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Angela C-How are you doing?
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Angela C-How are you doing?

› Forums › General Melanoma Community › Angela C-How are you doing?

  • Post
    • July 28, 2012 at 8:51 pm
    killmel
    Participant

      Angela,

      How are you doing since your IL-12 treatment at NIH. I hope your scans showed that the treatment is working.

      Wishing you  the BEST & NED status.

      Mary

      Angela,

      How are you doing since your IL-12 treatment at NIH. I hope your scans showed that the treatment is working.

      Wishing you  the BEST & NED status.

      Mary

    Viewing 2 reply threads
    • Replies
        • July 29, 2012 at 3:15 am
        Angela C
        Participant

          Hey there!

          I am doing great! I have had three scans since I finished my treatment in April. They have all been stable. These are the first stable scans I've had in a year and a half! So, while the tumors may not be shrinking, they are at least being stopped in their tracks and my cells are obviously having an effect!

          I am still on monthly follow up scans. I'll stay on monthly as long as things are stable. If it starts to shrink, then eventually I'll be able to move to every other month.

          I head back mid-August for the next round of scans.

          ~Angela

          • July 29, 2012 at 3:15 am
          Angela C
          Participant

            Hey there!

            I am doing great! I have had three scans since I finished my treatment in April. They have all been stable. These are the first stable scans I've had in a year and a half! So, while the tumors may not be shrinking, they are at least being stopped in their tracks and my cells are obviously having an effect!

            I am still on monthly follow up scans. I'll stay on monthly as long as things are stable. If it starts to shrink, then eventually I'll be able to move to every other month.

            I head back mid-August for the next round of scans.

            ~Angela

            • July 29, 2012 at 3:15 am
            Angela C
            Participant

              Hey there!

              I am doing great! I have had three scans since I finished my treatment in April. They have all been stable. These are the first stable scans I've had in a year and a half! So, while the tumors may not be shrinking, they are at least being stopped in their tracks and my cells are obviously having an effect!

              I am still on monthly follow up scans. I'll stay on monthly as long as things are stable. If it starts to shrink, then eventually I'll be able to move to every other month.

              I head back mid-August for the next round of scans.

              ~Angela

                • July 29, 2012 at 11:21 am
                JC
                Participant

                  Are you still w/ Dr Clark @ Loyola?  How do you like him/them?

                  • July 29, 2012 at 3:11 pm
                  Angela C
                  Participant

                    I'm not seeing Dr. Clark currently. I just see the docs at NIH. But I really like Dr. Clark and we liked Loyola. It was a really easy facility to get in and out of as far as parking, etc. It's much smaller than some of the other places we have been.

                    Dr. Clark is very caring and whenever I would call with questions, he would always call me back personally, instead of having a nurse call. I really appreciated that. But, they have their limitations at Loyola because they can only help you to a certain point with treatments. They can treat you with the FDA approved drugs, but they typically only have a few Melanoma studies. So, I saw Dr. Clark while doing IL-2 and Yervoy, but then I had to move on elsewhere once I needed clinical trials that weren't available there. But, if I were to move on to another treatment that could be completed through Loyola, I wouldn't hesitate to go back there.

                    • July 29, 2012 at 5:15 pm
                    JC
                    Participant

                      So, you're still in Chicago area but you go out East to NIH?

                      • July 29, 2012 at 5:15 pm
                      JC
                      Participant

                        So, you're still in Chicago area but you go out East to NIH?

                        • July 29, 2012 at 5:15 pm
                        JC
                        Participant

                          So, you're still in Chicago area but you go out East to NIH?

                          • July 29, 2012 at 6:51 pm
                          Angela C
                          Participant
                            Yes. We are about two hours away from Chicago. So, we had to travel to go to Loyola as well. We fly out to Maryland every month for my scans and follow up appointment. Melanoma consults and treatments have taken us to Chicago, St. Louis, Cincinnati, Boston and now Maryland. Not exactly the ideal way to see different parts of the country, but at least we are getting that opportunity. 🙂
                            • July 29, 2012 at 6:51 pm
                            Angela C
                            Participant
                              Yes. We are about two hours away from Chicago. So, we had to travel to go to Loyola as well. We fly out to Maryland every month for my scans and follow up appointment. Melanoma consults and treatments have taken us to Chicago, St. Louis, Cincinnati, Boston and now Maryland. Not exactly the ideal way to see different parts of the country, but at least we are getting that opportunity. 🙂
                              • July 29, 2012 at 8:02 pm
                              JC
                              Participant

                                So in your research that led you to Clark/Loyola, I'm sure you also looked into U of Chicago, Northwestern, etc..?  And, Loyola seemed best?  I'm in Chicago area too and am trying to gauge which place is best.

                                • July 29, 2012 at 8:02 pm
                                JC
                                Participant

                                  So in your research that led you to Clark/Loyola, I'm sure you also looked into U of Chicago, Northwestern, etc..?  And, Loyola seemed best?  I'm in Chicago area too and am trying to gauge which place is best.

                                  • July 29, 2012 at 11:48 pm
                                  Angela C
                                  Participant

                                    Well, you know, I really couldn't tell you now how I ended up at Loyola. I don't really remember. I know that we went there for a second opinion to what we were being told at Barnes in St. Louis, but I'm not sure how we ended up there specifically. We are thinking that my local oncologist suggested Loyola over the other Chicago locations.

                                    • July 29, 2012 at 11:48 pm
                                    Angela C
                                    Participant

                                      Well, you know, I really couldn't tell you now how I ended up at Loyola. I don't really remember. I know that we went there for a second opinion to what we were being told at Barnes in St. Louis, but I'm not sure how we ended up there specifically. We are thinking that my local oncologist suggested Loyola over the other Chicago locations.

                                      • July 29, 2012 at 11:48 pm
                                      Angela C
                                      Participant

                                        Well, you know, I really couldn't tell you now how I ended up at Loyola. I don't really remember. I know that we went there for a second opinion to what we were being told at Barnes in St. Louis, but I'm not sure how we ended up there specifically. We are thinking that my local oncologist suggested Loyola over the other Chicago locations.

                                        • July 29, 2012 at 8:02 pm
                                        JC
                                        Participant

                                          So in your research that led you to Clark/Loyola, I'm sure you also looked into U of Chicago, Northwestern, etc..?  And, Loyola seemed best?  I'm in Chicago area too and am trying to gauge which place is best.

                                          • July 29, 2012 at 6:51 pm
                                          Angela C
                                          Participant
                                            Yes. We are about two hours away from Chicago. So, we had to travel to go to Loyola as well. We fly out to Maryland every month for my scans and follow up appointment. Melanoma consults and treatments have taken us to Chicago, St. Louis, Cincinnati, Boston and now Maryland. Not exactly the ideal way to see different parts of the country, but at least we are getting that opportunity. 🙂
                                            • July 29, 2012 at 3:11 pm
                                            Angela C
                                            Participant

                                              I'm not seeing Dr. Clark currently. I just see the docs at NIH. But I really like Dr. Clark and we liked Loyola. It was a really easy facility to get in and out of as far as parking, etc. It's much smaller than some of the other places we have been.

                                              Dr. Clark is very caring and whenever I would call with questions, he would always call me back personally, instead of having a nurse call. I really appreciated that. But, they have their limitations at Loyola because they can only help you to a certain point with treatments. They can treat you with the FDA approved drugs, but they typically only have a few Melanoma studies. So, I saw Dr. Clark while doing IL-2 and Yervoy, but then I had to move on elsewhere once I needed clinical trials that weren't available there. But, if I were to move on to another treatment that could be completed through Loyola, I wouldn't hesitate to go back there.

                                              • July 29, 2012 at 3:11 pm
                                              Angela C
                                              Participant

                                                I'm not seeing Dr. Clark currently. I just see the docs at NIH. But I really like Dr. Clark and we liked Loyola. It was a really easy facility to get in and out of as far as parking, etc. It's much smaller than some of the other places we have been.

                                                Dr. Clark is very caring and whenever I would call with questions, he would always call me back personally, instead of having a nurse call. I really appreciated that. But, they have their limitations at Loyola because they can only help you to a certain point with treatments. They can treat you with the FDA approved drugs, but they typically only have a few Melanoma studies. So, I saw Dr. Clark while doing IL-2 and Yervoy, but then I had to move on elsewhere once I needed clinical trials that weren't available there. But, if I were to move on to another treatment that could be completed through Loyola, I wouldn't hesitate to go back there.

                                                • July 29, 2012 at 11:21 am
                                                JC
                                                Participant

                                                  Are you still w/ Dr Clark @ Loyola?  How do you like him/them?

                                                  • July 29, 2012 at 11:21 am
                                                  JC
                                                  Participant

                                                    Are you still w/ Dr Clark @ Loyola?  How do you like him/them?

                                              Viewing 2 reply threads
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