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Re: Starting IPI/Temodar trial at MDA

Forums General Melanoma Community Starting IPI/Temodar trial at MDA Re: Starting IPI/Temodar trial at MDA

    TAC
    Participant

      Glad you are in the trial. The travel back and forth can be difficult and expensive. While there and if you'll contact the Social Services office at MDA, they offer the equivalent of Angel Flight (they use another name) where private pilots will fly you back and forth to Houston from Atlanta at no cost to you. Obviously you have to schedule well in advance of your trip so that pilots and planes can be scheduled. I have a friend who goes to MDA and she is able rarely to get onto the corporate plane to go there so I gave her the info to check at MDA for their Angel Flight travel. Best wishes.

      I have another friend who is in the IPI trial in South Carolina, just over the Georgia line at Seneca. She only receives and infusion of IPI every 3 weeks no Temodar. Don't know if this would be an option for you to go there to receive your infusion and then just take your Temodar pills. Would save you some trips to MDA except for critical meetings with your docs there.

       

      Best wishes.

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