I am new to this board. My husband is stage IV with a met on muscle around his small int. He was diagnosed in Jan and was randomized into the TIL study at the NIH. So far, they can't tell if the tumor is growing slowly or just changing shape. We are deciding this week the next step to take- likely ipi. Roy was feeling pretty good after release from hospital. Two months later, he feels lousy. He went from a rather normal existence with an afternoon doze to flat on his back on the couch most of the day. Nothing seems to cheer him up. D
I am new to this board. My husband is stage IV with a met on muscle around his small int. He was diagnosed in Jan and was randomized into the TIL study at the NIH. So far, they can't tell if the tumor is growing slowly or just changing shape. We are deciding this week the next step to take- likely ipi. Roy was feeling pretty good after release from hospital. Two months later, he feels lousy. He went from a rather normal existence with an afternoon doze to flat on his back on the couch most of the day. Nothing seems to cheer him up. Docs said to expect him to go backwards, but we didn't expect it to be this terrible. I've tried to be supportive, but find myself acting impatient and "witch-like" sometimes. Is this the proper forum to vent about all of this, or is there a similar board for spouses/caregivers? I love reading posts on this board. Thank you for sharing all of your stories. They all give inspiration in one way or another. Thank you all!
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