Amelanotic Melanoma
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Amelanotic Melanoma

› Forums › General Melanoma Community › Amelanotic Melanoma

  • Post
    • January 22, 2016 at 9:43 pm
    Stlmag
    Participant

    Timeline of my husband's melanoma journey:

    10/13/15  Diagnosed with amelanotic melanoma, Stage 2B

    10/14/15  CT chest lungs clear

    10/19/15 Sentinel node & wide excision. Stage 3C

                     8 mm deep, BRAF, wild type, 4 of 5 axillary lymph nodes pos/removed

    10/30/15 first oncology visit.."it has prob mets to your brain; you need to go to Vanderbilt"

    11/09/15 MRI brain clear

    11/12/15 PET scan clear

    11/16/15 Vanderbilt visit; offerred Yervoy/Interferon trial

    11/18/15 Made appt @ MD Anderson

    11/20/15 2nd oncology visit. Yervoy approved 10/28/15 for Stage 3. Will begin that.

    12/09/15 First Yervoy tx. Cancelled MDA appt

    12/30/15 No more Yervoy due to Grade 3 derm reaction

    01/19/16 Melanoma lesion reocurrs in surgical scar; biospsy

    01/22/16 Biopsey results confirm- lesion is melanoma

     

     

     

Viewing 5 reply threads
  • Replies
      • January 23, 2016 at 2:17 am
      jamieth29
      Participant
      Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan.
        • January 23, 2016 at 6:44 pm
        Stlmag
        Participant

        PET scan scheduled for 01/26/16. I'm certain surgical excision again….thinking it may be time for oncology surgeon.

        • January 23, 2016 at 6:44 pm
        Stlmag
        Participant

        PET scan scheduled for 01/26/16. I'm certain surgical excision again….thinking it may be time for oncology surgeon.

        • January 23, 2016 at 9:12 pm
        WithinMySkin
        Participant

        If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!! 

        Good luck to you Stlmag!

        WithinMySkin

        • January 23, 2016 at 9:12 pm
        WithinMySkin
        Participant

        If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!! 

        Good luck to you Stlmag!

        WithinMySkin

        • March 15, 2017 at 6:32 pm
        Stlmag
        Participant

        Very good advice- get a surgical oncologist. I insisted my husband see one and pleased he made that move – even though the melanoma battle continues.

        • January 23, 2016 at 9:12 pm
        WithinMySkin
        Participant

        If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!! 

        Good luck to you Stlmag!

        WithinMySkin

        • January 23, 2016 at 6:44 pm
        Stlmag
        Participant

        PET scan scheduled for 01/26/16. I'm certain surgical excision again….thinking it may be time for oncology surgeon.

        • March 15, 2017 at 6:28 pm
        Stlmag
        Participant

        He is scanned every 3 months. Feb 3 scan showed more melanoma.

      • January 23, 2016 at 2:17 am
      jamieth29
      Participant
      Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan.
      • January 23, 2016 at 2:17 am
      jamieth29
      Participant
      Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan.
      • January 23, 2016 at 3:35 pm
      gregor913
      Participant

      Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment

      • January 23, 2016 at 3:35 pm
      gregor913
      Participant

      Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment

        • January 23, 2016 at 6:46 pm
        Stlmag
        Participant

        Recurrance looks exactly like the first….same spot…..looks like a blood blister. Did have 5 lyph nodes excised at first surgery after sentinel.

        • January 23, 2016 at 6:46 pm
        Stlmag
        Participant

        Recurrance looks exactly like the first….same spot…..looks like a blood blister. Did have 5 lyph nodes excised at first surgery after sentinel.

        • January 23, 2016 at 7:13 pm
        blessd4x
        Participant

        my husbands looked like a blood blister too.  Not primary, staged him at IV.  I posted about venting.  Thank God for this site.  Everyone here will help you as theyve done for me.  Hang on.  One minute at a time. 

        • January 23, 2016 at 7:13 pm
        blessd4x
        Participant

        my husbands looked like a blood blister too.  Not primary, staged him at IV.  I posted about venting.  Thank God for this site.  Everyone here will help you as theyve done for me.  Hang on.  One minute at a time. 

        • March 15, 2017 at 6:30 pm
        Stlmag
        Participant

        17 months into this melanoma battle and it continues. This is a wonderful place for support.

        • January 23, 2016 at 7:13 pm
        blessd4x
        Participant

        my husbands looked like a blood blister too.  Not primary, staged him at IV.  I posted about venting.  Thank God for this site.  Everyone here will help you as theyve done for me.  Hang on.  One minute at a time. 

        • January 23, 2016 at 9:13 pm
        btcedarr
        Participant

        I had something that looked like a blood blister that is gone now. Dr. said I was probably spitting a stitch. Would it actually disappear if it was a reoccurence?

        • January 23, 2016 at 9:13 pm
        btcedarr
        Participant

        I had something that looked like a blood blister that is gone now. Dr. said I was probably spitting a stitch. Would it actually disappear if it was a reoccurence?

        • March 15, 2017 at 6:31 pm
        Stlmag
        Participant

        Reoccurance won't disappear.frown

        • January 23, 2016 at 9:13 pm
        btcedarr
        Participant

        I had something that looked like a blood blister that is gone now. Dr. said I was probably spitting a stitch. Would it actually disappear if it was a reoccurence?

        • January 23, 2016 at 6:46 pm
        Stlmag
        Participant

        Recurrance looks exactly like the first….same spot…..looks like a blood blister. Did have 5 lyph nodes excised at first surgery after sentinel.

      • January 23, 2016 at 3:35 pm
      gregor913
      Participant

      Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment

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