Bee Propolis Interesting Read

So Bubbles…Celeste  (No-It-All) please enlighten the Board where the word CURE is found in this article??? Or where I mentioned the word CURE ??

​I posted this article as an enchancement to treatment not a cure. So please show us your proof where these research doctors are wrong. 

As I said in earlier post's rose colored glass's is what you wear. Your entitled to your own opinion but not your own FACTS !!

One of the many good things about this discussion group is the members' ability to discuss calmly and politely.   If you cannot do this it might be best if you refrain from posting.

I do NOT need someone like you or Bubbles attacking me on ever post ! I have as much right to post and voice my opinion as anyone else. I'm not selling or pushing anything.

People cannot declare this Board their exclusive domain where only there opinion has merit. This is not a mentoring board and the select few control it.

If anyone does not agree with the article fine that's your right and you can just move on. There is no need to be sacastic or dimissive, especially without proof.

There are a number of issues to address Mr. Rob578:

1) There are only 29 articles in Pubmed that you can find with a search for melanoma and bee propolis in a data base that spans decades. None of the articles is more than a report of bee propolis on cells in a dish except for one on cytokine levels in mice. There is no data relating melanoma to the use of bee propolis in the treatment of melanoma in humans. I believe one would be hard pressed to bet one's life on this data. This is not a personal attack on you. It is a characterization of the data. 

2) To that point, your vituperative and personally abusive response to anything not entirely positive about the information you post is destructive and self defeating. It also detracts from the function of this forum. These are people with real problems seeking real solutions. This forum can be incredibly supportive. However I don't think it will tolerate your temper tantrums. 

Did I post this was a "cure" or as you put it " you can bet your life on it" ? NO I did NOT nor did I even make an inference . All I said on the post label is "interesting read" . 

Perhaps you should get your facts straight and not jump on the bandwagon !!

Maybe I am incorrect but I believe most users of this board are not looking for “interesting reads”. They are looking for others experiences, perspective and research information in a time in their life that are scared and looking for meaningful information from reliable sources. 

You appear to take exception to anyone that challenges your posts. You consider it unfair that you get challenged. I strongly encourage everyone that reads this post to check your sources. I personally have checked the Green Meds site. In my opinion The site has one purpose and it unfortunately is not for the betterment of the subscribers/readers.

This site is not a popularity contest and those that have over time provided meaningful information get rewarded with a thank you. 

If the thank you is what you desire then please post more than “interesting reads”

thank you

Rob, you just called Bubbles a "no it all." That is name calling, which is an attack. Celeste presented her point of view, which differs from yours. She did not attack you personally. 

Just a reminder to forum members: there is a "report" button and a "Contact" link at the bottom of the page to send a message to forum administrators. It worries me that people who are easily taken in will think they can trust Rob's alternative information simply because it is on the Melanoma Foundation forum. 

Rob,

  I don’t post often on this site even though I read it frequently. I come here for intelligent and fact based information  and of course for emotional support. I’m wondering why you are posting this article. It’s not helpful at all and it gives a false impression on what works. Please be aware that everyone on here could be facing a life or death situation and it’s irresponsible and dangerous  to give people false hope. Please stop!

 It’s obvious to me that Celeste, Ed and Janner are here every day to truly help people. I wish you well and hope that you will continue to be healthy. I’m inundated enough with fake news every day and this is a site that needs to stay as fact based as possible.

Maureen

That's sounds like a cool ap.  I'll have to check it out!  Sorry for you loss.  Glad you are hanging tough and still NED!!!!  Yours, celeste

Thanks, Maureen.  Was trying to post above to NSNewf!  Have a great day!  celeste

Both my husband (who has melanoma) and I take a few supplements and are considering a couple more. One was recommended by the oncologist (just a good probiotic). Based on info I found in on-line searches, we're holding off on two until we speak with him. The app had everything I spent time looking for (good and what held me back) in one location. Thank you so much, NSNewf. And I'm so terribly sorry about your sister-in-law. 

I think Ed and Bubbles have many alias's on this Board or a lot of people are strange. My relationship too Green Meds ? The only relationship I have is in your imagination.

Can someone please explain what's wrong with enhancing your current treatment with vitamin "D" , C, or B . Or boosting your immune system with probiotics or bee propolis. Or even taking off-label drugs when 5 year stats suck. 

Sorry I refuse to sit on my hands and do nothing to help my stats. I'm  Stage 3a and my melanoma oncologist's gives me 50% survival past 5 years. A 43% chance of it coming back year 1.

I perfer to be proactive and go beyond what meds my oncologist's has prescribed. If anyone does not fine its entirely your choice. You can just ignore any of my post's. But to slander, slant , or condem my opinion is really not called for, is it !!

Gosh Rob, don't you see it? Your responses are the problem. You are so angry and defensive. Take a chill pill and find a way to deal with your anger and oppositional behavior. Celeste's post in no way merited your response to it. If you can't remain calm and relaxed just don't post. 

Rob we must be 3a twins switched at birth though it sounds as if the prognosis I am getting is more favourable. The stats I have been provided differ significantly for 3a namely 98% for year one. I am still in after a year so awesome. The 5 year is 78%. True everyone is different and it depends on many factors.

I wish you continued good health.

Also I am not Celeste or Ed. I am just a person that advocates for patient knowledge and have found this site very useful.

NSNewf …no offence taken I wish I had your great stats. I did not have a primary and I'm labeled head and neck. I could post's links to stats of neck dissections with one positive node. But that's the deal I have been dealt with melanoma stage 3a.

Hi Rob,

Just wanted you to know that my husband started at a 3b his initial diagnosis was in Jan. 2008.  His lesion was on the back of his head and was 10.5 mm.  His WLE and SNB was done on Feb. 14, 2008.  The SNB came back negative.  He had a 10.5 cm circle cut from the back of his head and cinched down and a skin graft.  He would not do a CLND and he refused interferon and did the watch and wait as the interferon was the only thing offered to a Stage 3.  After 3 more surgeries and about 13 months later he went to Stage IV with mets to liver, lungs and unresectable at the Cervical Spine (C1 or C2 area) that was October of 2010.  In March 2013 he started a clinical trial for Ipi (10 mg/kg every 3 weeks for the initial 12 weeks and GM-CSF (daily injection for 14 days and 7 day off)  After the 12 weeks he then took the same dosage of Ipi every 12 weeks and GC-CSF for the 14/7 until Dec. 2013.  He became NED in July 2012 and has remained that way for over 5.5 years.  So you never know when you can pull ahead in the race against melanoma.

He had many conversations with the research nurse and she had worked with babies born Vitamin D3 deficient and switched to working with melanoma patients.  He spoke with his melanoma specialist and he agreed it couldn't hurt to try to get your Vitamin D3 levels up and so he worked on that part.  The research nurse followed and did more research and he had his Vitamin D3 levels checked often.  He was the only one that increased his Vitamin D3 levels.  So did it help we will never know and several debunk this.

He is the only one in this clinical trial that has gone this long without a reoccurence.  Three of them became NED.  Some never made the NED status and had regrowth sooner and of course some died while in the trial.

I am not claiming that this helped him survive but it is possible.  You live in Canada so I am sure you Vitamin D3 levels are low as we live in Ohio and I know ours is.  

Judy the loving wife of Gene Stage IV a clinical trial and now NED for over 5 years.

Hi Gene S happy that your husband has had great success with this challenging disease. He was very wise to take vitamin D3 in my opinion. I take it 3x a day. I could forward documentation to this Board but probably would be crucified for pushing a cure. Nevertheless I wish you and your husband good health and thanks for the post.

I guess a little bit too much time on my hands today. I did check out the link and Green Meds site. A couple of observations: I was constantly prompted to join to get 2 free books by the founder. Based on my cursive review the founder is also the author of a lot of research into alternative medicine. I noted his name attached to a lot of articles including positions on vaccines, fluoride, ultrasounds, etc. 

Should anyone wish to pay for access to the site I am sure there are a lot of other articles by the founder. 

Thanks Rob, I definitely would have not found the site with my conventional searches. 

BTW, I could not find the founders credentials or educational background. Maybe I wasn’t looking in the right spot or I have to pay to get that information 

All the best, stay healthy 

I too have reviewed Green Meds quite a bit. They have some okay stuff but do push really hard at selling you stuff whenever you check out their site.

Ted