Awaiting PETscan results after radiation treatment
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Awaiting PETscan results after radiation treatment

› Forums › Cutaneous Melanoma Community › Awaiting PETscan results after radiation treatment

  • Post
    • October 21, 2013 at 1:31 pm
    flvermonter
    Participant

    Hello,

    I haven't been on in awhile and very nervous today.  My husband had 5 weeks of 2 treatments a day for lung cancer and melanoma.  After which we discovered his bovine aortic valve needs to now be replaced.  This has been an awful year.  We get the readout tomorrow of the PETscan from last week.  God willing there are no hot spots of melanoma or lung cancer. 

    I am staying so positive, and the kids will ask how are you. Of course I say fine, but it requires me to continue to not think of "what ifs".  I guess it because tomorrow we will know, all the anxiety is kicking in for me.  So scared that they will find something.  That would compromise the valve in valve replacement trial procedure for him.

    I guess my questions are, does radiation impact the calcification on a heart valve, or has anyone heard of that?  I will be asking the Radiation Onc tomorrow as well, but just curious.  Other question is has anyone experience with NOT taking the medical onc treatment after surgery?  My husband decided not to take it until after this PETscan.  Thinking if no spots, he would not take it. If there are spots, now sure how he can handle treatement with his valve.

    Thanks, Mary

     

     

Viewing 8 reply threads
  • Replies
      • October 22, 2013 at 5:49 am
      JerryfromFauq
      Participant

      "  Which "medical onc treatment" is being looked into?

      Here is an article that discuses  th eissue of the heart, valves aand radiation in cancer patients.

       

      • October 22, 2013 at 5:49 am
      JerryfromFauq
      Participant

      "  Which "medical onc treatment" is being looked into?

      Here is an article that discuses  th eissue of the heart, valves aand radiation in cancer patients.

       

        • October 22, 2013 at 5:50 am
        JerryfromFauq
        Participant
        • October 22, 2013 at 5:50 am
        JerryfromFauq
        Participant
        • October 22, 2013 at 11:11 am
        flvermonter
        Participant
        thank you for the link. I read through and it is so strange when you read it as without the radiation both cancer would have continued. it was his best shot and now it has damaged the valve.

        his cancers were melanoma in the right with and lung cancer in the top tight lung. the radiation treat both as they were so close to each other. we go shortly o get the petscan results. so anxious and seems like i have a line that I dont cross to keep fears and anxiety at bay.

        • October 22, 2013 at 11:11 am
        flvermonter
        Participant
        thank you for the link. I read through and it is so strange when you read it as without the radiation both cancer would have continued. it was his best shot and now it has damaged the valve.

        his cancers were melanoma in the right with and lung cancer in the top tight lung. the radiation treat both as they were so close to each other. we go shortly o get the petscan results. so anxious and seems like i have a line that I dont cross to keep fears and anxiety at bay.

        • October 22, 2013 at 11:11 am
        flvermonter
        Participant
        thank you for the link. I read through and it is so strange when you read it as without the radiation both cancer would have continued. it was his best shot and now it has damaged the valve.

        his cancers were melanoma in the right with and lung cancer in the top tight lung. the radiation treat both as they were so close to each other. we go shortly o get the petscan results. so anxious and seems like i have a line that I dont cross to keep fears and anxiety at bay.

        • October 22, 2013 at 5:50 am
        JerryfromFauq
        Participant
      • October 22, 2013 at 5:49 am
      JerryfromFauq
      Participant

      "  Which "medical onc treatment" is being looked into?

      Here is an article that discuses  th eissue of the heart, valves aand radiation in cancer patients.

       

      • October 22, 2013 at 1:12 pm
      BrianP
      Participant

      Hey Mary,

      Sorry you are having so many challenges put in front of you.  As if melanoma is enough of a challenge!  I'm curious if the onc has talked to you about a PD-1 trial.  I thought PD-1 is having success against both melanoma and lung cancer. 

      I have no experience or knowledge about the heart valve and radiaiton.  Hope it's something they can fix quickly so you can get back on the attack against the cancer.

      Brian

      • October 22, 2013 at 1:12 pm
      BrianP
      Participant

      Hey Mary,

      Sorry you are having so many challenges put in front of you.  As if melanoma is enough of a challenge!  I'm curious if the onc has talked to you about a PD-1 trial.  I thought PD-1 is having success against both melanoma and lung cancer. 

      I have no experience or knowledge about the heart valve and radiaiton.  Hope it's something they can fix quickly so you can get back on the attack against the cancer.

      Brian

        • October 22, 2013 at 2:38 pm
        flvermonter
        Participant

        Great news from the Radiation Oncologist…. NED on the PETscan.  We are so happy to have good news for a change.  Now we can move on to the valve in valve trial next month in Atlanta. 

        • October 22, 2013 at 2:38 pm
        flvermonter
        Participant

        Great news from the Radiation Oncologist…. NED on the PETscan.  We are so happy to have good news for a change.  Now we can move on to the valve in valve trial next month in Atlanta. 

        • October 22, 2013 at 2:47 pm
        casagrayson
        Participant

        Hooray for good news!!

        Susan

        • October 22, 2013 at 2:47 pm
        casagrayson
        Participant

        Hooray for good news!!

        Susan

        • October 22, 2013 at 2:47 pm
        casagrayson
        Participant

        Hooray for good news!!

        Susan

        • October 23, 2013 at 3:38 am
        JerryfromFauq
        Participant

        WHOO{EE !!!!

        • October 23, 2013 at 3:38 am
        JerryfromFauq
        Participant

        WHOO{EE !!!!

        • October 23, 2013 at 3:38 am
        JerryfromFauq
        Participant

        WHOO{EE !!!!

        • October 22, 2013 at 2:38 pm
        flvermonter
        Participant

        Great news from the Radiation Oncologist…. NED on the PETscan.  We are so happy to have good news for a change.  Now we can move on to the valve in valve trial next month in Atlanta. 

      • October 22, 2013 at 1:12 pm
      BrianP
      Participant

      Hey Mary,

      Sorry you are having so many challenges put in front of you.  As if melanoma is enough of a challenge!  I'm curious if the onc has talked to you about a PD-1 trial.  I thought PD-1 is having success against both melanoma and lung cancer. 

      I have no experience or knowledge about the heart valve and radiaiton.  Hope it's something they can fix quickly so you can get back on the attack against the cancer.

      Brian

      • October 24, 2013 at 5:09 am
      tasjacques
      Participant

      So glad to read that the PET scans are clear. Just curious are they replacing the valve with open heart surgery? or the new technology which is TAVR (Transcatheter Aortic Valve Replacement, like laparoscopy?

      Elenise

       

      • October 24, 2013 at 5:09 am
      tasjacques
      Participant

      So glad to read that the PET scans are clear. Just curious are they replacing the valve with open heart surgery? or the new technology which is TAVR (Transcatheter Aortic Valve Replacement, like laparoscopy?

      Elenise

       

      • October 24, 2013 at 5:09 am
      tasjacques
      Participant

      So glad to read that the PET scans are clear. Just curious are they replacing the valve with open heart surgery? or the new technology which is TAVR (Transcatheter Aortic Valve Replacement, like laparoscopy?

      Elenise

       

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