Best melanoma specialist east coast
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Best melanoma specialist east coast

› Forums › General Melanoma Community › Best melanoma specialist east coast

  • Post
    • June 16, 2016 at 9:07 pm
    Ace226
    Participant

    My father has metastatic melanoma. Originally diagnosed in 1982 but relapsed in 2014. He has had several brain tumors (treated with gamma knife) and he has been on yervoy (still had spread) keytruda (worked really well but caused colitis) and now Opdivo. The opdivo has caused less side effects but now there is concern for 2 more brain tumors and melanoma in his cerebral spinal fluid. He had been seen this whole time at UVA but I want him to get a second opinion. Can anyone please recommend melanoma specialists for advanced melanoma? Preferably on the east coast but would be willing to travel. 

    Also, if any body had had experience with melanoma in the CSF and tell me about it if appreciate it. 

    Thank you!!

Viewing 14 reply threads
  • Replies
      • June 16, 2016 at 10:03 pm
      SABKLYN
      Participant

      Jedd Wolchock at Memorial Sloan Kettering is my oncologist.  I have been very pleased with th care I receive  and the level of competence and expertise.

      • June 16, 2016 at 10:03 pm
      SABKLYN
      Participant

      Jedd Wolchock at Memorial Sloan Kettering is my oncologist.  I have been very pleased with th care I receive  and the level of competence and expertise.

      • June 16, 2016 at 10:03 pm
      SABKLYN
      Participant

      Jedd Wolchock at Memorial Sloan Kettering is my oncologist.  I have been very pleased with th care I receive  and the level of competence and expertise.

      • June 16, 2016 at 10:28 pm
      Bubbles
      Participant

      Wolchok certainly has a great reputation.  You might also consider:

      Jeffrey Weber at NYU

      Mario Sznol at Yale

      Suzanne Topalian at John Hopkins

      Stephen Hodi at Dana Farber Cancer Institute/Harvard

      Hope that helps.  Celeste

      • June 16, 2016 at 10:28 pm
      Bubbles
      Participant

      Wolchok certainly has a great reputation.  You might also consider:

      Jeffrey Weber at NYU

      Mario Sznol at Yale

      Suzanne Topalian at John Hopkins

      Stephen Hodi at Dana Farber Cancer Institute/Harvard

      Hope that helps.  Celeste

        • June 16, 2016 at 11:38 pm
        BrianP
        Participant

        Another option at Hopkins is Evan Lipson.  I've heard good things about him.

        • June 16, 2016 at 11:38 pm
        BrianP
        Participant

        Another option at Hopkins is Evan Lipson.  I've heard good things about him.

        • June 16, 2016 at 11:38 pm
        BrianP
        Participant

        Another option at Hopkins is Evan Lipson.  I've heard good things about him.

        • June 17, 2016 at 12:20 pm
        Linny
        Participant

        Hi Celeste,

        I was told by one of the nurses at Hopkins that Suzanne Topalian no longer sees patients. Her focus apparently is on research. I've been going there for 5.5 years and have never even set eyes on her. Evan Lipson and William Sharfman see patients. Both are great!

        • June 17, 2016 at 12:20 pm
        Linny
        Participant

        Hi Celeste,

        I was told by one of the nurses at Hopkins that Suzanne Topalian no longer sees patients. Her focus apparently is on research. I've been going there for 5.5 years and have never even set eyes on her. Evan Lipson and William Sharfman see patients. Both are great!

        • June 17, 2016 at 12:20 pm
        Linny
        Participant

        Hi Celeste,

        I was told by one of the nurses at Hopkins that Suzanne Topalian no longer sees patients. Her focus apparently is on research. I've been going there for 5.5 years and have never even set eyes on her. Evan Lipson and William Sharfman see patients. Both are great!

        • June 17, 2016 at 2:11 pm
        Bubbles
        Participant

        Good to know. Thanks, Linny!

        • June 17, 2016 at 2:11 pm
        Bubbles
        Participant

        Good to know. Thanks, Linny!

        • June 17, 2016 at 2:11 pm
        Bubbles
        Participant

        Good to know. Thanks, Linny!

        • June 17, 2016 at 7:02 pm
        Ace226
        Participant

        Thank you for everyone's reponse! 

        When I call these center's, I understand I state that we want a second opinion and then they will request the medical record's.  Is this correct?  Will they then just put him with whoever is available or can I request a specific doctor?

         

        • June 17, 2016 at 7:02 pm
        Ace226
        Participant

        Thank you for everyone's reponse! 

        When I call these center's, I understand I state that we want a second opinion and then they will request the medical record's.  Is this correct?  Will they then just put him with whoever is available or can I request a specific doctor?

         

        • June 17, 2016 at 7:02 pm
        Ace226
        Participant

        Thank you for everyone's reponse! 

        When I call these center's, I understand I state that we want a second opinion and then they will request the medical record's.  Is this correct?  Will they then just put him with whoever is available or can I request a specific doctor?

         

      • June 16, 2016 at 10:28 pm
      Bubbles
      Participant

      Wolchok certainly has a great reputation.  You might also consider:

      Jeffrey Weber at NYU

      Mario Sznol at Yale

      Suzanne Topalian at John Hopkins

      Stephen Hodi at Dana Farber Cancer Institute/Harvard

      Hope that helps.  Celeste

      • June 16, 2016 at 11:08 pm
      JC
      Participant

      Sorry you're dealing with this.  1982 to 2014?? that's just nuts.  i didn't know any kind of cancer could come back 30+ years later.  that shows once you have it, you always have it somewhere in your body, just lying dormant, always possible to strike again. very mentally hard to live with that

      • June 16, 2016 at 11:08 pm
      JC
      Participant

      Sorry you're dealing with this.  1982 to 2014?? that's just nuts.  i didn't know any kind of cancer could come back 30+ years later.  that shows once you have it, you always have it somewhere in your body, just lying dormant, always possible to strike again. very mentally hard to live with that

      • June 16, 2016 at 11:08 pm
      JC
      Participant

      Sorry you're dealing with this.  1982 to 2014?? that's just nuts.  i didn't know any kind of cancer could come back 30+ years later.  that shows once you have it, you always have it somewhere in your body, just lying dormant, always possible to strike again. very mentally hard to live with that

      • June 18, 2016 at 2:07 am
      WithinMySkin
      Participant

      I have been seeing Dr. Flaherty at Mass General in Boston. He's an amazing doc with a fantastic team. He's a little difficult to schedule, though, since he's also into research, but worth it. I can also personally speak for the neuro team there – it's one of the top 10 neurosurgical departments in the country. 

      I wish you and your father all the best!

      Lauren

      • June 18, 2016 at 2:07 am
      WithinMySkin
      Participant

      I have been seeing Dr. Flaherty at Mass General in Boston. He's an amazing doc with a fantastic team. He's a little difficult to schedule, though, since he's also into research, but worth it. I can also personally speak for the neuro team there – it's one of the top 10 neurosurgical departments in the country. 

      I wish you and your father all the best!

      Lauren

      • June 18, 2016 at 2:07 am
      WithinMySkin
      Participant

      I have been seeing Dr. Flaherty at Mass General in Boston. He's an amazing doc with a fantastic team. He's a little difficult to schedule, though, since he's also into research, but worth it. I can also personally speak for the neuro team there – it's one of the top 10 neurosurgical departments in the country. 

      I wish you and your father all the best!

      Lauren

      • June 19, 2016 at 1:45 pm
      Richard_K
      Participant

      I have been with Dr. Anna Pavlick at NYU since February 2010. In my opinion, can't get better. Very high marks for her entire staff also.

      • June 19, 2016 at 1:45 pm
      Richard_K
      Participant

      I have been with Dr. Anna Pavlick at NYU since February 2010. In my opinion, can't get better. Very high marks for her entire staff also.

      • June 19, 2016 at 1:45 pm
      Richard_K
      Participant

      I have been with Dr. Anna Pavlick at NYU since February 2010. In my opinion, can't get better. Very high marks for her entire staff also.

Viewing 14 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics