Questions for the Oncologist
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Questions for the Oncologist

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  • Post
    • June 28, 2012 at 12:20 am
    Sharona19
    Participant
    I will see the Oncologist for the first time since diagnosis, WLE with full thinkness skin graft and SLNB of invasive nodular melanoma of the left foot. So far, margins are clear as are the nodes and I want to as aggressive as possible in keeping any recurrence at bay. Can anyone offer suggestions on questions I should ask about a treatment plan? Are there any Stage II folks receiving treatment? I would appreciate any advice or stories from anyone so I can make the best, most informed decision for my treatment.

    Thank you in advance for any help.

    Sharon

    I will see the Oncologist for the first time since diagnosis, WLE with full thinkness skin graft and SLNB of invasive nodular melanoma of the left foot. So far, margins are clear as are the nodes and I want to as aggressive as possible in keeping any recurrence at bay. Can anyone offer suggestions on questions I should ask about a treatment plan? Are there any Stage II folks receiving treatment? I would appreciate any advice or stories from anyone so I can make the best, most informed decision for my treatment.

    Thank you in advance for any help.

    Sharon

Viewing 5 reply threads
  • Replies
      • June 28, 2012 at 1:47 am
      washoegal
      Participant

      There really still isn't much approved treatment for people that are currently NED (No Evidence of Deseise) except for Yervoy (aka Ippi).  Do a search under those two and you will find plenty of discussion.  It's a personal decision as whether or not to go this route. 

      Also discuss with him any questions you have regarding possible lyphedema, if you are having the slightest bit of inflammation.  Since you did not have all your lymph nodes removed this may never be an issue.

       

      Good Luck and lets us know how your visit goes,

      Mary

      Stage 3

        • June 28, 2012 at 4:42 am
        LynnLuc
        Participant

        There are several trials now for NED…look on cancer.gov for "resected melanoma". I was surgically resected and I am in a Anti PD 1 trial at Moffitt in Tampa. I am stage 4 and been NED for 2 years.

        • June 28, 2012 at 4:42 am
        LynnLuc
        Participant

        There are several trials now for NED…look on cancer.gov for "resected melanoma". I was surgically resected and I am in a Anti PD 1 trial at Moffitt in Tampa. I am stage 4 and been NED for 2 years.

        • June 28, 2012 at 4:42 am
        LynnLuc
        Participant

        There are several trials now for NED…look on cancer.gov for "resected melanoma". I was surgically resected and I am in a Anti PD 1 trial at Moffitt in Tampa. I am stage 4 and been NED for 2 years.

      • June 28, 2012 at 1:47 am
      washoegal
      Participant

      There really still isn't much approved treatment for people that are currently NED (No Evidence of Deseise) except for Yervoy (aka Ippi).  Do a search under those two and you will find plenty of discussion.  It's a personal decision as whether or not to go this route. 

      Also discuss with him any questions you have regarding possible lyphedema, if you are having the slightest bit of inflammation.  Since you did not have all your lymph nodes removed this may never be an issue.

       

      Good Luck and lets us know how your visit goes,

      Mary

      Stage 3

      • June 28, 2012 at 1:47 am
      washoegal
      Participant

      There really still isn't much approved treatment for people that are currently NED (No Evidence of Deseise) except for Yervoy (aka Ippi).  Do a search under those two and you will find plenty of discussion.  It's a personal decision as whether or not to go this route. 

      Also discuss with him any questions you have regarding possible lyphedema, if you are having the slightest bit of inflammation.  Since you did not have all your lymph nodes removed this may never be an issue.

       

      Good Luck and lets us know how your visit goes,

      Mary

      Stage 3

      • June 28, 2012 at 2:04 am
      washoegal
      Participant

      OOOPS!  Brain Dead.  Meant to say do a search here for Interferon.  Yervoy is a drug approved only for Stage 4.

      Mary

      • June 28, 2012 at 2:04 am
      washoegal
      Participant

      OOOPS!  Brain Dead.  Meant to say do a search here for Interferon.  Yervoy is a drug approved only for Stage 4.

      Mary

        • June 28, 2012 at 3:44 am
        Sharona19
        Participant
        Thanks for your reply. The only info I have found is on interferon and it’s controversial benefits.

        Also, I see you live in Washoe Valley. I grew up in Reno and went to Wooster High : )

        • June 28, 2012 at 3:44 am
        Sharona19
        Participant
        Thanks for your reply. The only info I have found is on interferon and it’s controversial benefits.

        Also, I see you live in Washoe Valley. I grew up in Reno and went to Wooster High : )

        • June 28, 2012 at 3:44 am
        Sharona19
        Participant
        Thanks for your reply. The only info I have found is on interferon and it’s controversial benefits.

        Also, I see you live in Washoe Valley. I grew up in Reno and went to Wooster High : )

      • June 28, 2012 at 2:04 am
      washoegal
      Participant

      OOOPS!  Brain Dead.  Meant to say do a search here for Interferon.  Yervoy is a drug approved only for Stage 4.

      Mary

Viewing 5 reply threads

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