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7 year old with possible melanoma

Forums Pediatric & AYA Melanoma Community 7 year old with possible melanoma

  • Post
    Missawill74
    Participant

      I am the mother to two beautiful little girls.  My oldest, 7 year old, had a mole on her face that appeared two years ago.   I wasn't concerned because both my mother and myself have moles on this same cheek.  I just assumed she was going to have one as well. Over the last year I kept noticing it was appearing larger and the last six months it appeared pigmented and bumpy.  She complained of it itching her.   Her pediatrician didn't think it was anything but sent her to a dermatologist since it was on her face.   Within two minutes of our appointment the dermatologist said it needed to come off and be biopsied that it did indeed look like melana.  This totally took me back because I still felt it was like the one my mother her and self had.   They told me that if it was confirmed melanoma that they would send her to a oncologist and she would have to have surgery to get it completely removed because it was too deep for them to completely get in the office that day.  

      For the last two months she has battled a sore throat and severely swollen tonsils and after reading on melanoma and how it can spread to lymphnodes I'm wondering if this is all connected.  We won't know the result until next Friday but the doctor did tell me it did look very much like melanoma.  I  beside myself.  This is my baby.   I've always been adament about using sunscreen.   

      If they do call back with a melanoma diagnosis what questions should I be ready to ask?  What can I start doing to prepare for this fight?   I'm so scared.  I am a teacher and know not to believe everything you read. I know things are outdated online.   I feel like this is a good site to gain knowledge and arm myself with the right tools.   I just wish I could contain my nerves.   Any help would be greatly appreciated!

      thanks,

      Melissa

    Viewing 8 reply threads
    • Replies
        JerryfromFauq
        Participant

          http://www.huffingtonpost.com/jeff-tomczek/cancer-advice_b_1628266.html
          _______________________________
          http://www.melanoma.org/understand-melanoma/resource-library/videos-webinars
          _____________________________________

              Other  Good Melanoma sites:
          ——————
          Melanoma International Foundation  –  BB and Videos of Webinars
          https://www.z2systems.com/np/clients/mif/account.jsp
           

          JerryfromFauq
          Participant

            http://www.huffingtonpost.com/jeff-tomczek/cancer-advice_b_1628266.html
            _______________________________
            http://www.melanoma.org/understand-melanoma/resource-library/videos-webinars
            _____________________________________

                Other  Good Melanoma sites:
            ——————
            Melanoma International Foundation  –  BB and Videos of Webinars
            https://www.z2systems.com/np/clients/mif/account.jsp
             

            JerryfromFauq
            Participant

              http://www.huffingtonpost.com/jeff-tomczek/cancer-advice_b_1628266.html
              _______________________________
              http://www.melanoma.org/understand-melanoma/resource-library/videos-webinars
              _____________________________________

                  Other  Good Melanoma sites:
              ——————
              Melanoma International Foundation  –  BB and Videos of Webinars
              https://www.z2systems.com/np/clients/mif/account.jsp
               

              Janner
              Participant

                Second opinion on pathology – regardless of diagnosis.  I suggest UCSF.  Spitz Nevi (often found in children) can look identical to melanoma under the microscope.  Spitz Nevi are totally benign.  UCSF has done a lot of research on Spitz vs melanoma and I would send any pathology slides of my children to them for confirmation of the diagnosis.

                One step at a time.  Pediatric melanoma is extremely rare.  Just don't jump the gun and make things worse until you really know what you are dealing with.

                Janner

                Janner
                Participant

                  Second opinion on pathology – regardless of diagnosis.  I suggest UCSF.  Spitz Nevi (often found in children) can look identical to melanoma under the microscope.  Spitz Nevi are totally benign.  UCSF has done a lot of research on Spitz vs melanoma and I would send any pathology slides of my children to them for confirmation of the diagnosis.

                  One step at a time.  Pediatric melanoma is extremely rare.  Just don't jump the gun and make things worse until you really know what you are dealing with.

                  Janner

                  Janner
                  Participant

                    Second opinion on pathology – regardless of diagnosis.  I suggest UCSF.  Spitz Nevi (often found in children) can look identical to melanoma under the microscope.  Spitz Nevi are totally benign.  UCSF has done a lot of research on Spitz vs melanoma and I would send any pathology slides of my children to them for confirmation of the diagnosis.

                    One step at a time.  Pediatric melanoma is extremely rare.  Just don't jump the gun and make things worse until you really know what you are dealing with.

                    Janner

                      Missawill74
                      Participant

                        THANK YOU for your reply.  That was one thing that had concerned me was that I haven't found anything about it in a child her age.  I appreciate you taking time to reply.  

                        Missawill74
                        Participant

                          THANK YOU for your reply.  That was one thing that had concerned me was that I haven't found anything about it in a child her age.  I appreciate you taking time to reply.  

                          Missawill74
                          Participant

                            THANK YOU for your reply.  That was one thing that had concerned me was that I haven't found anything about it in a child her age.  I appreciate you taking time to reply.  

                            Patina
                            Participant

                              I agree with the other posters. You should get a second opinion, regardless of what the first report says. If you are in Southern California.  See:  Dr. Mike Wong at USC or Dr. Peter Bosaberg at The Angeles Clinic. 

                              From experience, we found that we did not have the entire picture on my Mother's diagnosis until we sought a 3rd opinion and that doctor looked at all of her scans. I can't stress the later enough.

                              On the chance that this is melanoma be sure that you are with a melanoma specialist and a brain scan is done immediately.  

                              Since your daughter is only 7, I hesitate to say this, but if it is melanoma her body will altered by any treatments and she could have issues in the future with fertility.  Before treatment, IF this is melanoma, you should talk to someone about how you could preserve her ability to have children without damanging her eggs. – Not something you want to hear I know. But something you should consider for her future.

                               

                              Patina
                              Participant

                                I agree with the other posters. You should get a second opinion, regardless of what the first report says. If you are in Southern California.  See:  Dr. Mike Wong at USC or Dr. Peter Bosaberg at The Angeles Clinic. 

                                From experience, we found that we did not have the entire picture on my Mother's diagnosis until we sought a 3rd opinion and that doctor looked at all of her scans. I can't stress the later enough.

                                On the chance that this is melanoma be sure that you are with a melanoma specialist and a brain scan is done immediately.  

                                Since your daughter is only 7, I hesitate to say this, but if it is melanoma her body will altered by any treatments and she could have issues in the future with fertility.  Before treatment, IF this is melanoma, you should talk to someone about how you could preserve her ability to have children without damanging her eggs. – Not something you want to hear I know. But something you should consider for her future.

                                 

                                Patina
                                Participant

                                  I agree with the other posters. You should get a second opinion, regardless of what the first report says. If you are in Southern California.  See:  Dr. Mike Wong at USC or Dr. Peter Bosaberg at The Angeles Clinic. 

                                  From experience, we found that we did not have the entire picture on my Mother's diagnosis until we sought a 3rd opinion and that doctor looked at all of her scans. I can't stress the later enough.

                                  On the chance that this is melanoma be sure that you are with a melanoma specialist and a brain scan is done immediately.  

                                  Since your daughter is only 7, I hesitate to say this, but if it is melanoma her body will altered by any treatments and she could have issues in the future with fertility.  Before treatment, IF this is melanoma, you should talk to someone about how you could preserve her ability to have children without damanging her eggs. – Not something you want to hear I know. But something you should consider for her future.

                                   

                                  POW
                                  Participant

                                    Janner gave you great advice. Melanoma in children is extremely rare–something like 10 cases a year in the whole country. The vast majority of the time the lesion is actually a Sptiz nevus; the two are hard to differentiate visually or even under a microscope. 

                                    Do contact Dr. Bastian as Janner suggested. You may have to send him the path report and perhaps some unstained slides or a tissue block so he can do some special testing. His contact info is:

                                    Boris C. Bastian, MD
                                    UCSF Cardiovascular Research Institute
                                    555 Mission Bay Blvd. South
                                    Room 252K, Box 3118
                                    San Francisco, CA 94158-9001
                                     
                                    Phone: 415-353-7550
                                     
                                    If it does turn out to be melanoma (unlikely as that is) you need to be aware that melanoma treatments intended to adults must be used very carefully in children. St. Jude's Children's Hospital had an article on pediatric melanoma last summer. You can read it here:  http://www.stjude.org/stjude/v/index.jsp?vgnextoid=3d517e1dc7b8f310VgnVCM100000290115acRCRD&vgnextchannel=a411b0cf6626f310VgnVCM100000290115acRCRD
                                     
                                    I understand how upset you must be right now but don't jump the gun. You have done everything exactly right so far and this is most likely to be a Spitz. Take a deep breath, calm down, and take things one step at a time. Keep us posted here as to how things progress.
                                     
                                    POW
                                    Participant

                                      Janner gave you great advice. Melanoma in children is extremely rare–something like 10 cases a year in the whole country. The vast majority of the time the lesion is actually a Sptiz nevus; the two are hard to differentiate visually or even under a microscope. 

                                      Do contact Dr. Bastian as Janner suggested. You may have to send him the path report and perhaps some unstained slides or a tissue block so he can do some special testing. His contact info is:

                                      Boris C. Bastian, MD
                                      UCSF Cardiovascular Research Institute
                                      555 Mission Bay Blvd. South
                                      Room 252K, Box 3118
                                      San Francisco, CA 94158-9001
                                       
                                      Phone: 415-353-7550
                                       
                                      If it does turn out to be melanoma (unlikely as that is) you need to be aware that melanoma treatments intended to adults must be used very carefully in children. St. Jude's Children's Hospital had an article on pediatric melanoma last summer. You can read it here:  http://www.stjude.org/stjude/v/index.jsp?vgnextoid=3d517e1dc7b8f310VgnVCM100000290115acRCRD&vgnextchannel=a411b0cf6626f310VgnVCM100000290115acRCRD
                                       
                                      I understand how upset you must be right now but don't jump the gun. You have done everything exactly right so far and this is most likely to be a Spitz. Take a deep breath, calm down, and take things one step at a time. Keep us posted here as to how things progress.
                                       
                                      POW
                                      Participant

                                        Janner gave you great advice. Melanoma in children is extremely rare–something like 10 cases a year in the whole country. The vast majority of the time the lesion is actually a Sptiz nevus; the two are hard to differentiate visually or even under a microscope. 

                                        Do contact Dr. Bastian as Janner suggested. You may have to send him the path report and perhaps some unstained slides or a tissue block so he can do some special testing. His contact info is:

                                        Boris C. Bastian, MD
                                        UCSF Cardiovascular Research Institute
                                        555 Mission Bay Blvd. South
                                        Room 252K, Box 3118
                                        San Francisco, CA 94158-9001
                                         
                                        Phone: 415-353-7550
                                         
                                        If it does turn out to be melanoma (unlikely as that is) you need to be aware that melanoma treatments intended to adults must be used very carefully in children. St. Jude's Children's Hospital had an article on pediatric melanoma last summer. You can read it here:  http://www.stjude.org/stjude/v/index.jsp?vgnextoid=3d517e1dc7b8f310VgnVCM100000290115acRCRD&vgnextchannel=a411b0cf6626f310VgnVCM100000290115acRCRD
                                         
                                        I understand how upset you must be right now but don't jump the gun. You have done everything exactly right so far and this is most likely to be a Spitz. Take a deep breath, calm down, and take things one step at a time. Keep us posted here as to how things progress.
                                         
                                        Missawill74
                                        Participant

                                          Thank so much for all your replies.   I greatly appreciate all your help and input.  

                                           

                                          I am in northeast Tennessee.   

                                          Missawill74
                                          Participant

                                            Thank so much for all your replies.   I greatly appreciate all your help and input.  

                                             

                                            I am in northeast Tennessee.   

                                            Missawill74
                                            Participant

                                              Thank so much for all your replies.   I greatly appreciate all your help and input.  

                                               

                                              I am in northeast Tennessee.   

                                              Missawill74
                                              Participant

                                                Thought I would update you that my daughters pathology can back compound Nevus – no cancer!  Praise The Lord!

                                                thank you all for your help, your replies, support, and sharing your knowledge.  You helped me get prepared.  I will continue to pray for each of you. 

                                                One thing for sure I've learned so much about this horrible disease.   My life will never be the same.  

                                                Thanks again!!!

                                                Missawill74
                                                Participant

                                                  Thought I would update you that my daughters pathology can back compound Nevus – no cancer!  Praise The Lord!

                                                  thank you all for your help, your replies, support, and sharing your knowledge.  You helped me get prepared.  I will continue to pray for each of you. 

                                                  One thing for sure I've learned so much about this horrible disease.   My life will never be the same.  

                                                  Thanks again!!!

                                                  Missawill74
                                                  Participant

                                                    Thought I would update you that my daughters pathology can back compound Nevus – no cancer!  Praise The Lord!

                                                    thank you all for your help, your replies, support, and sharing your knowledge.  You helped me get prepared.  I will continue to pray for each of you. 

                                                    One thing for sure I've learned so much about this horrible disease.   My life will never be the same.  

                                                    Thanks again!!!

                                                    MoCedar
                                                    Participant

                                                      Melissa, that is such wonderful news! Thanks for the update.

                                                      MoCedar
                                                      Participant

                                                        Melissa, that is such wonderful news! Thanks for the update.

                                                        MoCedar
                                                        Participant

                                                          Melissa, that is such wonderful news! Thanks for the update.

                                                          JerryfromFauq
                                                          Participant

                                                            Very HAPPY for You both!  I  am glad you took time to learn.  While it is fairly rare, it is on the rise.  I am not scared of the sun, but worry about my wife who can get a sunburn when in the sun for 15 minutes.  BE vigilant, prevent sunburns.  Live and enjoy life!

                                                            JerryfromFauq
                                                            Participant

                                                              Very HAPPY for You both!  I  am glad you took time to learn.  While it is fairly rare, it is on the rise.  I am not scared of the sun, but worry about my wife who can get a sunburn when in the sun for 15 minutes.  BE vigilant, prevent sunburns.  Live and enjoy life!

                                                              JerryfromFauq
                                                              Participant

                                                                Very HAPPY for You both!  I  am glad you took time to learn.  While it is fairly rare, it is on the rise.  I am not scared of the sun, but worry about my wife who can get a sunburn when in the sun for 15 minutes.  BE vigilant, prevent sunburns.  Live and enjoy life!

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