Turn left, no, turn right!
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Turn left, no, turn right!

› Forums › General Melanoma Community › Turn left, no, turn right!

  • Post
    • January 30, 2015 at 5:35 am
    _Paul_
    Participant

    Just met with my oncologist today and I am going to start Keytruda on Tuesday. I was originally thinking to go with TIL if I showed progression from the Yervoy/radiation trial (RAD-VAX) I recently completed. However I just had a PET scan as part of the trial protocol, and it showed a new tumor at the back of my left shoulder blade and something weird lighting up between the toes of my right foot.

    It will be weeks yet before I even know if the SCCA can harvest seed TIL from a large tumor that was growing inside my gallbladder which was removed last week.

    My oncologist said my disease burden is low right now and since anti-PD-1 seems to be more successful when the burden is low, this seems to be the opportune time to give it a whirl. In a few weeks if the TIL can be grown, SCCA will store it cryogenically. So that will become my new plan B.

    Like I have heard many people say here, now that I have made a decision (with the help of my oncologist) I need to stick with it and not look back.

    Gotta say though, it feels like setting sail on a spaceship with destination unknown! But then again, I always did want to visit space… 😎

    – Paul.

Viewing 5 reply threads
  • Replies
      • January 30, 2015 at 7:48 am
      JustMeInCA
      Participant

      I think that was a wise decision, as you seem to be at the perfect point to start a PD-1. I hope it works wonders!

      • January 30, 2015 at 7:48 am
      JustMeInCA
      Participant

      I think that was a wise decision, as you seem to be at the perfect point to start a PD-1. I hope it works wonders!

      • January 30, 2015 at 7:48 am
      JustMeInCA
      Participant

      I think that was a wise decision, as you seem to be at the perfect point to start a PD-1. I hope it works wonders!

        • January 30, 2015 at 10:42 am
        Jubes
        Participant

        So far my tumours are shrinking on keytruda and I hope all the best for you with yours!

        jubes

        • January 30, 2015 at 10:42 am
        Jubes
        Participant

        So far my tumours are shrinking on keytruda and I hope all the best for you with yours!

        jubes

        • January 30, 2015 at 10:42 am
        Jubes
        Participant

        So far my tumours are shrinking on keytruda and I hope all the best for you with yours!

        jubes

        • January 30, 2015 at 2:10 pm
        _Paul_
        Participant

        Thanks Jubes, sounds good to me!

        • January 30, 2015 at 2:10 pm
        _Paul_
        Participant

        Thanks Jubes, sounds good to me!

        • January 30, 2015 at 2:10 pm
        _Paul_
        Participant

        Thanks Jubes, sounds good to me!

        • January 30, 2015 at 2:09 pm
        _Paul_
        Participant

        Thanks Elaine. I hope so to!

        • January 30, 2015 at 2:09 pm
        _Paul_
        Participant

        Thanks Elaine. I hope so to!

        • January 30, 2015 at 2:09 pm
        _Paul_
        Participant

        Thanks Elaine. I hope so to!

      • January 30, 2015 at 1:37 pm
      Bubbles
      Participant

      Sorry, Paul.  Melanoma is like a box of chocolates….!!!!  But, Keytruda just now really does sound like a good treatment presto-chango to me.  Many melanoma big dogs (and research is proving them out) posited a couple of years ago that an anti-PD1 and ipi combo…or sequential administration…could provide better results than the products alone.  You are just sequencing!!! I know changing paths gets tiresome.  But, I really hope this spaceship takes you where you need to go!  celeste

      • January 30, 2015 at 1:37 pm
      Bubbles
      Participant

      Sorry, Paul.  Melanoma is like a box of chocolates….!!!!  But, Keytruda just now really does sound like a good treatment presto-chango to me.  Many melanoma big dogs (and research is proving them out) posited a couple of years ago that an anti-PD1 and ipi combo…or sequential administration…could provide better results than the products alone.  You are just sequencing!!! I know changing paths gets tiresome.  But, I really hope this spaceship takes you where you need to go!  celeste

      • January 30, 2015 at 1:37 pm
      Bubbles
      Participant

      Sorry, Paul.  Melanoma is like a box of chocolates….!!!!  But, Keytruda just now really does sound like a good treatment presto-chango to me.  Many melanoma big dogs (and research is proving them out) posited a couple of years ago that an anti-PD1 and ipi combo…or sequential administration…could provide better results than the products alone.  You are just sequencing!!! I know changing paths gets tiresome.  But, I really hope this spaceship takes you where you need to go!  celeste

        • January 30, 2015 at 2:11 pm
        _Paul_
        Participant

        Thanks Celeste! I guess I am beginning to understand why people use the term "journey".

        • January 30, 2015 at 2:11 pm
        _Paul_
        Participant

        Thanks Celeste! I guess I am beginning to understand why people use the term "journey".

        • January 30, 2015 at 2:11 pm
        _Paul_
        Participant

        Thanks Celeste! I guess I am beginning to understand why people use the term "journey".

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