2 yrs, brain mets
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2 yrs, brain mets

› Forums › General Melanoma Community › 2 yrs, brain mets

  • Post
    • March 18, 2014 at 12:31 pm
    kellygrl
    Participant
    Don’t lose hope!! My husband is gong on 2 yrs with 13 brain lesions. He had WBR when first diagnosed, didn’t week to respond, did great on Zelboraf for 14 mos, 8/13 had gamma knife on 5 tumors (they all responded), 11/13 on dabrafenib/Trametinib combo, 2/14 gamma on 4 more tumors and yesterday insurance just approved Yervoy in conjunction with combo! Dabradenib will shrink quick, Yervoy will give him the miles!! He is feeling great! Worst part about this whole ordeal has been steroids since 8/13 ugh….. this time the taper is going well, few rough patches in winter due to swelling, but so far so good this time!

    Hang in there and STAY STRONG!
    Kelly

Viewing 11 reply threads
  • Replies
      • March 18, 2014 at 12:36 pm
      hbecker
      Participant

      Kelly, love your Positive Mental Attitude!! Thanks for posting – will be thinking of you.

      ~Hazel

      • March 18, 2014 at 12:36 pm
      hbecker
      Participant

      Kelly, love your Positive Mental Attitude!! Thanks for posting – will be thinking of you.

      ~Hazel

      • March 18, 2014 at 12:36 pm
      hbecker
      Participant

      Kelly, love your Positive Mental Attitude!! Thanks for posting – will be thinking of you.

      ~Hazel

        • March 22, 2014 at 10:57 am
        kellygrl
        Participant

        Thanks Hazel! smiley

        • March 22, 2014 at 10:57 am
        kellygrl
        Participant

        Thanks Hazel! smiley

        • March 22, 2014 at 10:57 am
        kellygrl
        Participant

        Thanks Hazel! smiley

        • March 22, 2014 at 10:59 am
        kellygrl
        Participant

        Congrats on your husband NED!

        • March 22, 2014 at 10:59 am
        kellygrl
        Participant

        Congrats on your husband NED!

        • March 22, 2014 at 10:59 am
        kellygrl
        Participant

        Congrats on your husband NED!

      • March 18, 2014 at 1:26 pm
      Bubbles
      Participant

      That's great, Kelly!! Thanks for the update and so glad that things are looking up. I know this has been very difficult for you both. Glad too for the approval of the combo!! Wishing you both my best! Celeste

      • March 18, 2014 at 1:26 pm
      Bubbles
      Participant

      That's great, Kelly!! Thanks for the update and so glad that things are looking up. I know this has been very difficult for you both. Glad too for the approval of the combo!! Wishing you both my best! Celeste

      • March 18, 2014 at 1:26 pm
      Bubbles
      Participant

      That's great, Kelly!! Thanks for the update and so glad that things are looking up. I know this has been very difficult for you both. Glad too for the approval of the combo!! Wishing you both my best! Celeste

        • March 22, 2014 at 11:02 am
        kellygrl
        Participant

        Thanks Celeste! Congrats on your NED! Hope to join that club someday…..  he has beaten many odds so far… laugh

        • March 22, 2014 at 11:02 am
        kellygrl
        Participant

        Thanks Celeste! Congrats on your NED! Hope to join that club someday…..  he has beaten many odds so far… laugh

        • March 22, 2014 at 11:02 am
        kellygrl
        Participant

        Thanks Celeste! Congrats on your NED! Hope to join that club someday…..  he has beaten many odds so far… laugh

      • March 18, 2014 at 5:58 pm
      Brendan
      Participant

      Great news, Kelly.  Thanks for the update.  I agree about the steroids; they were rough on me as well.  Good luck to your husband on the combo.

      Brendan

        • March 22, 2014 at 11:11 am
        kellygrl
        Participant

        Poor guy worked out, was in great shape…. little skinny on Zelboraf…  then these evil steroids!! YES we are happy he is doing well, but he looks in the mirror and doesn't see himself, brings him down.  Fingers crossed this taper continues to go well and now that he is not an eating machine… lol ….  can get him back to a healthy diet!  Best of luck to you as well Brendan! 

        • March 22, 2014 at 11:11 am
        kellygrl
        Participant

        Poor guy worked out, was in great shape…. little skinny on Zelboraf…  then these evil steroids!! YES we are happy he is doing well, but he looks in the mirror and doesn't see himself, brings him down.  Fingers crossed this taper continues to go well and now that he is not an eating machine… lol ….  can get him back to a healthy diet!  Best of luck to you as well Brendan! 

        • March 22, 2014 at 11:11 am
        kellygrl
        Participant

        Poor guy worked out, was in great shape…. little skinny on Zelboraf…  then these evil steroids!! YES we are happy he is doing well, but he looks in the mirror and doesn't see himself, brings him down.  Fingers crossed this taper continues to go well and now that he is not an eating machine… lol ….  can get him back to a healthy diet!  Best of luck to you as well Brendan! 

      • March 18, 2014 at 5:58 pm
      Brendan
      Participant

      Great news, Kelly.  Thanks for the update.  I agree about the steroids; they were rough on me as well.  Good luck to your husband on the combo.

      Brendan

      • March 18, 2014 at 5:58 pm
      Brendan
      Participant

      Great news, Kelly.  Thanks for the update.  I agree about the steroids; they were rough on me as well.  Good luck to your husband on the combo.

      Brendan

      • March 18, 2014 at 9:40 pm
      Carole K
      Participant

      HI Kelly,

      It is wonderful to hear a success story with all your husband has been through.  I am currently 12 yr. survivor after brain met. I was once very active here and trying to get the chat room going for all of you to meet and chat. It is a wonderful support.  Congratulations to your husband and pleae tell him I send him healing hugs and positive thoughts.  If I can be of any help please know I am here.  NEVER GIVE UP HOPE AND NEVER LOOK BACK. 

      Love and Light

      Carole

        • March 22, 2014 at 11:15 am
        kellygrl
        Participant

        That is amazing Carole!! Congrats to you! I am not active on here, I just check in once in awhile to see what's out there… etc..    I will send my husband your msg, thank you. 🙂 

        • March 22, 2014 at 11:15 am
        kellygrl
        Participant

        That is amazing Carole!! Congrats to you! I am not active on here, I just check in once in awhile to see what's out there… etc..    I will send my husband your msg, thank you. 🙂 

        • March 22, 2014 at 11:15 am
        kellygrl
        Participant

        That is amazing Carole!! Congrats to you! I am not active on here, I just check in once in awhile to see what's out there… etc..    I will send my husband your msg, thank you. 🙂 

      • March 18, 2014 at 9:40 pm
      Carole K
      Participant

      HI Kelly,

      It is wonderful to hear a success story with all your husband has been through.  I am currently 12 yr. survivor after brain met. I was once very active here and trying to get the chat room going for all of you to meet and chat. It is a wonderful support.  Congratulations to your husband and pleae tell him I send him healing hugs and positive thoughts.  If I can be of any help please know I am here.  NEVER GIVE UP HOPE AND NEVER LOOK BACK. 

      Love and Light

      Carole

      • March 18, 2014 at 9:40 pm
      Carole K
      Participant

      HI Kelly,

      It is wonderful to hear a success story with all your husband has been through.  I am currently 12 yr. survivor after brain met. I was once very active here and trying to get the chat room going for all of you to meet and chat. It is a wonderful support.  Congratulations to your husband and pleae tell him I send him healing hugs and positive thoughts.  If I can be of any help please know I am here.  NEVER GIVE UP HOPE AND NEVER LOOK BACK. 

      Love and Light

      Carole

Viewing 11 reply threads
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