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1 year NED!
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1 year NED!

› Forums › General Melanoma Community › 1 year NED!

  • Post
    • May 9, 2014 at 7:10 pm
    aquamak
    Participant

      I am officially 1 year NED today!  I know it is a small step but it is a big one for me.  One year ago I was in surgey at MSKCC having a neck dissection and parotidectomy.  I chose watch and wait and participated in a Phase 1 Dendritic Cell vaccine at MSKCC.  I have been scanned evry 3 months with the exception of my anniversary this month (oncologist does not want to do scans this time as no symptoms and last 2 scans were clean).  Shooting now for 18 months and longer!

    Viewing 5 reply threads
    • Replies
        • May 9, 2014 at 7:24 pm
        gaby
        Participant
          great news! you are doing very well. What stage were you diagnosed? 
          regards
            • May 9, 2014 at 9:17 pm
            aquamak
            Participant

              I was diagnosed at Stage 1B in September 2012 and had a WLE and SNLB (all clear)  I quickly progressed to Stage 3C by April 2013 after finding 1 enlarged neck lymph node.  Neck dissection and parotidectomy revealed 1 lymph node with macrometastsis and 2 small in-transit mets right outside the WLE scar area.  It is a sneaky b#@$*&d!

              • May 9, 2014 at 9:17 pm
              aquamak
              Participant

                I was diagnosed at Stage 1B in September 2012 and had a WLE and SNLB (all clear)  I quickly progressed to Stage 3C by April 2013 after finding 1 enlarged neck lymph node.  Neck dissection and parotidectomy revealed 1 lymph node with macrometastsis and 2 small in-transit mets right outside the WLE scar area.  It is a sneaky b#@$*&d!

                • May 9, 2014 at 9:17 pm
                aquamak
                Participant

                  I was diagnosed at Stage 1B in September 2012 and had a WLE and SNLB (all clear)  I quickly progressed to Stage 3C by April 2013 after finding 1 enlarged neck lymph node.  Neck dissection and parotidectomy revealed 1 lymph node with macrometastsis and 2 small in-transit mets right outside the WLE scar area.  It is a sneaky b#@$*&d!

                • May 9, 2014 at 7:24 pm
                gaby
                Participant
                  great news! you are doing very well. What stage were you diagnosed? 
                  regards
                  • May 9, 2014 at 7:24 pm
                  gaby
                  Participant
                    great news! you are doing very well. What stage were you diagnosed? 
                    regards
                    • May 10, 2014 at 12:15 am
                    SABKLYN
                    Participant

                      Great news!  I was diagnosed stage 3a in November of 2011 and was also treated at MSKCC.  My surgeon is Daniel Coit and my Oncologist is Richard Carvajal.  I was the first patient of that same study Dr. Young  and Dr. Chung administered the vaccines.  I am really pleased to be NED 2 1/2 years later.  I know with this illness I will always need to be vigilant!  I truly hope you continue to receive this type of news moving forward!!

                      • May 10, 2014 at 12:15 am
                      SABKLYN
                      Participant

                        Great news!  I was diagnosed stage 3a in November of 2011 and was also treated at MSKCC.  My surgeon is Daniel Coit and my Oncologist is Richard Carvajal.  I was the first patient of that same study Dr. Young  and Dr. Chung administered the vaccines.  I am really pleased to be NED 2 1/2 years later.  I know with this illness I will always need to be vigilant!  I truly hope you continue to receive this type of news moving forward!!

                        • May 10, 2014 at 12:15 am
                        SABKLYN
                        Participant

                          Great news!  I was diagnosed stage 3a in November of 2011 and was also treated at MSKCC.  My surgeon is Daniel Coit and my Oncologist is Richard Carvajal.  I was the first patient of that same study Dr. Young  and Dr. Chung administered the vaccines.  I am really pleased to be NED 2 1/2 years later.  I know with this illness I will always need to be vigilant!  I truly hope you continue to receive this type of news moving forward!!

                      Viewing 5 reply threads
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