Anti-PD1 is WORKING!!!!!!!!!!!!!
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Anti-PD1 is WORKING!!!!!!!!!!!!!

› Forums › General Melanoma Community › Anti-PD1 is WORKING!!!!!!!!!!!!!

  • Post
    • June 8, 2012 at 2:22 am
    rbruce
    Participant

    After over a year of nothing but bad news and constant tumor progression, I just met with my Doctor at UCSF who was excited to tell me that I have had over a 30% tumor reduction from the ANTI-PD1 trial I am on.  All of the results out of ASCO last weekend in Chicago about ANTI-PD1 have been very promising and have shown that responders continue to respond.  I am so grateful for the groundbreaking research that is bringing these new immunotherapies to the forefront.

    After over a year of nothing but bad news and constant tumor progression, I just met with my Doctor at UCSF who was excited to tell me that I have had over a 30% tumor reduction from the ANTI-PD1 trial I am on.  All of the results out of ASCO last weekend in Chicago about ANTI-PD1 have been very promising and have shown that responders continue to respond.  I am so grateful for the groundbreaking research that is bringing these new immunotherapies to the forefront. I am so thankful for my friends and family that have supported me.  I am eternally thankful to my love, my partner, Lisa who, without her constant love and positive encouragement, I would be lost.  

     
    Today is a happy, happy day.  I thank God he continues to give me more time to live each day to the fullest.  I ask for God's blessings in your lives.
     
    With love and gratitude,
     
    Robert

Viewing 41 reply threads
  • Replies
      • June 8, 2012 at 2:50 am
      kylez
      Participant

      That's fantastic Robert. How are the side effects (if any?) it's great to hear the Merck drug is working in your case (and presumably other cases); it's not so clear whether some of the other non-BMS ones are. A friend of mine back east is on the BMS trial and has been stable for almost a year now.

      We go to the same clinic which makes your profile history very interesting reading. The UCSF Chancellor tweeted last week that anti-PD1 was "My pick for most promising  anti-cancer approach given potential broad impact and risk-benefit."

      What is your NRAS mutation? Mine is G12A. Too bad the Pi3K didn't work for yours but it's awesome you're getting good results so far with the anti-PD1… may they continue!

      -Kyle

        • June 8, 2012 at 5:32 am
        rbruce
        Participant

        Hi Kyle, side effects have been mainly some fatigue, a rash on my chest and neck, bone, joint, and some muscle pain.  but nothing serious or difficult to handle.  it's been pretty easy so far, especially when i compare it to the biochemo i did initially.  my mutation is nras q61. I'm still floating after the news today and praying for continued shrinkage.  take care.  Robert

        • June 8, 2012 at 5:32 am
        rbruce
        Participant

        Hi Kyle, side effects have been mainly some fatigue, a rash on my chest and neck, bone, joint, and some muscle pain.  but nothing serious or difficult to handle.  it's been pretty easy so far, especially when i compare it to the biochemo i did initially.  my mutation is nras q61. I'm still floating after the news today and praying for continued shrinkage.  take care.  Robert

        • June 8, 2012 at 5:32 am
        rbruce
        Participant

        Hi Kyle, side effects have been mainly some fatigue, a rash on my chest and neck, bone, joint, and some muscle pain.  but nothing serious or difficult to handle.  it's been pretty easy so far, especially when i compare it to the biochemo i did initially.  my mutation is nras q61. I'm still floating after the news today and praying for continued shrinkage.  take care.  Robert

        • June 8, 2012 at 3:32 pm
        killmel
        Participant

        Hi Kyle,

        I have a friend also that is on merck pd1 trial in San Antonio. Unfortunaley, just after a few months, his thyroid numbers went crazy and now he takes meds to regulate his thyroid. The study nurse told him that a few other patients on Merck pd1 trial also are having thyroid problems. I read in Asco 2012 article published about BMS PD1 this was also an adverse side effect.

        It is great news that your friend is still stable after 1 year. Is your friend NED?? How long did your friend take BMS drug??? Is he still taking the drug??? Is he on a "maintenance" program???

        I appreciate you taking the time to answer my questions so that I can pass this information onto my friend in San Antonia.

        Thanks again for the info about your friend.

         

        MaryJo

        • June 8, 2012 at 3:32 pm
        killmel
        Participant

        Hi Kyle,

        I have a friend also that is on merck pd1 trial in San Antonio. Unfortunaley, just after a few months, his thyroid numbers went crazy and now he takes meds to regulate his thyroid. The study nurse told him that a few other patients on Merck pd1 trial also are having thyroid problems. I read in Asco 2012 article published about BMS PD1 this was also an adverse side effect.

        It is great news that your friend is still stable after 1 year. Is your friend NED?? How long did your friend take BMS drug??? Is he still taking the drug??? Is he on a "maintenance" program???

        I appreciate you taking the time to answer my questions so that I can pass this information onto my friend in San Antonia.

        Thanks again for the info about your friend.

         

        MaryJo

        • June 8, 2012 at 4:20 pm
        kylez
        Participant

        Mary Jo, my friend is stable; not NED; trial/doses are ongoing. As for thyroid, I think his thyroid got blown out on IL-2, before BMS was even in the picture. 

        • June 8, 2012 at 4:20 pm
        kylez
        Participant

        Mary Jo, my friend is stable; not NED; trial/doses are ongoing. As for thyroid, I think his thyroid got blown out on IL-2, before BMS was even in the picture. 

        • June 8, 2012 at 4:20 pm
        kylez
        Participant

        Mary Jo, my friend is stable; not NED; trial/doses are ongoing. As for thyroid, I think his thyroid got blown out on IL-2, before BMS was even in the picture. 

        • June 10, 2012 at 5:09 am
        LynnLuc
        Participant

        I am stage 4 and on BMS's Anti PD 1.. NED for over 2 years..my thyroid is also blown and I am on Synthroid…one piece of good news is that in previous IL-2 studies patients with the thryroid issues were shown to have durable responses…..so its a small price to pay. As we get older  our thyroid typical fizzles out anyway…

        • June 10, 2012 at 5:14 am
        LynnLuc
        Participant

        PS I have been on it since Fall 2010. I curently get scans and anti pd 1 infusion every 3 months. My trial is someone different because I also rec'd 72 peptide injections in the first two 12 week cycles ( getting both anti pd 1 and peptides every other week). My onc also told me of a man on the BMS anti pd 1 who did progress and then had a complete spontaneous regression and is NED….

        • June 10, 2012 at 5:14 am
        LynnLuc
        Participant

        PS I have been on it since Fall 2010. I curently get scans and anti pd 1 infusion every 3 months. My trial is someone different because I also rec'd 72 peptide injections in the first two 12 week cycles ( getting both anti pd 1 and peptides every other week). My onc also told me of a man on the BMS anti pd 1 who did progress and then had a complete spontaneous regression and is NED….

        • June 10, 2012 at 5:14 am
        LynnLuc
        Participant

        PS I have been on it since Fall 2010. I curently get scans and anti pd 1 infusion every 3 months. My trial is someone different because I also rec'd 72 peptide injections in the first two 12 week cycles ( getting both anti pd 1 and peptides every other week). My onc also told me of a man on the BMS anti pd 1 who did progress and then had a complete spontaneous regression and is NED….

        • June 10, 2012 at 5:09 am
        LynnLuc
        Participant

        I am stage 4 and on BMS's Anti PD 1.. NED for over 2 years..my thyroid is also blown and I am on Synthroid…one piece of good news is that in previous IL-2 studies patients with the thryroid issues were shown to have durable responses…..so its a small price to pay. As we get older  our thyroid typical fizzles out anyway…

        • June 10, 2012 at 5:09 am
        LynnLuc
        Participant

        I am stage 4 and on BMS's Anti PD 1.. NED for over 2 years..my thyroid is also blown and I am on Synthroid…one piece of good news is that in previous IL-2 studies patients with the thryroid issues were shown to have durable responses…..so its a small price to pay. As we get older  our thyroid typical fizzles out anyway…

        • June 8, 2012 at 3:32 pm
        killmel
        Participant

        Hi Kyle,

        I have a friend also that is on merck pd1 trial in San Antonio. Unfortunaley, just after a few months, his thyroid numbers went crazy and now he takes meds to regulate his thyroid. The study nurse told him that a few other patients on Merck pd1 trial also are having thyroid problems. I read in Asco 2012 article published about BMS PD1 this was also an adverse side effect.

        It is great news that your friend is still stable after 1 year. Is your friend NED?? How long did your friend take BMS drug??? Is he still taking the drug??? Is he on a "maintenance" program???

        I appreciate you taking the time to answer my questions so that I can pass this information onto my friend in San Antonia.

        Thanks again for the info about your friend.

         

        MaryJo

        • June 8, 2012 at 3:58 pm
        noisy77
        Participant

        Very excited to hear! Please keep us updated

        • June 8, 2012 at 3:58 pm
        noisy77
        Participant

        Very excited to hear! Please keep us updated

        • June 8, 2012 at 3:58 pm
        noisy77
        Participant

        Very excited to hear! Please keep us updated

        • June 11, 2012 at 2:02 am
        kylez
        Participant
        actually I’ve only heard things on forums or elsewhere about 3 (of the 5 or 6) anti-pd1s out there, with your experience on Merck being the third. DI don’t know anything / have heard no forum-based info about any of the rest.
        • June 11, 2012 at 2:02 am
        kylez
        Participant
        actually I’ve only heard things on forums or elsewhere about 3 (of the 5 or 6) anti-pd1s out there, with your experience on Merck being the third. DI don’t know anything / have heard no forum-based info about any of the rest.
        • June 11, 2012 at 2:02 am
        kylez
        Participant
        actually I’ve only heard things on forums or elsewhere about 3 (of the 5 or 6) anti-pd1s out there, with your experience on Merck being the third. DI don’t know anything / have heard no forum-based info about any of the rest.
      • June 8, 2012 at 2:50 am
      kylez
      Participant

      That's fantastic Robert. How are the side effects (if any?) it's great to hear the Merck drug is working in your case (and presumably other cases); it's not so clear whether some of the other non-BMS ones are. A friend of mine back east is on the BMS trial and has been stable for almost a year now.

      We go to the same clinic which makes your profile history very interesting reading. The UCSF Chancellor tweeted last week that anti-PD1 was "My pick for most promising  anti-cancer approach given potential broad impact and risk-benefit."

      What is your NRAS mutation? Mine is G12A. Too bad the Pi3K didn't work for yours but it's awesome you're getting good results so far with the anti-PD1… may they continue!

      -Kyle

      • June 8, 2012 at 2:50 am
      kylez
      Participant

      That's fantastic Robert. How are the side effects (if any?) it's great to hear the Merck drug is working in your case (and presumably other cases); it's not so clear whether some of the other non-BMS ones are. A friend of mine back east is on the BMS trial and has been stable for almost a year now.

      We go to the same clinic which makes your profile history very interesting reading. The UCSF Chancellor tweeted last week that anti-PD1 was "My pick for most promising  anti-cancer approach given potential broad impact and risk-benefit."

      What is your NRAS mutation? Mine is G12A. Too bad the Pi3K didn't work for yours but it's awesome you're getting good results so far with the anti-PD1… may they continue!

      -Kyle

      • June 8, 2012 at 6:13 am
      melmar
      Participant
      So happy to read the good news! Congratulations!
      • June 8, 2012 at 6:13 am
      melmar
      Participant
      So happy to read the good news! Congratulations!
      • June 8, 2012 at 6:13 am
      melmar
      Participant
      So happy to read the good news! Congratulations!
      • June 8, 2012 at 11:09 am
      MeNDave
      Participant

      That is awesome news Robert!!  I was hoping you would post soon with something upbeat – David tried to get into the merk trial in Pittsburgh, but we discovered his brain mets.  I'm hoping that maybe once they get those under control, he'll have a shot at getting into one of these.

      It sounds as though we both had some prayers answered this week 🙂  Keep up the good work!!

      All our best,

      Maria n Dave

      • June 8, 2012 at 11:09 am
      MeNDave
      Participant

      That is awesome news Robert!!  I was hoping you would post soon with something upbeat – David tried to get into the merk trial in Pittsburgh, but we discovered his brain mets.  I'm hoping that maybe once they get those under control, he'll have a shot at getting into one of these.

      It sounds as though we both had some prayers answered this week 🙂  Keep up the good work!!

      All our best,

      Maria n Dave

      • June 8, 2012 at 11:09 am
      MeNDave
      Participant

      That is awesome news Robert!!  I was hoping you would post soon with something upbeat – David tried to get into the merk trial in Pittsburgh, but we discovered his brain mets.  I'm hoping that maybe once they get those under control, he'll have a shot at getting into one of these.

      It sounds as though we both had some prayers answered this week 🙂  Keep up the good work!!

      All our best,

      Maria n Dave

      • June 8, 2012 at 11:12 am
      triciad
      Participant

      Such exciting news.  Sending prayers for continued success!

      • June 8, 2012 at 11:12 am
      triciad
      Participant

      Such exciting news.  Sending prayers for continued success!

        • June 8, 2012 at 12:10 pm
        Laurie from maine
        Participant

        HOORAY!! Such wonderful news, thank you for sharing!!

        I am hopeful with the great results people are having and the ASCO conference that will push the drug companies to open up more trials and give stage 4 people more options.

        I also was in line to get on a PD-1 trial in Boston but was knocked out by a brain met.  I am hopeful that once that is zapped I can find one that is open and will take me.

        Keep us posted – and go out and CELEBRATE!!

        laurie from maine 🙂

        • June 8, 2012 at 12:10 pm
        Laurie from maine
        Participant

        HOORAY!! Such wonderful news, thank you for sharing!!

        I am hopeful with the great results people are having and the ASCO conference that will push the drug companies to open up more trials and give stage 4 people more options.

        I also was in line to get on a PD-1 trial in Boston but was knocked out by a brain met.  I am hopeful that once that is zapped I can find one that is open and will take me.

        Keep us posted – and go out and CELEBRATE!!

        laurie from maine 🙂

        • June 8, 2012 at 12:10 pm
        Laurie from maine
        Participant

        HOORAY!! Such wonderful news, thank you for sharing!!

        I am hopeful with the great results people are having and the ASCO conference that will push the drug companies to open up more trials and give stage 4 people more options.

        I also was in line to get on a PD-1 trial in Boston but was knocked out by a brain met.  I am hopeful that once that is zapped I can find one that is open and will take me.

        Keep us posted – and go out and CELEBRATE!!

        laurie from maine 🙂

      • June 8, 2012 at 11:12 am
      triciad
      Participant

      Such exciting news.  Sending prayers for continued success!

      • June 8, 2012 at 12:18 pm
      yoopergirl
      Participant

      Great news and so promising for the rest of us hoping to get into that trial. God Bless……

      • June 8, 2012 at 12:18 pm
      yoopergirl
      Participant

      Great news and so promising for the rest of us hoping to get into that trial. God Bless……

      • June 8, 2012 at 12:18 pm
      yoopergirl
      Participant

      Great news and so promising for the rest of us hoping to get into that trial. God Bless……

      • June 8, 2012 at 2:03 pm
      Tina D
      Participant

      Thank God for answered prayers on your behalf 🙂

      Great news.. thank you for sharing!!

      Tina

      • June 8, 2012 at 2:03 pm
      Tina D
      Participant

      Thank God for answered prayers on your behalf 🙂

      Great news.. thank you for sharing!!

      Tina

      • June 8, 2012 at 2:03 pm
      Tina D
      Participant

      Thank God for answered prayers on your behalf 🙂

      Great news.. thank you for sharing!!

      Tina

      • June 8, 2012 at 3:59 pm
      hope4cure1
      Participant

      Congratulations!!!!!   Thanks so much for this wonderful news!!!

      Hope

      • June 8, 2012 at 3:59 pm
      hope4cure1
      Participant

      Congratulations!!!!!   Thanks so much for this wonderful news!!!

      Hope

      • June 8, 2012 at 3:59 pm
      hope4cure1
      Participant

      Congratulations!!!!!   Thanks so much for this wonderful news!!!

      Hope

      • June 8, 2012 at 9:17 pm
      jim Breitfeller
      Participant

      Robert, Congrats!!!!!!

      Keep an eye on the next few scans. Make sure that all (ALL) tumors are shrinking or have disappeared. If not, you may want do some IL-2 to finish the job. See my posts on combinatorial therapy at melanoma missionary.

       

      Keep up the good job.

       

      Jimmy B.

      • June 8, 2012 at 9:17 pm
      jim Breitfeller
      Participant

      Robert, Congrats!!!!!!

      Keep an eye on the next few scans. Make sure that all (ALL) tumors are shrinking or have disappeared. If not, you may want do some IL-2 to finish the job. See my posts on combinatorial therapy at melanoma missionary.

       

      Keep up the good job.

       

      Jimmy B.

      • June 8, 2012 at 9:17 pm
      jim Breitfeller
      Participant

      Robert, Congrats!!!!!!

      Keep an eye on the next few scans. Make sure that all (ALL) tumors are shrinking or have disappeared. If not, you may want do some IL-2 to finish the job. See my posts on combinatorial therapy at melanoma missionary.

       

      Keep up the good job.

       

      Jimmy B.

      • June 8, 2012 at 10:30 pm
      jag
      Participant

      Rob, 

      Very happy to hear that you are responding and have tumor reduction.

      May you keep responding and continue to do so for a long time to come.

      I will say a prayer that God gives you a long (and full) life.

      God Bless

      John 

      • June 8, 2012 at 10:30 pm
      jag
      Participant

      Rob, 

      Very happy to hear that you are responding and have tumor reduction.

      May you keep responding and continue to do so for a long time to come.

      I will say a prayer that God gives you a long (and full) life.

      God Bless

      John 

      • June 8, 2012 at 10:30 pm
      jag
      Participant

      Rob, 

      Very happy to hear that you are responding and have tumor reduction.

      May you keep responding and continue to do so for a long time to come.

      I will say a prayer that God gives you a long (and full) life.

      God Bless

      John 

      • June 9, 2012 at 1:41 am
      Gene_S
      Participant

      Robert, Great news, thanks for sharing…  Gene

      • June 9, 2012 at 1:41 am
      Gene_S
      Participant

      Robert, Great news, thanks for sharing…  Gene

      • June 9, 2012 at 1:41 am
      Gene_S
      Participant

      Robert, Great news, thanks for sharing…  Gene

      • June 9, 2012 at 1:50 am
      Gene_S
      Participant

      Robert, Great news, thanks for sharing…  Gene

      • June 9, 2012 at 1:50 am
      Gene_S
      Participant

      Robert, Great news, thanks for sharing…  Gene

      • June 9, 2012 at 1:50 am
      Gene_S
      Participant

      Robert, Great news, thanks for sharing…  Gene

      • June 11, 2012 at 3:00 am
      JerryfromFauq
      Participant

      Sounds great! We are getting closer. I do have a couple of questions.

      1.Has anyone been on a PD-1 trial that doe not require one to be HLA-02?

      2.  Has anyone heard any results for someone that is c-kit positive?

      Thank you.

      JerryfromFauq

        • June 11, 2012 at 4:56 am
        rbruce
        Participant

        Jerry, the Merck trial I'm on does not require the Hla typing.  I believe the only Anti-pd1 trials that require hla typing are the ones that include a vaccine component. I haven't heard any results broken down by mutation, but data from Asco has shown that, so far, only tumors expressing the pd ligand have responded.  I did not know this entering the trial, and my biopsy wasn't tested for it, so it seems I lucked out.  check out the abstracts for anti-pd1 frommAsco, lots of good data.

        • June 12, 2012 at 1:53 pm
        NYKaren
        Participant

        Robert, fantastic news.  I'm so happy for you!

        karen

        • June 12, 2012 at 1:53 pm
        NYKaren
        Participant

        Robert, fantastic news.  I'm so happy for you!

        karen

        • June 12, 2012 at 1:53 pm
        NYKaren
        Participant

        Robert, fantastic news.  I'm so happy for you!

        karen

        • June 11, 2012 at 4:56 am
        rbruce
        Participant

        Jerry, the Merck trial I'm on does not require the Hla typing.  I believe the only Anti-pd1 trials that require hla typing are the ones that include a vaccine component. I haven't heard any results broken down by mutation, but data from Asco has shown that, so far, only tumors expressing the pd ligand have responded.  I did not know this entering the trial, and my biopsy wasn't tested for it, so it seems I lucked out.  check out the abstracts for anti-pd1 frommAsco, lots of good data.

        • June 11, 2012 at 4:56 am
        rbruce
        Participant

        Jerry, the Merck trial I'm on does not require the Hla typing.  I believe the only Anti-pd1 trials that require hla typing are the ones that include a vaccine component. I haven't heard any results broken down by mutation, but data from Asco has shown that, so far, only tumors expressing the pd ligand have responded.  I did not know this entering the trial, and my biopsy wasn't tested for it, so it seems I lucked out.  check out the abstracts for anti-pd1 frommAsco, lots of good data.

      • June 11, 2012 at 3:00 am
      JerryfromFauq
      Participant

      Sounds great! We are getting closer. I do have a couple of questions.

      1.Has anyone been on a PD-1 trial that doe not require one to be HLA-02?

      2.  Has anyone heard any results for someone that is c-kit positive?

      Thank you.

      JerryfromFauq

      • June 11, 2012 at 3:00 am
      JerryfromFauq
      Participant

      Sounds great! We are getting closer. I do have a couple of questions.

      1.Has anyone been on a PD-1 trial that doe not require one to be HLA-02?

      2.  Has anyone heard any results for someone that is c-kit positive?

      Thank you.

      JerryfromFauq

      • June 13, 2012 at 10:42 pm
      TSchulz
      Participant

      Great news.  Way to forge ahead and thank you for sharing your postive news.  I will celebrate your good news today and hope for more to come – for us all! 

      • June 13, 2012 at 10:42 pm
      TSchulz
      Participant

      Great news.  Way to forge ahead and thank you for sharing your postive news.  I will celebrate your good news today and hope for more to come – for us all! 

      • June 13, 2012 at 10:42 pm
      TSchulz
      Participant

      Great news.  Way to forge ahead and thank you for sharing your postive news.  I will celebrate your good news today and hope for more to come – for us all! 

      • September 23, 2012 at 8:53 pm
      kev1h
      Participant

      Great news Robert!

      I am on the Anti-PD1 with Merck at UCLA.  Here's hoping for similar results! 

      ~K

        • April 9, 2013 at 7:14 pm
        Erinlisay38
        Participant
        Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
        • April 9, 2013 at 7:14 pm
        Erinlisay38
        Participant
        Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
        • April 9, 2013 at 7:14 pm
        Erinlisay38
        Participant
        Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
        • April 9, 2013 at 7:15 pm
        Erinlisay38
        Participant
        Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
        • April 9, 2013 at 7:15 pm
        Erinlisay38
        Participant
        Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
        • April 10, 2013 at 2:02 am
        POW
        Participant

        Erin, it would be helplful if you would post your message again as a new thread so more people will see it and be able to  respond. Your news is definitely disappointing and somewhat scary. You deserve to get the best advice here that we can provide.

        • April 10, 2013 at 2:02 am
        POW
        Participant

        Erin, it would be helplful if you would post your message again as a new thread so more people will see it and be able to  respond. Your news is definitely disappointing and somewhat scary. You deserve to get the best advice here that we can provide.

        • April 15, 2013 at 1:45 am
        Erinlisay38
        Participant
        Ok thanks I will do that as soon as I figure out how to lol I’d like to hear from others
        • April 15, 2013 at 1:45 am
        Erinlisay38
        Participant
        Ok thanks I will do that as soon as I figure out how to lol I’d like to hear from others
        • April 15, 2013 at 1:45 am
        Erinlisay38
        Participant
        Ok thanks I will do that as soon as I figure out how to lol I’d like to hear from others
        • April 10, 2013 at 2:02 am
        POW
        Participant

        Erin, it would be helplful if you would post your message again as a new thread so more people will see it and be able to  respond. Your news is definitely disappointing and somewhat scary. You deserve to get the best advice here that we can provide.

        • April 9, 2013 at 7:15 pm
        Erinlisay38
        Participant
        Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
      • September 23, 2012 at 8:53 pm
      kev1h
      Participant

      Great news Robert!

      I am on the Anti-PD1 with Merck at UCLA.  Here's hoping for similar results! 

      ~K

      • September 23, 2012 at 8:53 pm
      kev1h
      Participant

      Great news Robert!

      I am on the Anti-PD1 with Merck at UCLA.  Here's hoping for similar results! 

      ~K

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About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.