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benp how are you doing?

Forums General Melanoma Community benp how are you doing?

  • Post
    deardad
    Participant

      Ben just wondering how your scans went after GK.

      Hoping all is good.

      Nahmi from Melbourne

      Ben just wondering how your scans went after GK.

      Hoping all is good.

      Nahmi from Melbourne

    Viewing 2 reply threads
    • Replies
        benp
        Participant

          Hi Nahmi, 

          Thanks for asking! Post Gamma Knife MRI was good – pretty much all 10 the same size (it does take several months for a reaction to become apparent). CT did however show 2 body mets – both 1cm – in a lung and above a kidney.  How did your dad go with the GK?

          I've actually been really busy; for quite some time I've been planning to take part in a TIL ACT trial, and I am currently in the UK about to start the full process tomorrow. I had a subq tumour excised here around a month ago, and the TILs grew well, so I'm hoping that I do get a good response. Anyway, I start the chemo lymphodepletion tomorrow, so it's all happening now. I have been removed from the Dabrafenib brain met trial, so the UK will be my home for the next couple of months.

          Really hope both you and your Dad are OK.

          Ben.

          benp
          Participant

            Hi Nahmi, 

            Thanks for asking! Post Gamma Knife MRI was good – pretty much all 10 the same size (it does take several months for a reaction to become apparent). CT did however show 2 body mets – both 1cm – in a lung and above a kidney.  How did your dad go with the GK?

            I've actually been really busy; for quite some time I've been planning to take part in a TIL ACT trial, and I am currently in the UK about to start the full process tomorrow. I had a subq tumour excised here around a month ago, and the TILs grew well, so I'm hoping that I do get a good response. Anyway, I start the chemo lymphodepletion tomorrow, so it's all happening now. I have been removed from the Dabrafenib brain met trial, so the UK will be my home for the next couple of months.

            Really hope both you and your Dad are OK.

            Ben.

              deardad
              Participant

                Hi Ben,

                Great news…stable is good. 

                Wow all the best in the UK with the TIL trial, that's a very promising treatment. Stay positive and keep in touch.

                Dad is on steriods and has a new lease on life….sadly I know that is only temporary.

                We head up to Sydney on Wednesday for an MRI Thurs, then we meet Dr Hong in the arvo and hopefully treatment Friday morning.

                I'm not sure what happens next because we're not treating the mets in his body…….there's only chemo, which is next to useless. I think he's happy if the gamma can help to gain some stability again in his leg.

                Take care Ben…

                Nahmi.

                deardad
                Participant

                  Hi Ben,

                  Great news…stable is good. 

                  Wow all the best in the UK with the TIL trial, that's a very promising treatment. Stay positive and keep in touch.

                  Dad is on steriods and has a new lease on life….sadly I know that is only temporary.

                  We head up to Sydney on Wednesday for an MRI Thurs, then we meet Dr Hong in the arvo and hopefully treatment Friday morning.

                  I'm not sure what happens next because we're not treating the mets in his body…….there's only chemo, which is next to useless. I think he's happy if the gamma can help to gain some stability again in his leg.

                  Take care Ben…

                  Nahmi.

                  deardad
                  Participant

                    Hi Ben,

                    Great news…stable is good. 

                    Wow all the best in the UK with the TIL trial, that's a very promising treatment. Stay positive and keep in touch.

                    Dad is on steriods and has a new lease on life….sadly I know that is only temporary.

                    We head up to Sydney on Wednesday for an MRI Thurs, then we meet Dr Hong in the arvo and hopefully treatment Friday morning.

                    I'm not sure what happens next because we're not treating the mets in his body…….there's only chemo, which is next to useless. I think he's happy if the gamma can help to gain some stability again in his leg.

                    Take care Ben…

                    Nahmi.

                  benp
                  Participant

                    Hi Nahmi, 

                    Thanks for asking! Post Gamma Knife MRI was good – pretty much all 10 the same size (it does take several months for a reaction to become apparent). CT did however show 2 body mets – both 1cm – in a lung and above a kidney.  How did your dad go with the GK?

                    I've actually been really busy; for quite some time I've been planning to take part in a TIL ACT trial, and I am currently in the UK about to start the full process tomorrow. I had a subq tumour excised here around a month ago, and the TILs grew well, so I'm hoping that I do get a good response. Anyway, I start the chemo lymphodepletion tomorrow, so it's all happening now. I have been removed from the Dabrafenib brain met trial, so the UK will be my home for the next couple of months.

                    Really hope both you and your Dad are OK.

                    Ben.

                Viewing 2 reply threads
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