Missing an infusion
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Missing an infusion

› Forums › General Melanoma Community › Missing an infusion

  • Post
    • July 1, 2014 at 7:01 pm
    SBeattie
    Participant

    I erroneously scheduled an out of town vacation over a day when I would normally get my every two week infusion of well, we're not sure, in trail of ipi x4 plus nivo x4 then every two weeks; nivo only; ipi only followed by placebo…had to miss one infusion in April due to endocrinopathy side effect…trial folk say postponing upcoming infusion by one week won't affect response…anyone out there have any input? would you change vacation dates? scans have shown shrinkage in lung mets; fortunately no other organs involved…thanks so much to ALL OF YOU!!!

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  • Replies
      • July 2, 2014 at 1:47 am
      BrianP
      Participant

      I know how you feel.  It's a tough call.  I can tell you that my trial which involves Nivo every two weeks has recently loosened some of the restrictions.  I think you can now delay an infusion up to a week where before you had to have the infusion within +/- 3 days of the scheduled date.  The speculation for the change was that it looked like 3 week intervals between nivo infusions may be as good if not better than 2 weeks.  Again that was the speculation, I haven't seen that backed by reports. 

        • July 2, 2014 at 1:22 pm
        SBeattie
        Participant

        Thankyou Brian, as always, your words are comforting! That's interesting, the speculation about intervals between infusions…work better? on the immune system? Keep an eye on that specuation! I may change itinerary so I don't have to 'live' with this added anxiety…hope you are doing well with your own status…and again, thank you so much for your comment…

        • July 2, 2014 at 1:22 pm
        SBeattie
        Participant

        Thankyou Brian, as always, your words are comforting! That's interesting, the speculation about intervals between infusions…work better? on the immune system? Keep an eye on that specuation! I may change itinerary so I don't have to 'live' with this added anxiety…hope you are doing well with your own status…and again, thank you so much for your comment…

        • July 2, 2014 at 1:22 pm
        SBeattie
        Participant

        Thankyou Brian, as always, your words are comforting! That's interesting, the speculation about intervals between infusions…work better? on the immune system? Keep an eye on that specuation! I may change itinerary so I don't have to 'live' with this added anxiety…hope you are doing well with your own status…and again, thank you so much for your comment…

      • July 2, 2014 at 1:47 am
      BrianP
      Participant

      I know how you feel.  It's a tough call.  I can tell you that my trial which involves Nivo every two weeks has recently loosened some of the restrictions.  I think you can now delay an infusion up to a week where before you had to have the infusion within +/- 3 days of the scheduled date.  The speculation for the change was that it looked like 3 week intervals between nivo infusions may be as good if not better than 2 weeks.  Again that was the speculation, I haven't seen that backed by reports. 

      • July 2, 2014 at 1:47 am
      BrianP
      Participant

      I know how you feel.  It's a tough call.  I can tell you that my trial which involves Nivo every two weeks has recently loosened some of the restrictions.  I think you can now delay an infusion up to a week where before you had to have the infusion within +/- 3 days of the scheduled date.  The speculation for the change was that it looked like 3 week intervals between nivo infusions may be as good if not better than 2 weeks.  Again that was the speculation, I haven't seen that backed by reports. 

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