The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

1st PET Scan and MRI after IPI for my wife

Forums General Melanoma Community 1st PET Scan and MRI after IPI for my wife

  • This topic is empty.
  • Post
    5374brian
    Participant

      MRI shows 6 more spots. The original 4mm spot was treated with radiation and showed raditation had done its job. The PET scan showed very little to no results so far on the original tumors. The PET scan showed more tumors in several areas under the skin which we noticed. Did not show any addtional on organs. The onc and raditation specialist meet and decided to treat the brain with WBR. Concerns were that before IPI might help the brain that she would get effects from the spots growing in the brain area. The WBR is scedule to starat the 22nd for 10 days.

      MRI shows 6 more spots. The original 4mm spot was treated with radiation and showed raditation had done its job. The PET scan showed very little to no results so far on the original tumors. The PET scan showed more tumors in several areas under the skin which we noticed. Did not show any addtional on organs. The onc and raditation specialist meet and decided to treat the brain with WBR. Concerns were that before IPI might help the brain that she would get effects from the spots growing in the brain area. The WBR is scedule to starat the 22nd for 10 days. Not wanting to stop a systemic treatment they are going to start a small dose of Temodar during the WBR. The onc states next step is the anti PD-1 once completed with WBR. The doctors treating my wife at MOffit are Dr. Kudchadkar and Dr. Rao. She still is much more tired and/or fatigued during the day. She is also having sever gas which the doctor says is probably a side effect of the IPI. Any thoughts or concerns with the WBR and Temodar? Once you feel comfortable with your team of doctors, I guess you must always trust their plans of attack. 

    • You must be logged in to reply to this topic.
    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

    Popular Topics