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Does anyone on the forum have the BRAF G469A mutation? If so, can you kindly share who your oncologist is? I’d like my mom to get a 2nd opinion for treatment of her Stage 4 melanoma, but I would prefer it to be a specialist with experience with this rare mutation. We’re having significant issues getting insurance to cover targeted therapy because FDA approvals usually don’t include G469A. And my mom has not had much success with immunotherapy in the past. I’m curious about alternate chemo-type treatments such as Abraxane. She started taking Zelboraf yesterday, but I’m concerned that’s not enough. And insurance won’t approve Cotellic, Braftovi, or Mektovi. Thank you so much to anyone that has any experience with this!
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