Anyone at MD Anderson?

I set up scans and bloodwork for 6:00 am. I am usually finished by 9:30 if they combine my scans. MDA is a busy place and most doctors are always behind schedule. infusions can be scheduled for late in the day also if needed.
If your company has more than 20 employees, make sure HR is aware of your issues. Let them know you will do everything possible to meet your work requirements. If the company has given an exception to another employee in the past but terminated you they are skating on thin ice no matter their procedures. No manager wants to get a letter from the EEOC, much less deal with discovery, depositions, and a federal judge who would let his own employees off for treatment if they were in your shoes.
Remember that your health comes first. It’s hard to pay the bills and support your family if you are dead.
Susanne

Your health is number 1. I believe you qualify for disability with that diagnosis. Im stage 3b but we have a family friend who was stage 4 but now is ned. That was 18 years ago and still going strong.

I hope your appointment(s) went well today. When I started treatment (ipi-nivo), i had metastases in various lymph nodes, both lungs, both breasts, liver, pancreas, outside my spleen, and outside my kidneys. I could feel three of them under my skin. Two weeks before that horrible scan, they were “only” in a lymph node and my lungs. I was initially going to go on a clinical trial, but wasn’t able to join (no reason given). That was frustrating because it delayed the start of my actual treatment. I only received 2 treatments of combo ipi-nivo, due to the effects it had on my liver. It terrified me to not be given all four treatments. The nivo was discontinued a few months later due to unacceptable side effects (the liver again, though I had other side effects, some reversible and some not, and one other “serious” side effect). I had already gotten my first scan showing I was NED. It was scary for all treatment to be discontinued, but I had already had my first NED scan, so it helped me deal with the fear of doing nothing. I feel incredibly lucky to have had the best response so quickly (minus the side effects). I really hope that you feel better after today and I especially hope that your treatment plan is effective for you! Also, I worked throughout my treatment (short as it was overall), but often had to leave work early the day or two after a treatment. I would recommend requesting to get your treatments on Fridays (or Thursdays) so that you can rest over the weekend (assuming you work M-F), if you are concerned about missing work. Hang in there. It’s tough. Stay strong.