Anyone had a second melignant mole?
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Anyone had a second melignant mole?

› Forums › General Melanoma Community › Anyone had a second melignant mole?

  • Post
    • April 18, 2015 at 1:40 am
    MixtaJones
    Participant

    Hey all,

     

    I just got a call from my derm talling me that a mole they just did a shave biopsy on came back as a Superficial Spreading  Melanoma. Clark level 3. This mole was about 8 inches from my "primary" site on my back which was removed about 2 years ago. I have already had 22 lymph nodes removed, Radiation, and Yervoy to treat remaining tumors. The mole they removed has been there for years but every doctor has said it is nothing to worry about until my derm agreed to take it off.

    Is this a second "primary" site? Or is it a sign of the first site spreading? I don't see my Onc till Wednesday ans I am a little freaked out. Has anyone had more then 1 melignant mole?

     

     

Viewing 5 reply threads
  • Replies
      • April 18, 2015 at 4:26 am
      Janner
      Participant

      If they said superficial spreading and a clarks level, it is a new primary and totally unrelated to your current melanoma status.  You are the stage of your worst primary so this changes nothing.  You will need a WLE but the SNB portion obviously depends.  If it is the same basin, then there are no nodes to test.  So that aspect needs to be discussed with your doc.  I've had three primaries.  Only about 10% have more than one but it really changes little in your overall picture of things.

        • April 18, 2015 at 1:38 pm
        MixtaJones
        Participant

        Janner,

         

        thanks for the response. I guess I sm wondering if this mole was caused by the original one the removed or if it is its own "starting point". All the nodes in that area are removed so it has nowhere close to go. The yervoy was very effective on my so I am hoping it has kept things contained to this small site 

        • April 18, 2015 at 2:02 pm
        Janner
        Participant

        A new primary is totally independent and did not start from your other occurrence.  It sounds like all you would need is the WLE.  Primary means primary site, not metastasis or secondary to another site.

        • April 18, 2015 at 2:02 pm
        Janner
        Participant

        A new primary is totally independent and did not start from your other occurrence.  It sounds like all you would need is the WLE.  Primary means primary site, not metastasis or secondary to another site.

        • April 18, 2015 at 2:02 pm
        Janner
        Participant

        A new primary is totally independent and did not start from your other occurrence.  It sounds like all you would need is the WLE.  Primary means primary site, not metastasis or secondary to another site.

        • April 18, 2015 at 1:38 pm
        MixtaJones
        Participant

        Janner,

         

        thanks for the response. I guess I sm wondering if this mole was caused by the original one the removed or if it is its own "starting point". All the nodes in that area are removed so it has nowhere close to go. The yervoy was very effective on my so I am hoping it has kept things contained to this small site 

        • April 18, 2015 at 1:38 pm
        MixtaJones
        Participant

        Janner,

         

        thanks for the response. I guess I sm wondering if this mole was caused by the original one the removed or if it is its own "starting point". All the nodes in that area are removed so it has nowhere close to go. The yervoy was very effective on my so I am hoping it has kept things contained to this small site 

      • April 18, 2015 at 4:26 am
      Janner
      Participant

      If they said superficial spreading and a clarks level, it is a new primary and totally unrelated to your current melanoma status.  You are the stage of your worst primary so this changes nothing.  You will need a WLE but the SNB portion obviously depends.  If it is the same basin, then there are no nodes to test.  So that aspect needs to be discussed with your doc.  I've had three primaries.  Only about 10% have more than one but it really changes little in your overall picture of things.

      • April 18, 2015 at 4:26 am
      Janner
      Participant

      If they said superficial spreading and a clarks level, it is a new primary and totally unrelated to your current melanoma status.  You are the stage of your worst primary so this changes nothing.  You will need a WLE but the SNB portion obviously depends.  If it is the same basin, then there are no nodes to test.  So that aspect needs to be discussed with your doc.  I've had three primaries.  Only about 10% have more than one but it really changes little in your overall picture of things.

      • April 21, 2015 at 2:12 pm
      sweetaugust
      Participant

      Good question!  I myself have had 4 melanomas:

      1st Diagnosed at age 26 with 2mm Stage II upper right arm (3 nodes removed and were fine)

      2nd Diagnosed at age 27 with In-situ on outer left thigh

      3rd Diagnosed at age 28 with 0.5mm left arm pit

      4th Diagnosed at age 29 with 0.6mm right arm pit

      Oct 2012 Diagnosed at age 38 with Stage IV with spread to many nodes and liver

      I just thought everyone was like me and had a few different primary melanomas.

      Janner…is it really rare (just 10% of us) to get more than one primary?

      Thank you, Laurie

      • April 21, 2015 at 2:12 pm
      sweetaugust
      Participant

      Good question!  I myself have had 4 melanomas:

      1st Diagnosed at age 26 with 2mm Stage II upper right arm (3 nodes removed and were fine)

      2nd Diagnosed at age 27 with In-situ on outer left thigh

      3rd Diagnosed at age 28 with 0.5mm left arm pit

      4th Diagnosed at age 29 with 0.6mm right arm pit

      Oct 2012 Diagnosed at age 38 with Stage IV with spread to many nodes and liver

      I just thought everyone was like me and had a few different primary melanomas.

      Janner…is it really rare (just 10% of us) to get more than one primary?

      Thank you, Laurie

      • April 21, 2015 at 2:12 pm
      sweetaugust
      Participant

      Good question!  I myself have had 4 melanomas:

      1st Diagnosed at age 26 with 2mm Stage II upper right arm (3 nodes removed and were fine)

      2nd Diagnosed at age 27 with In-situ on outer left thigh

      3rd Diagnosed at age 28 with 0.5mm left arm pit

      4th Diagnosed at age 29 with 0.6mm right arm pit

      Oct 2012 Diagnosed at age 38 with Stage IV with spread to many nodes and liver

      I just thought everyone was like me and had a few different primary melanomas.

      Janner…is it really rare (just 10% of us) to get more than one primary?

      Thank you, Laurie

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