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Biopsy Results

Forums General Melanoma Community Biopsy Results

  • Post
    MattF
    Participant
    So biopsy of lump on my right side of neck
    about half an inch below my primary MM
    WLE with clear SNB and marginsa Stage II
    from Sept 2012 are in.

    UCLA FNA confirmed Metastatic Melanoma
    in the Salivary Gland on right side.

    I meet with the Oncologist (Dr Bartosz
    Chmielowski) tomorrow. I assume this is
    moves me to stage III as it is not a “distant”
    site. I expect PET, parotidectomy (sp),
    possible neck dissection or lymphextomy (sp)
    and probably some treatment.

    Anyone with any info please feel free to
    pass it on.

    Matt

    So biopsy of lump on my right side of neck
    about half an inch below my primary MM
    WLE with clear SNB and marginsa Stage II
    from Sept 2012 are in.

    UCLA FNA confirmed Metastatic Melanoma
    in the Salivary Gland on right side.

    I meet with the Oncologist (Dr Bartosz
    Chmielowski) tomorrow. I assume this is
    moves me to stage III as it is not a “distant”
    site. I expect PET, parotidectomy (sp),
    possible neck dissection or lymphextomy (sp)
    and probably some treatment.

    Anyone with any info please feel free to
    pass it on.

    Matt

Viewing 7 reply threads
  • Replies
      ecc26
      Participant

      So sorry that it turned out to be melanoma. I read your other post (didn't have anything useful to add, so I didn't comment) and was really hoping for salivary cyst or blocked gland. 

      Not sure if they'll classify it as local/in transit met (stage III) or whether since it's in an organ (salivary gland) vs lymph node or subQ they'll call it a distant met (stage IV). Either way, you're probably right- you're in for some imaging (either a PET or a CT, maybe a PET since it's on your head). With any luck this is the only met you have and surgery will be just the thing. They may offer to follow up with something like Ipilimumab  or suggest looking into clinical trials (for stage III) just to be safe. What surgery and the extent of surgery will depend on what they see on the scans, which they'll need for surgical planning as well as to search the rest of your body for other mets. 

      Wishing you all the best and keeping my fingers crossed for you.

      -Eva

      ecc26
      Participant

      So sorry that it turned out to be melanoma. I read your other post (didn't have anything useful to add, so I didn't comment) and was really hoping for salivary cyst or blocked gland. 

      Not sure if they'll classify it as local/in transit met (stage III) or whether since it's in an organ (salivary gland) vs lymph node or subQ they'll call it a distant met (stage IV). Either way, you're probably right- you're in for some imaging (either a PET or a CT, maybe a PET since it's on your head). With any luck this is the only met you have and surgery will be just the thing. They may offer to follow up with something like Ipilimumab  or suggest looking into clinical trials (for stage III) just to be safe. What surgery and the extent of surgery will depend on what they see on the scans, which they'll need for surgical planning as well as to search the rest of your body for other mets. 

      Wishing you all the best and keeping my fingers crossed for you.

      -Eva

      ecc26
      Participant

      So sorry that it turned out to be melanoma. I read your other post (didn't have anything useful to add, so I didn't comment) and was really hoping for salivary cyst or blocked gland. 

      Not sure if they'll classify it as local/in transit met (stage III) or whether since it's in an organ (salivary gland) vs lymph node or subQ they'll call it a distant met (stage IV). Either way, you're probably right- you're in for some imaging (either a PET or a CT, maybe a PET since it's on your head). With any luck this is the only met you have and surgery will be just the thing. They may offer to follow up with something like Ipilimumab  or suggest looking into clinical trials (for stage III) just to be safe. What surgery and the extent of surgery will depend on what they see on the scans, which they'll need for surgical planning as well as to search the rest of your body for other mets. 

      Wishing you all the best and keeping my fingers crossed for you.

      -Eva

      kathycmc
      Participant

      A CT scan will give them more definitive information about the salivary gland than a PET scan but they may do a PET as well to rule out anything else.  In my daughter's case they did only the CT.  If you are staged at III there are a few treatment options such as Interferon alone, Biochemotherapy, wait and see or a drug trial if you qualify.  Be sure to ask your surgeon about any facial nerves that may be affected during surgery.  They had to move a branch of the facial nerve during my daughters surgery and she had weakness of her lower lip which, minimally, interfered with talking and smiling but is now getting better (7 months later).

      kathycmc
      Participant

      A CT scan will give them more definitive information about the salivary gland than a PET scan but they may do a PET as well to rule out anything else.  In my daughter's case they did only the CT.  If you are staged at III there are a few treatment options such as Interferon alone, Biochemotherapy, wait and see or a drug trial if you qualify.  Be sure to ask your surgeon about any facial nerves that may be affected during surgery.  They had to move a branch of the facial nerve during my daughters surgery and she had weakness of her lower lip which, minimally, interfered with talking and smiling but is now getting better (7 months later).

      kathycmc
      Participant

      A CT scan will give them more definitive information about the salivary gland than a PET scan but they may do a PET as well to rule out anything else.  In my daughter's case they did only the CT.  If you are staged at III there are a few treatment options such as Interferon alone, Biochemotherapy, wait and see or a drug trial if you qualify.  Be sure to ask your surgeon about any facial nerves that may be affected during surgery.  They had to move a branch of the facial nerve during my daughters surgery and she had weakness of her lower lip which, minimally, interfered with talking and smiling but is now getting better (7 months later).

      MattF
      Participant

      Thank you

      yes i will be interested to see what they stage it as and what they use to stage it.

      i actually will push for PET…to me a salivary gland is enough to want to check entire body for spread.

      and i would hope they offer follow up…or even demand it. i'm not sure I would feel comfortable with just a cut it out approach.

      MattF
      Participant

      Thank you

      yeah this is about what i expect….my only issue would be the wait and see approach…that i would not agree with…I am less than 1 year out from my primary treatment of WLE and SNB then "we got it wait and see if anything else is wrong" I would hope this time I can take greater steps.

      MattF
      Participant

      Thank you

      yes i will be interested to see what they stage it as and what they use to stage it.

      i actually will push for PET…to me a salivary gland is enough to want to check entire body for spread.

      and i would hope they offer follow up…or even demand it. i'm not sure I would feel comfortable with just a cut it out approach.

      MattF
      Participant

      Thank you

      yes i will be interested to see what they stage it as and what they use to stage it.

      i actually will push for PET…to me a salivary gland is enough to want to check entire body for spread.

      and i would hope they offer follow up…or even demand it. i'm not sure I would feel comfortable with just a cut it out approach.

      MattF
      Participant

      Thank you

      yeah this is about what i expect….my only issue would be the wait and see approach…that i would not agree with…I am less than 1 year out from my primary treatment of WLE and SNB then "we got it wait and see if anything else is wrong" I would hope this time I can take greater steps.

      MattF
      Participant

      Thank you

      yeah this is about what i expect….my only issue would be the wait and see approach…that i would not agree with…I am less than 1 year out from my primary treatment of WLE and SNB then "we got it wait and see if anything else is wrong" I would hope this time I can take greater steps.

Viewing 7 reply threads
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