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A pregnant mum with melanoma

Forums General Melanoma Community A pregnant mum with melanoma

  • Post
    luckymm
    Participant
      Hi, everyone

      I’m a 25 weeks pregnant mum with another 5 years old boy. I just got my biopsy result two days ago. It’s melanoma. I’m so shocked and scary. I can’t eat and sleep. I don’t know what to do. About the family, about the kids, about the treatment. Now, I’m waiting for the specialist appointment, If possible, please share your similar experience. I really need some encouragement. Thanks!

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    • Replies
        ed williams
        Participant
          Could you post a copy of biopsy report or write out what it stated, hard to help without any information as to depth of tumor etc.
            luckymm
            Participant
              Thanks for your reply.
              Here is my report. I have to type it for short.
              Thick:at least 1.2mm
              Ulceration: no
              Mitotic index: 1/mm2
              margins,peripheral and deep: both involved
              vascular invasion:absent
              perineural invasion:absent
              regression:absent
              stage:at least pT2a

              I have this mole in my stomach over 5 years. Never changed and feel nothing. I don’t know if it is spreading or something else. I can’t imagine to leave my kids alone.So scared…

            JudiAU
            Participant
              I’m sorry. I had my original 2B melanoma removed when my youngest was two. There were no real treatments at the time. Stage four was a death sentence. I was utterly terrified. But it is no longer a death sentence. There are so many treatments and more than likely it won’t progress. If it does lots of good advice in those boards.

              Get your skin regularly checked. Guard the skin of your children.

                luckymm
                Participant
                  Thanks for your reply. I’m so anxiety since I just got this bad news two days ago. Every time I saw my little boy, I can’t help to cry. I love my family so much.
                  ed williams
                  Participant
                    So early staging process is filled with unknown situations, but until the process is completed there is no sense in jumping the gun with worrying. aim at melanoma has a really good explanation of staging that I will give you. next step usually is wide excision and sentinel node biopsy of local draining lymph nodes to see if there has been any spread.The surgeon usually does this and the information from nodes along with earlier biopsy report are used to determine stage. good luck with the process and ask any questions that come to mind. where are you located? https://www.aimatmelanoma.org/stages-of-melanoma/
                    luckymm
                    Participant
                      Thanks for your reply. I’m so anxiety to think about spreading…I’m in Houston, so I will go to MD Anderson for a specialist. Waiting time is so hard. A lot of bad thoughts in my head that I can’t control it. Can I have another question, does insurance company will cover the fee of exam, surgery and medication, I think it should be very expensive journey…
                    ThinkingPositive
                    Participant
                      Hi Luckymm,
                      I can understand how the waiting is hard; there is a lot to learn about melanoma and what your treatment plan will be. From what I read, pT2a is Pathologic staging, which = clinical Stage 1B, so best case scenario is you stay at 1B after the wide excision https://www.ncbi.nlm.nih.gov/books/NBK572149/.

                      Insurance covered all of my exams, surgeries, and treatments.

                      Please post as you have questions or concerns, there are knowledgeable people on the forum and others who had melanoma while pregnant.
                      Wishing you the best outcome! Cindy

                        luckymm
                        Participant
                          Thanks so much for your reply, Cindy. I also pray for my stage is I. I don’t know if my report result now can predict a little bit good sign.( no invasion and no ulceration, not very high mitotic rate) And I’m worry about if it will spread very quickly during the waiting time. Particularly I’m pregnant,everything is unknown. I told myself I should be a brave mom, but it’s hard to control the bad thoughts. So sad…
                        Amanda
                        Participant
                          Hi luckymm,

                          I replied to your response on my original post but also wanted to reach out here. First let me say I’m so sorry you’re going though this. I have a 5 year old too and a new baby when I was diagnosed last month. Like you, I was absolutely sick with fear and couldn’t eat or sleep either. I can only imagine how even more distressing it is being currently pregnant. I hope reading the replies to your post has helped. Posting here back in March was one of the best things I did as it immediately helped me to see melanoma is a treatable disease which when I had originally Googled I got lots of scary information that is outdated. As I mentioned to you in the other post I found AIM at Melanoma to be extremely helpful and supportive. You can Google them and they have someone on staff there who can walk you through your pathology report to help you best understand it. I had no idea what I was reading when I got mine and couldn’t see the surgeon for a few days so knowing that was available really helped. I hope you’ll continue to post and update the forum on how you’re doing. I got so many kind responses here and one of the best pieces of advice I received was to try( as hard as it can be) to just enjoy those moments with your little one. I hope you have a healthy rest of your pregnancy. Please reach out anytime!

                          Hugs,
                          Amanda

                            luckymm
                            Participant
                              Hi, Amanda
                              Thanks for your reply. Your words make me feel better. I’m still trying my best to overcome this darkest moment in my life. I’m glad you are in the very early stage and hope my situation is not bad too. I know I should focus on the life and my family now but it’s hard not to think about the future. Read all the posts here gives me some courage. I will pray for everyone will win this fight in the last.Thanks again!
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