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Anyone stopped taking Dilantin?
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Anyone stopped taking Dilantin?

› Forums › General Melanoma Community › Anyone stopped taking Dilantin?

  • Post
    • September 27, 2011 at 1:01 pm
    momof2kids
    Participant

      I had brain surgery back in June 2011, and just this past week my Brain doctor told me I can stop taking the Dilantin since I've never had a seizure.

      Unlike the steroids where it took a month of weaning off according to the doctor, this time he wants me off these in 1 week, so instead of 3 pills a day, I'm down to 2 pills a day, and tomorrow thru Thursday I'll be down to 1 pill a day.

      Just seems like quick stop, just making sure that seems right?

      I had brain surgery back in June 2011, and just this past week my Brain doctor told me I can stop taking the Dilantin since I've never had a seizure.

      Unlike the steroids where it took a month of weaning off according to the doctor, this time he wants me off these in 1 week, so instead of 3 pills a day, I'm down to 2 pills a day, and tomorrow thru Thursday I'll be down to 1 pill a day.

      Just seems like quick stop, just making sure that seems right?

      I am sorta nervous about going off though, I always like the extra protection of not getting a seizure of course, now it's like if my body wants to give me one it will.

      So, just anxious to see if anyone else stopped taking theirs that quickly?

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    • Replies
        • September 27, 2011 at 7:55 pm
        nickmac56
        Participant

          My wife went off it, but it was a much smoother taper, even though she has stayed on Kepra and Lacosamide. Her neurologist had her taper it over a month. 

          • September 27, 2011 at 7:55 pm
          nickmac56
          Participant

            My wife went off it, but it was a much smoother taper, even though she has stayed on Kepra and Lacosamide. Her neurologist had her taper it over a month. 

            • September 28, 2011 at 3:10 pm
            momof2kids
            Participant

              Ok thanks, I did just finally read that some doctors take you off quickly, others take awhile, I guess since I've had no seizures, and I'm not on any other medications for cancer, that's the quick withdrawal.

              • September 28, 2011 at 3:10 pm
              momof2kids
              Participant

                Ok thanks, I did just finally read that some doctors take you off quickly, others take awhile, I guess since I've had no seizures, and I'm not on any other medications for cancer, that's the quick withdrawal.

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