Re: Trials for patients who are NED
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Re: Trials for patients who are NED

› Forums › General Melanoma Community › Trials for patients who are NED › Re: Trials for patients who are NED

    • June 22, 2012 at 2:27 am
    Charlie S
    Participant

    So, you want to be treated for a disease that has no clinical evidence that it exists in your body by a clinical trial that does not exist?

    Might I suggest, that what you are experiencing is more of a coping skill rather than a scientific premise.  After seven recurrences over 25 years,,, there is a frame of reference for my comments.

    You take your chance based upon your choice for a particular treatment with active, measureable and identifiable disease…  If it works to your benifit and disease does vanish, it is a natural inclination to keep it that way..

    Now, after your success, , you are wanting something that does not exist?

    You have done something and it worked NOW , you want more?

    Great idea, but unrealistic.  Just why is it that you are not satisfied when many others cannot approach your level of success?

    Melanoma comes with no warranty

    You want one and think everybody else should have one.  

    Not.

    Charlie S

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