Anyone on pd-1?? Would like to hear how you all are doing!
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Anyone on pd-1?? Would like to hear how you all are doing!

› Forums › General Melanoma Community › Anyone on pd-1?? Would like to hear how you all are doing!

  • Post
    • May 22, 2013 at 2:14 am
    mclaus23
    Participant
    My dad is in cycle 2. I would like feedback 🙂

    My dad is in cycle 2. I would like feedback 🙂

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  • Replies
      • May 22, 2013 at 11:59 am
      BrianP
      Participant

      I'm sure others will answer but you might also want to try the search function and type in "on pd-1" or "PD-1 trial" or anything along those lines.  There have been a lot of PD-1 threads the last 6 months with people talking about their experiences.

      • May 22, 2013 at 11:59 am
      BrianP
      Participant

      I'm sure others will answer but you might also want to try the search function and type in "on pd-1" or "PD-1 trial" or anything along those lines.  There have been a lot of PD-1 threads the last 6 months with people talking about their experiences.

      • May 22, 2013 at 11:59 am
      BrianP
      Participant

      I'm sure others will answer but you might also want to try the search function and type in "on pd-1" or "PD-1 trial" or anything along those lines.  There have been a lot of PD-1 threads the last 6 months with people talking about their experiences.

        • May 23, 2013 at 5:14 am
        Erinmay22
        Participant
        I’ve had 6 rounds of Mercks anti-pd1. Scans at 12 and 16 weeks show continued shrinkage. Although each scan has had something’s small/new show up but then go away.

        Side effects have been minimal. I’ve had some itching. I’ve noticed some increase in fatigue and now some joint pain (especially the more humid the weather gets). But overall pretty easy compared to zelboraf and ipi.

        How is your dad feeling on it?

        • May 23, 2013 at 5:14 am
        Erinmay22
        Participant
        I’ve had 6 rounds of Mercks anti-pd1. Scans at 12 and 16 weeks show continued shrinkage. Although each scan has had something’s small/new show up but then go away.

        Side effects have been minimal. I’ve had some itching. I’ve noticed some increase in fatigue and now some joint pain (especially the more humid the weather gets). But overall pretty easy compared to zelboraf and ipi.

        How is your dad feeling on it?

        • May 23, 2013 at 5:14 am
        Erinmay22
        Participant
        I’ve had 6 rounds of Mercks anti-pd1. Scans at 12 and 16 weeks show continued shrinkage. Although each scan has had something’s small/new show up but then go away.

        Side effects have been minimal. I’ve had some itching. I’ve noticed some increase in fatigue and now some joint pain (especially the more humid the weather gets). But overall pretty easy compared to zelboraf and ipi.

        How is your dad feeling on it?

        • May 23, 2013 at 7:23 pm
        NYKaren
        Participant

        Erinmay,

        do you know what dose you're on?  I'm so glad you're doing well!

        thanks,

        Karen

        • May 23, 2013 at 7:23 pm
        NYKaren
        Participant

        Erinmay,

        do you know what dose you're on?  I'm so glad you're doing well!

        thanks,

        Karen

        • May 23, 2013 at 7:23 pm
        NYKaren
        Participant

        Erinmay,

        do you know what dose you're on?  I'm so glad you're doing well!

        thanks,

        Karen

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