Roche trial (Zelboraf and a MEK inhibitor) for 12 weeks. The good news: The adrenal gland tumor shrank a bit more and the nodule in the lingular area of my lung is stable, both are basically non-reactive. The bad news, there is a new small lung nodule in my right upper lobe, just 8 mm.  Although non-reactive on the PET, apparantly mets this small frequently don't light up on the PET. Awaiting call form my doctor to discuss. I know that there are frequently non-specific lung nodules that turn out not to be mets, but I am bummed out!!!!!! Will post again when I know more.

    Eileen L

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  • Replies
      natasha
      Participant

      Hi Eileen !

      May I ask you what Breslow did you have in your   diagnosys?

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        Eileen L
        Participant

        My Stage I diagnosis was over 11 years ago. Breslow thickness was 0.53, so fairly shallow with no ulceration.

        Eileen L

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        JC
        Participant

        I'll bet they all said, "Don't worry, this is low risk."  I hear that all the time, but look at the reality of your case.  It's not "don't worry, this is thin, low risk."  It was something to worry about, it turned out not to be low risk even though it was thin.

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        natasha
        Participant

          We can worry as much as we like ,but would it help all us with ''low risk'' tumors??

        It would not help .There is no treatment to prevent spreading even in 10 years time..

        So if we were diagnosed ,we can worry or not – it does not depend on us what will happen in future and it is nothing we can do about it now.

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        natasha
        Participant

          We can worry as much as we like ,but would it help all us with ''low risk'' tumors??

        It would not help .There is no treatment to prevent spreading even in 10 years time..

        So if we were diagnosed ,we can worry or not – it does not depend on us what will happen in future and it is nothing we can do about it now.

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        natasha
        Participant

          We can worry as much as we like ,but would it help all us with ''low risk'' tumors??

        It would not help .There is no treatment to prevent spreading even in 10 years time..

        So if we were diagnosed ,we can worry or not – it does not depend on us what will happen in future and it is nothing we can do about it now.

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        JC
        Participant

        I'll bet they all said, "Don't worry, this is low risk."  I hear that all the time, but look at the reality of your case.  It's not "don't worry, this is thin, low risk."  It was something to worry about, it turned out not to be low risk even though it was thin.

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        JC
        Participant

        I'll bet they all said, "Don't worry, this is low risk."  I hear that all the time, but look at the reality of your case.  It's not "don't worry, this is thin, low risk."  It was something to worry about, it turned out not to be low risk even though it was thin.

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        Eileen L
        Participant

        My Stage I diagnosis was over 11 years ago. Breslow thickness was 0.53, so fairly shallow with no ulceration.

        Eileen L

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        Eileen L
        Participant

        My Stage I diagnosis was over 11 years ago. Breslow thickness was 0.53, so fairly shallow with no ulceration.

        Eileen L

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      natasha
      Participant

      Hi Eileen !

      May I ask you what Breslow did you have in your   diagnosys?

      Loading spinner
      natasha
      Participant

      Hi Eileen !

      May I ask you what Breslow did you have in your   diagnosys?

      Loading spinner
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