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Alternative therapies

Forums General Melanoma Community Alternative therapies

  • Post
    oldblue
    Participant

       

      Hi all,

      I recently read the avemar research and was surprised that most of it was never followed up with larger studies or trials over longer time in the west. Most fowhat I read came from Russia or Hungary. Maybe there is more research but I haven't found it.

      I'm also awareof a clinical trial currently recruiting for high dose vitamin D supplements for those at stage 3 – at least it is in Australia.

      Is anyone aware of any other alternative options out there? I am interested in it as an adjunct to more formal treatment regimens as long as it doesn't interfere with them.

      Or,is there a website that has them?

      Thank you,

      Nigel.

    Viewing 11 reply threads
    • Replies
        Gene_S
        Participant

          Nigel,

          What stage are you currently, what treatments have you already had and where do you reside?

          Gene_S
          Participant

            Nigel,

            What stage are you currently, what treatments have you already had and where do you reside?

            Gene_S
            Participant

              Nigel,

              What stage are you currently, what treatments have you already had and where do you reside?

                oldblue
                Participant

                   

                  Stage 3b. Live in Australia.

                  oldblue
                  Participant

                     

                    Treatment wise I have only had surgery. WLE, SLNB and complete lymph removal from my L groin. I'm due to go on the COMBI-AD trial for stage 3b people very soon.

                    oldblue
                    Participant

                       

                      Treatment wise I have only had surgery. WLE, SLNB and complete lymph removal from my L groin. I'm due to go on the COMBI-AD trial for stage 3b people very soon.

                      oldblue
                      Participant

                         

                        Treatment wise I have only had surgery. WLE, SLNB and complete lymph removal from my L groin. I'm due to go on the COMBI-AD trial for stage 3b people very soon.

                        oldblue
                        Participant

                           

                          Stage 3b. Live in Australia.

                          oldblue
                          Participant

                             

                            Stage 3b. Live in Australia.

                          ecc26
                          Participant

                            There are lots of claims of alternative therapies and often "trials" for them as well. One thing to note is that these "trials" are not under FDA regulation so insurance companies most often will not pay for any of your doctors visits, bloodwork, imaging, etc if you are enrolled in one of them. I'm not a big proponant of alternative therapies on their own, though I know there is some evidence supporting some things (recently there was some discussion about diet and supplements on another thread). Earlier on in my battle when I was looking into clinical trials one of my mother's friend's daughters (who is a macrobiotic) sent along an ad for one of these "trials"- their tiral consisted of going to live and be monitored at center where they would feed you a calorie restricted macrobiotic diet. Their therory was that cancer cells have a higher metabolic rate than normal cells so by restricting the calories they would "starve" the cancer to death. You want to know what else has a high metabolic rate? Your brain, heart, kidneys, liver, lungs, and any other active tissue. Additionally, every cell in your body (especially your brain) runs on sugar. EVERY CELL- healthy or not. So you're not just starving your cancer- you're starving your whole body. Even proteins and fats are converted into sugars so that cells can use them for energy. The only things that aren't are vitamins and minerals, but those have no caloric value, so you wont' live very long on vitamins and minerals- you need calories. In the absence of calorie intake the body begins to convert it's own tissues into calories- starting with muscle, then fat stores- the body sends signals for tissues to break down and the products are delivered to the liver to be converted into sugars to keep vital organs (again, the brain, heart, lungs, etc) functioning. Tumor cells are not excluded from this- in fact they are very very good at feeding themselves at our body's expense (hence the tumor formation to begin with). Starving your body does not starve your cancer- that's not how physiology works. So do be a little bit careful with alternative therapies and trials- both from a health and a financial (insurance) perspective, and do make sure your doctors know what you're doing/taking so as to avoid the possibility of one interfering or causing an adverse reaction with the other. Also make sure you report any side effects you are having regardless of therapy choices.

                            Best of luck

                              Squash
                              Participant

                                The best diet for cancer is the ketogenic diet which is high fat, low carb and low protein. There is a fair bit of evidence for it if you look around. If you decide to do it you should do it under the supervision of a medical or dietary specialist.

                                As for supplements there are plenty of great supplements out there.

                                As mentioned Avemar is one, IP6 is another, Beta Glugens, Tumeric, Green Tea Extract, Co EnzymeQ10, Reservatol, Quercitin, Omega 3s, Vitamin D, Selenium.

                                On top of all of those supplements detoxing the body would also make good sense. Do a colon cleanse, parasite cleanse and then a liver/kidney flush.

                                Check your dental health. Get rid of  any amalgam fillings and get your root canals if you have any extracted.

                                Look at the emotional issues that may have led to your condition and try to reduce stress by making appropriate life style changes.

                                Take up yoga , meditation, do regular aerobic exercise, and get a rebounder.

                                 

                                 

                                Squash
                                Participant

                                  The best diet for cancer is the ketogenic diet which is high fat, low carb and low protein. There is a fair bit of evidence for it if you look around. If you decide to do it you should do it under the supervision of a medical or dietary specialist.

                                  As for supplements there are plenty of great supplements out there.

                                  As mentioned Avemar is one, IP6 is another, Beta Glugens, Tumeric, Green Tea Extract, Co EnzymeQ10, Reservatol, Quercitin, Omega 3s, Vitamin D, Selenium.

                                  On top of all of those supplements detoxing the body would also make good sense. Do a colon cleanse, parasite cleanse and then a liver/kidney flush.

                                  Check your dental health. Get rid of  any amalgam fillings and get your root canals if you have any extracted.

                                  Look at the emotional issues that may have led to your condition and try to reduce stress by making appropriate life style changes.

                                  Take up yoga , meditation, do regular aerobic exercise, and get a rebounder.

                                   

                                   

                                  Squash
                                  Participant

                                    The best diet for cancer is the ketogenic diet which is high fat, low carb and low protein. There is a fair bit of evidence for it if you look around. If you decide to do it you should do it under the supervision of a medical or dietary specialist.

                                    As for supplements there are plenty of great supplements out there.

                                    As mentioned Avemar is one, IP6 is another, Beta Glugens, Tumeric, Green Tea Extract, Co EnzymeQ10, Reservatol, Quercitin, Omega 3s, Vitamin D, Selenium.

                                    On top of all of those supplements detoxing the body would also make good sense. Do a colon cleanse, parasite cleanse and then a liver/kidney flush.

                                    Check your dental health. Get rid of  any amalgam fillings and get your root canals if you have any extracted.

                                    Look at the emotional issues that may have led to your condition and try to reduce stress by making appropriate life style changes.

                                    Take up yoga , meditation, do regular aerobic exercise, and get a rebounder.

                                     

                                     

                                  ecc26
                                  Participant

                                    There are lots of claims of alternative therapies and often "trials" for them as well. One thing to note is that these "trials" are not under FDA regulation so insurance companies most often will not pay for any of your doctors visits, bloodwork, imaging, etc if you are enrolled in one of them. I'm not a big proponant of alternative therapies on their own, though I know there is some evidence supporting some things (recently there was some discussion about diet and supplements on another thread). Earlier on in my battle when I was looking into clinical trials one of my mother's friend's daughters (who is a macrobiotic) sent along an ad for one of these "trials"- their tiral consisted of going to live and be monitored at center where they would feed you a calorie restricted macrobiotic diet. Their therory was that cancer cells have a higher metabolic rate than normal cells so by restricting the calories they would "starve" the cancer to death. You want to know what else has a high metabolic rate? Your brain, heart, kidneys, liver, lungs, and any other active tissue. Additionally, every cell in your body (especially your brain) runs on sugar. EVERY CELL- healthy or not. So you're not just starving your cancer- you're starving your whole body. Even proteins and fats are converted into sugars so that cells can use them for energy. The only things that aren't are vitamins and minerals, but those have no caloric value, so you wont' live very long on vitamins and minerals- you need calories. In the absence of calorie intake the body begins to convert it's own tissues into calories- starting with muscle, then fat stores- the body sends signals for tissues to break down and the products are delivered to the liver to be converted into sugars to keep vital organs (again, the brain, heart, lungs, etc) functioning. Tumor cells are not excluded from this- in fact they are very very good at feeding themselves at our body's expense (hence the tumor formation to begin with). Starving your body does not starve your cancer- that's not how physiology works. So do be a little bit careful with alternative therapies and trials- both from a health and a financial (insurance) perspective, and do make sure your doctors know what you're doing/taking so as to avoid the possibility of one interfering or causing an adverse reaction with the other. Also make sure you report any side effects you are having regardless of therapy choices.

                                    Best of luck

                                    ecc26
                                    Participant

                                      There are lots of claims of alternative therapies and often "trials" for them as well. One thing to note is that these "trials" are not under FDA regulation so insurance companies most often will not pay for any of your doctors visits, bloodwork, imaging, etc if you are enrolled in one of them. I'm not a big proponant of alternative therapies on their own, though I know there is some evidence supporting some things (recently there was some discussion about diet and supplements on another thread). Earlier on in my battle when I was looking into clinical trials one of my mother's friend's daughters (who is a macrobiotic) sent along an ad for one of these "trials"- their tiral consisted of going to live and be monitored at center where they would feed you a calorie restricted macrobiotic diet. Their therory was that cancer cells have a higher metabolic rate than normal cells so by restricting the calories they would "starve" the cancer to death. You want to know what else has a high metabolic rate? Your brain, heart, kidneys, liver, lungs, and any other active tissue. Additionally, every cell in your body (especially your brain) runs on sugar. EVERY CELL- healthy or not. So you're not just starving your cancer- you're starving your whole body. Even proteins and fats are converted into sugars so that cells can use them for energy. The only things that aren't are vitamins and minerals, but those have no caloric value, so you wont' live very long on vitamins and minerals- you need calories. In the absence of calorie intake the body begins to convert it's own tissues into calories- starting with muscle, then fat stores- the body sends signals for tissues to break down and the products are delivered to the liver to be converted into sugars to keep vital organs (again, the brain, heart, lungs, etc) functioning. Tumor cells are not excluded from this- in fact they are very very good at feeding themselves at our body's expense (hence the tumor formation to begin with). Starving your body does not starve your cancer- that's not how physiology works. So do be a little bit careful with alternative therapies and trials- both from a health and a financial (insurance) perspective, and do make sure your doctors know what you're doing/taking so as to avoid the possibility of one interfering or causing an adverse reaction with the other. Also make sure you report any side effects you are having regardless of therapy choices.

                                      Best of luck

                                      DZnDef
                                      Participant

                                        Hello Nigel,

                                        I'm sorry to say that there is no one single Alternative treatment out there proven to cure melanoma or cancer in general.  Although you may find individual people that may swear they were cured by one treatment (and they may even be right) that same treatment does not work for many more.  Of course, the exact same thing can be said of the various drug treatments currently available.  We are unique and so are our cancers.  What works for one doesn't work for another (whether alternative, Ipi, PD1 or braf inhibitors).  So the goal is to find what will work for you.  This takes thoughtful evaluation and research, weighing the risks versus rewards and quality of life if that matters to you.

                                        If you are truly interested in learning more about Alternative treatments to cancer, I suggest you sign up for the upcoming online video series "The Quest for the Cures".  You can watch the trailer for the series at the link below.  If you are intrigued by the trailer, you can submit your email address and then you can watch the series as it airs (one episode per day) starting October 13th.  Many doctors and researchers are interviewed as well as cancer survivors describing what worked for them.  I watched their previous series and found it informative.

                                        http://thetruthaboutcancer.com/fall_quest2.php?af=1587332

                                        My own approach has focused on achieving optimal health overall, first to see if it might be enough to kick my own immune system into action, but if it doesn't, then to be in the best shape possible to handle the drugs and their side-effects.  I have been blessed with a low tumor burden and slow disease so far.  Or maybe its slow because of the changes I've made.  No way to know for sure but I continue to do what I believe is right for me and my disease.

                                        Best of luck to you – Maggie

                                        DZnDef
                                        Participant

                                          Hello Nigel,

                                          I'm sorry to say that there is no one single Alternative treatment out there proven to cure melanoma or cancer in general.  Although you may find individual people that may swear they were cured by one treatment (and they may even be right) that same treatment does not work for many more.  Of course, the exact same thing can be said of the various drug treatments currently available.  We are unique and so are our cancers.  What works for one doesn't work for another (whether alternative, Ipi, PD1 or braf inhibitors).  So the goal is to find what will work for you.  This takes thoughtful evaluation and research, weighing the risks versus rewards and quality of life if that matters to you.

                                          If you are truly interested in learning more about Alternative treatments to cancer, I suggest you sign up for the upcoming online video series "The Quest for the Cures".  You can watch the trailer for the series at the link below.  If you are intrigued by the trailer, you can submit your email address and then you can watch the series as it airs (one episode per day) starting October 13th.  Many doctors and researchers are interviewed as well as cancer survivors describing what worked for them.  I watched their previous series and found it informative.

                                          http://thetruthaboutcancer.com/fall_quest2.php?af=1587332

                                          My own approach has focused on achieving optimal health overall, first to see if it might be enough to kick my own immune system into action, but if it doesn't, then to be in the best shape possible to handle the drugs and their side-effects.  I have been blessed with a low tumor burden and slow disease so far.  Or maybe its slow because of the changes I've made.  No way to know for sure but I continue to do what I believe is right for me and my disease.

                                          Best of luck to you – Maggie

                                          DZnDef
                                          Participant

                                            Hello Nigel,

                                            I'm sorry to say that there is no one single Alternative treatment out there proven to cure melanoma or cancer in general.  Although you may find individual people that may swear they were cured by one treatment (and they may even be right) that same treatment does not work for many more.  Of course, the exact same thing can be said of the various drug treatments currently available.  We are unique and so are our cancers.  What works for one doesn't work for another (whether alternative, Ipi, PD1 or braf inhibitors).  So the goal is to find what will work for you.  This takes thoughtful evaluation and research, weighing the risks versus rewards and quality of life if that matters to you.

                                            If you are truly interested in learning more about Alternative treatments to cancer, I suggest you sign up for the upcoming online video series "The Quest for the Cures".  You can watch the trailer for the series at the link below.  If you are intrigued by the trailer, you can submit your email address and then you can watch the series as it airs (one episode per day) starting October 13th.  Many doctors and researchers are interviewed as well as cancer survivors describing what worked for them.  I watched their previous series and found it informative.

                                            http://thetruthaboutcancer.com/fall_quest2.php?af=1587332

                                            My own approach has focused on achieving optimal health overall, first to see if it might be enough to kick my own immune system into action, but if it doesn't, then to be in the best shape possible to handle the drugs and their side-effects.  I have been blessed with a low tumor burden and slow disease so far.  Or maybe its slow because of the changes I've made.  No way to know for sure but I continue to do what I believe is right for me and my disease.

                                            Best of luck to you – Maggie

                                            Ginger8888
                                            Participant

                                              Not sure about alternative meds but i do know that too much Vit D is not good for you, you should have your levels checked before you decide on taking any vit D suppliments..Mine was in the low normal range so my dr suggested i take a Vit D 3 pill daily..Good luck..I did Yervoy and it's working so far..

                                              Ginger8888
                                              Participant

                                                Not sure about alternative meds but i do know that too much Vit D is not good for you, you should have your levels checked before you decide on taking any vit D suppliments..Mine was in the low normal range so my dr suggested i take a Vit D 3 pill daily..Good luck..I did Yervoy and it's working so far..

                                                Ginger8888
                                                Participant

                                                  Not sure about alternative meds but i do know that too much Vit D is not good for you, you should have your levels checked before you decide on taking any vit D suppliments..Mine was in the low normal range so my dr suggested i take a Vit D 3 pill daily..Good luck..I did Yervoy and it's working so far..

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