Any experience with Young Til therapy?
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Any experience with Young Til therapy?

› Forums › General Melanoma Community › Any experience with Young Til therapy?

  • Post
    • September 19, 2011 at 7:13 pm
    life is good
    Participant

    Hi there,

     

    My name is Saskia, and I'm living in the Netherlands. My sister has been diagnosed with Melanome stage III (I think… I'm not really familiair with the staging of melanoma) in 2006. After an operation where here melanoma and her lymph nodes have been removed she seemed 'cured' (of course we were told that 'cured' was a bit of a strange way to express her stage, but free of cancer for the time being…)

    Hi there,

     

    My name is Saskia, and I'm living in the Netherlands. My sister has been diagnosed with Melanome stage III (I think… I'm not really familiair with the staging of melanoma) in 2006. After an operation where here melanoma and her lymph nodes have been removed she seemed 'cured' (of course we were told that 'cured' was a bit of a strange way to express her stage, but free of cancer for the time being…)

    In 2010 the cancer was back, mets in her lymfnodes in her abdomen. After the standard chemo, she was treated with ipilimumab and after 5 treatments it seemed to do nothing anymore. So time for another action!

    She has no B-raf mutation and now she is eligible for the young TIL-therapy. The experience with this treatment in the netherlands is very small (she would by the fifth patient…) and we know that the treament is gonna to be very hard.

    Has any one of you experience with this treatment and could you please share this with me?

     

    Are there any other options after this for my sister?

     

    Best regards and thanks for your ansers!

     

    Saskia

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  • Replies
      • September 20, 2011 at 3:05 pm
      MariaH
      Participant

      Dear Saskia,

      I am sorry to hear of your sister's progression.  I see you haven't had any responses, and wanted to let you know that it wasn't because people were ignoring you.  There are members of this board who have done the TIL therapy (ValinMtl just finished, and Warren) and had success.  If you could post the protocol used in the Neatherlands, it may help.  If she is B-RAF negative,  after IPI she should look into the TIL studies or IL-2.

      We tried to get my husband into this type of trial at NIH in Bethesda, and although I can't give you any insight to the treatment, I certainly think your sister has chosen the best option at this time.

      Please keep us posted on how her treatment goes and best wishes to the both of you.

      Maria

      • September 20, 2011 at 3:05 pm
      MariaH
      Participant

      Dear Saskia,

      I am sorry to hear of your sister's progression.  I see you haven't had any responses, and wanted to let you know that it wasn't because people were ignoring you.  There are members of this board who have done the TIL therapy (ValinMtl just finished, and Warren) and had success.  If you could post the protocol used in the Neatherlands, it may help.  If she is B-RAF negative,  after IPI she should look into the TIL studies or IL-2.

      We tried to get my husband into this type of trial at NIH in Bethesda, and although I can't give you any insight to the treatment, I certainly think your sister has chosen the best option at this time.

      Please keep us posted on how her treatment goes and best wishes to the both of you.

      Maria

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