Thank you for sharing. I was diagnosed stage 1b at 40 in 2016. Stage 3b 1/12/24. 5 months braf/mek. Preadjuct. Grade 3 Adverse Event. Severe Colitis. Two month delay in between treatment and lumpectomy, Almost complete responder. 9 months steroids. 6 colonoscopies and dialations. 6 hospitalizations. 6 months enyvio which induced severe chronic back pain. Finally feel good in 8/23. 11/23 local relapse 3 more lymphnodes removed in groin. Increasing back pain. Start Gapepbtin. 4/24 severe adverse event to gapepentin which creates accute stiff person syndrome, resolved with abrupt use of Gabelentin. 7/24 in transit tumor near scar from lymphdecyomy. All local reccurances so still stage 3b. Spent this summer on ipi/nivo preadjunct. Six weeks to the day of first infusion. Rapidly spreading rash by 1:30 am fever, labored breathing, rash all over body, admitted inpatient at Moffitt with protectial DReSS syndrome not classified severe side effects. Jusr got of steroids. Surgery postponed. Was planned for 9/6. Rescheduled for this past Thursday. Saw surgeon and oncologist derm on Wednesday. Thursday Helene hits Tampa! My hometown hit, so much suffering and distruction. Surgery now to remove tumor which has shrunk but really need a break. Thank you for HOPE! I pray for hope, courage and grace every night. I am 49 and hope to be on your side of “the statistics!” Thanks for the reminder!
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