Good News
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Good News

› Forums › General Melanoma Community › Good News

  • Post
    • April 19, 2012 at 5:51 pm
    s Mom
    Participant

    Brain MRI is clear (last one was February 3rd)!!!  Jeff will have body scans at the end of this month, and we are hoping to see some shrinkage of those liver and lung tumors.  RELIEF!!!!

    Bridgette (Jeff's Mom)

    Brain MRI is clear (last one was February 3rd)!!!  Jeff will have body scans at the end of this month, and we are hoping to see some shrinkage of those liver and lung tumors.  RELIEF!!!!

    Bridgette (Jeff's Mom)

Viewing 29 reply threads
  • Replies
      • April 19, 2012 at 7:10 pm
      hope4cure1
      Participant

      Awesome!!!   My best to your family 🙂

      Hope

        • April 19, 2012 at 8:17 pm
        s Mom
        Participant

        Hi Hope,

        Thanks for the kind words – we are just so happy to finally get some good news (it's been pretty scary).

        I read your profile and see that your doctor is Dr. Omid.  What do you think of him?  Jeff is going to LA to talk to him in May (2nd opinion – consultation).  Dr. Omid seems to be on the cutting edge of treatment options and has a lot of trials available.  Any input, opinions, etc. that you could share with us would be so appreciated.  

        Thanks in advance,

        Bridgette

        • April 20, 2012 at 12:04 am
        killmel
        Participant

        Hi Bridgette,

         

        Since your son is going to be in LA, I would have him see Dr. Ribas, at UCLA Medical Center. ARibas@mednet.ucla.edu

        Dr. Tony Ribas at UCLA is great, and UCLA are a leading research and treatment center in California. Dr. Ribas is very caring and has many of the newest drug  clinical trials plus standard therapies. Dr. Ribas has been in the news for being a contributor to the latest finding in melanoma research.

        For what it  is worth, I have also seen Dr.Hamid. I found him not as caring as Dr. Ribas and seems very busy with not much time to spare. Angeles Clinic is very commercial and motivated more by profit.

        My preference is Dr. Ribas. If you email him, he will email you back. If it I were your son, I would first & foremeost see Dr. Ribas.

        Good Luck

        • April 20, 2012 at 12:04 am
        killmel
        Participant

        Hi Bridgette,

         

        Since your son is going to be in LA, I would have him see Dr. Ribas, at UCLA Medical Center. ARibas@mednet.ucla.edu

        Dr. Tony Ribas at UCLA is great, and UCLA are a leading research and treatment center in California. Dr. Ribas is very caring and has many of the newest drug  clinical trials plus standard therapies. Dr. Ribas has been in the news for being a contributor to the latest finding in melanoma research.

        For what it  is worth, I have also seen Dr.Hamid. I found him not as caring as Dr. Ribas and seems very busy with not much time to spare. Angeles Clinic is very commercial and motivated more by profit.

        My preference is Dr. Ribas. If you email him, he will email you back. If it I were your son, I would first & foremeost see Dr. Ribas.

        Good Luck

        • April 20, 2012 at 12:04 am
        killmel
        Participant

        Hi Bridgette,

         

        Since your son is going to be in LA, I would have him see Dr. Ribas, at UCLA Medical Center. ARibas@mednet.ucla.edu

        Dr. Tony Ribas at UCLA is great, and UCLA are a leading research and treatment center in California. Dr. Ribas is very caring and has many of the newest drug  clinical trials plus standard therapies. Dr. Ribas has been in the news for being a contributor to the latest finding in melanoma research.

        For what it  is worth, I have also seen Dr.Hamid. I found him not as caring as Dr. Ribas and seems very busy with not much time to spare. Angeles Clinic is very commercial and motivated more by profit.

        My preference is Dr. Ribas. If you email him, he will email you back. If it I were your son, I would first & foremeost see Dr. Ribas.

        Good Luck

        • April 19, 2012 at 8:17 pm
        s Mom
        Participant

        Hi Hope,

        Thanks for the kind words – we are just so happy to finally get some good news (it's been pretty scary).

        I read your profile and see that your doctor is Dr. Omid.  What do you think of him?  Jeff is going to LA to talk to him in May (2nd opinion – consultation).  Dr. Omid seems to be on the cutting edge of treatment options and has a lot of trials available.  Any input, opinions, etc. that you could share with us would be so appreciated.  

        Thanks in advance,

        Bridgette

        • April 19, 2012 at 8:17 pm
        s Mom
        Participant

        Hi Hope,

        Thanks for the kind words – we are just so happy to finally get some good news (it's been pretty scary).

        I read your profile and see that your doctor is Dr. Omid.  What do you think of him?  Jeff is going to LA to talk to him in May (2nd opinion – consultation).  Dr. Omid seems to be on the cutting edge of treatment options and has a lot of trials available.  Any input, opinions, etc. that you could share with us would be so appreciated.  

        Thanks in advance,

        Bridgette

      • April 19, 2012 at 7:10 pm
      hope4cure1
      Participant

      Awesome!!!   My best to your family 🙂

      Hope

      • April 19, 2012 at 7:10 pm
      hope4cure1
      Participant

      Awesome!!!   My best to your family 🙂

      Hope

      • April 19, 2012 at 7:24 pm
      Richard_K
      Participant
      Bridgette
      Great news. Thanks for sharing
      Dick
      • April 19, 2012 at 7:24 pm
      Richard_K
      Participant
      Bridgette
      Great news. Thanks for sharing
      Dick
      • April 19, 2012 at 7:24 pm
      Richard_K
      Participant
      Bridgette
      Great news. Thanks for sharing
      Dick
      • April 19, 2012 at 8:36 pm
      Lori C
      Participant

      Much due good news !  Glad to hear it and healing thoughts for continued good results.

       

      Lori, caregiver to Will

      • April 19, 2012 at 8:36 pm
      Lori C
      Participant

      Much due good news !  Glad to hear it and healing thoughts for continued good results.

       

      Lori, caregiver to Will

      • April 19, 2012 at 8:36 pm
      Lori C
      Participant

      Much due good news !  Glad to hear it and healing thoughts for continued good results.

       

      Lori, caregiver to Will

      • April 19, 2012 at 9:08 pm
      JerryfromFauq
      Participant

      Great on the MRI.  now anything from no groth to shrinikage will be good.

        • April 19, 2012 at 9:52 pm
        Karin L
        Participant

        So glad for the good news!

        Karin

        • April 19, 2012 at 9:52 pm
        Karin L
        Participant

        So glad for the good news!

        Karin

        • April 19, 2012 at 9:52 pm
        Karin L
        Participant

        So glad for the good news!

        Karin

      • April 19, 2012 at 9:08 pm
      JerryfromFauq
      Participant

      Great on the MRI.  now anything from no groth to shrinikage will be good.

      • April 19, 2012 at 9:08 pm
      JerryfromFauq
      Participant

      Great on the MRI.  now anything from no groth to shrinikage will be good.

      • April 19, 2012 at 10:40 pm
      triciad
      Participant

      Congratulations on the wonderful news!  Prayers that the scans show good news, too!

      Tricia

      • April 19, 2012 at 10:40 pm
      triciad
      Participant

      Congratulations on the wonderful news!  Prayers that the scans show good news, too!

      Tricia

      • April 19, 2012 at 10:40 pm
      triciad
      Participant

      Congratulations on the wonderful news!  Prayers that the scans show good news, too!

      Tricia

      • April 19, 2012 at 11:13 pm
      aldakota22
      Participant

      Great news keep it comming.Know you feel a sense of relief that things are finally heading in the right direction.My prayers and thoughts go out to Jeff and family.   Al

      • April 19, 2012 at 11:13 pm
      aldakota22
      Participant

      Great news keep it comming.Know you feel a sense of relief that things are finally heading in the right direction.My prayers and thoughts go out to Jeff and family.   Al

      • April 19, 2012 at 11:13 pm
      aldakota22
      Participant

      Great news keep it comming.Know you feel a sense of relief that things are finally heading in the right direction.My prayers and thoughts go out to Jeff and family.   Al

      • April 20, 2012 at 1:38 am
      bikerwife
      Participant
      Oh Mrs. Bridgette I am so happy for you and your family. Our God is awesome may he continue to bless you with healing hands.
        • April 20, 2012 at 2:01 am
        Kelly7
        Participant

        Bridgette,

         

        That is great news! I know its been awhile since you have had good news! So, please celebrate this moment!

         

        Kelly:)

        • April 21, 2012 at 4:53 am
        s Mom
        Participant

        Hi Kelly 🙂

        How is your brother doing?  How was that first Ippi infusion?  How has he been feeling?  I hope he's doing well – what dosage is he on?

        Any labor pains yet (I ask my daughter that almost every day – lol)?  I think of you often, and I am hoping and praying everything is going well with you, too.  Cannot wait to hear about that beautiful baby 🙂  Keep me updated – God Bless!!

        Bridgette (Jeff's Mom)

        • April 21, 2012 at 4:53 am
        s Mom
        Participant

        Hi Kelly 🙂

        How is your brother doing?  How was that first Ippi infusion?  How has he been feeling?  I hope he's doing well – what dosage is he on?

        Any labor pains yet (I ask my daughter that almost every day – lol)?  I think of you often, and I am hoping and praying everything is going well with you, too.  Cannot wait to hear about that beautiful baby 🙂  Keep me updated – God Bless!!

        Bridgette (Jeff's Mom)

        • April 21, 2012 at 4:53 am
        s Mom
        Participant

        Hi Kelly 🙂

        How is your brother doing?  How was that first Ippi infusion?  How has he been feeling?  I hope he's doing well – what dosage is he on?

        Any labor pains yet (I ask my daughter that almost every day – lol)?  I think of you often, and I am hoping and praying everything is going well with you, too.  Cannot wait to hear about that beautiful baby 🙂  Keep me updated – God Bless!!

        Bridgette (Jeff's Mom)

        • April 20, 2012 at 2:01 am
        Kelly7
        Participant

        Bridgette,

         

        That is great news! I know its been awhile since you have had good news! So, please celebrate this moment!

         

        Kelly:)

        • April 20, 2012 at 2:01 am
        Kelly7
        Participant

        Bridgette,

         

        That is great news! I know its been awhile since you have had good news! So, please celebrate this moment!

         

        Kelly:)

      • April 20, 2012 at 1:38 am
      bikerwife
      Participant
      Oh Mrs. Bridgette I am so happy for you and your family. Our God is awesome may he continue to bless you with healing hands.
      • April 20, 2012 at 1:38 am
      bikerwife
      Participant
      Oh Mrs. Bridgette I am so happy for you and your family. Our God is awesome may he continue to bless you with healing hands.
      • April 20, 2012 at 2:24 am
      hope4cure1
      Participant

      Hi Bridgette,

      My husband is being seen by Dr. Boasberg and Dr. Hamid at Angeles Clinic. They are also involved in cutting-edge research and have been generous with their time, support, and knowledge.  We have been very comfortable with both of them, and have found them to be accessible,  warm, and on top of things.  We are happy with the therapies and numerous clinical trials available.  The staff members have also become like family to us.  My husband has been NED since July.  We, obviously, couldn't be happier.

      Preference in doctors is very personal.  At my urging, we went to Dr. Ribas at UCLA for a second opinion.  My husband left there feeling downhearted and without hope.  I felt horrible for urging him to go there.  I don't know if he'd ever elect to go back there.  Does that mean that Ribas isn't a great doctor?  Certainly NOT!!!!!  Would I try to discourage you from going to UCLA?  No!  You will find positive and negative posts in this forum on many doctors and clinics. 

      The important step your son is taking is in getting a second opinion.  "Anonymous" has his/her opinion.  That's natural.  However, I don't think your son will go wrong at either Angeles or UCLA.  Have faith and move forward.  There are happy and sad experiences at both UCLA and Angeles……and everywhere else, for that matter.  You could go crazy second-guessing your decisions.

      In the meantime, enjoy your good news, and be very mindful of these happy times!!!

      Hope

        • April 21, 2012 at 5:18 am
        s Mom
        Participant

        Thank you, Hope – I love your name 🙂

        Jeff will be seeing both doctors (Dr. Ribas squeezed him in) in Los Angeles.  I agree having a second opinion is what's important and choosing a doctor is a very personal decision.  That's why it's up to Jeff to decide – he gets to have a little bit of control in a situation where control is in very short supply.  We feel so fortunate to have the opportunity to see these experts and to "pick" their brains as to next steps on a journey we never wanted to travel.  

        Glad to hear of your husband's NED status – that is SO wonderful and makes me hopeful that Dr. Hamid might help our Jeff get to NED too. 

        We will enjoy these happy days and our recent good news and, like you, hope for a cure…soon!

        Take care and thanks again,

        Bridgette (Jeff's Mom)

         

        • April 21, 2012 at 5:18 am
        s Mom
        Participant

        Thank you, Hope – I love your name 🙂

        Jeff will be seeing both doctors (Dr. Ribas squeezed him in) in Los Angeles.  I agree having a second opinion is what's important and choosing a doctor is a very personal decision.  That's why it's up to Jeff to decide – he gets to have a little bit of control in a situation where control is in very short supply.  We feel so fortunate to have the opportunity to see these experts and to "pick" their brains as to next steps on a journey we never wanted to travel.  

        Glad to hear of your husband's NED status – that is SO wonderful and makes me hopeful that Dr. Hamid might help our Jeff get to NED too. 

        We will enjoy these happy days and our recent good news and, like you, hope for a cure…soon!

        Take care and thanks again,

        Bridgette (Jeff's Mom)

         

        • April 21, 2012 at 5:18 am
        s Mom
        Participant

        Thank you, Hope – I love your name 🙂

        Jeff will be seeing both doctors (Dr. Ribas squeezed him in) in Los Angeles.  I agree having a second opinion is what's important and choosing a doctor is a very personal decision.  That's why it's up to Jeff to decide – he gets to have a little bit of control in a situation where control is in very short supply.  We feel so fortunate to have the opportunity to see these experts and to "pick" their brains as to next steps on a journey we never wanted to travel.  

        Glad to hear of your husband's NED status – that is SO wonderful and makes me hopeful that Dr. Hamid might help our Jeff get to NED too. 

        We will enjoy these happy days and our recent good news and, like you, hope for a cure…soon!

        Take care and thanks again,

        Bridgette (Jeff's Mom)

         

      • April 20, 2012 at 2:24 am
      hope4cure1
      Participant

      Hi Bridgette,

      My husband is being seen by Dr. Boasberg and Dr. Hamid at Angeles Clinic. They are also involved in cutting-edge research and have been generous with their time, support, and knowledge.  We have been very comfortable with both of them, and have found them to be accessible,  warm, and on top of things.  We are happy with the therapies and numerous clinical trials available.  The staff members have also become like family to us.  My husband has been NED since July.  We, obviously, couldn't be happier.

      Preference in doctors is very personal.  At my urging, we went to Dr. Ribas at UCLA for a second opinion.  My husband left there feeling downhearted and without hope.  I felt horrible for urging him to go there.  I don't know if he'd ever elect to go back there.  Does that mean that Ribas isn't a great doctor?  Certainly NOT!!!!!  Would I try to discourage you from going to UCLA?  No!  You will find positive and negative posts in this forum on many doctors and clinics. 

      The important step your son is taking is in getting a second opinion.  "Anonymous" has his/her opinion.  That's natural.  However, I don't think your son will go wrong at either Angeles or UCLA.  Have faith and move forward.  There are happy and sad experiences at both UCLA and Angeles……and everywhere else, for that matter.  You could go crazy second-guessing your decisions.

      In the meantime, enjoy your good news, and be very mindful of these happy times!!!

      Hope

      • April 20, 2012 at 2:24 am
      hope4cure1
      Participant

      Hi Bridgette,

      My husband is being seen by Dr. Boasberg and Dr. Hamid at Angeles Clinic. They are also involved in cutting-edge research and have been generous with their time, support, and knowledge.  We have been very comfortable with both of them, and have found them to be accessible,  warm, and on top of things.  We are happy with the therapies and numerous clinical trials available.  The staff members have also become like family to us.  My husband has been NED since July.  We, obviously, couldn't be happier.

      Preference in doctors is very personal.  At my urging, we went to Dr. Ribas at UCLA for a second opinion.  My husband left there feeling downhearted and without hope.  I felt horrible for urging him to go there.  I don't know if he'd ever elect to go back there.  Does that mean that Ribas isn't a great doctor?  Certainly NOT!!!!!  Would I try to discourage you from going to UCLA?  No!  You will find positive and negative posts in this forum on many doctors and clinics. 

      The important step your son is taking is in getting a second opinion.  "Anonymous" has his/her opinion.  That's natural.  However, I don't think your son will go wrong at either Angeles or UCLA.  Have faith and move forward.  There are happy and sad experiences at both UCLA and Angeles……and everywhere else, for that matter.  You could go crazy second-guessing your decisions.

      In the meantime, enjoy your good news, and be very mindful of these happy times!!!

      Hope

      • April 20, 2012 at 3:49 am
      LynnLuc
      Participant

      Great News!

        • April 20, 2012 at 4:58 am
        deardad
        Participant

        Wonderful news, hope it continues to work for years.

        Nahmi from Melbourne

        • April 20, 2012 at 4:58 am
        deardad
        Participant

        Wonderful news, hope it continues to work for years.

        Nahmi from Melbourne

        • April 20, 2012 at 4:58 am
        deardad
        Participant

        Wonderful news, hope it continues to work for years.

        Nahmi from Melbourne

      • April 20, 2012 at 3:49 am
      LynnLuc
      Participant

      Great News!

      • April 20, 2012 at 3:49 am
      LynnLuc
      Participant

      Great News!

      • April 20, 2012 at 10:55 am
      MeNDave
      Participant

      That's wonderful!   I hope you contine to keep getting good news!

      All our best,

      Maria

      • April 20, 2012 at 10:55 am
      MeNDave
      Participant

      That's wonderful!   I hope you contine to keep getting good news!

      All our best,

      Maria

        • April 21, 2012 at 4:48 pm
        killmel
        Participant

        Hi Maria,

        It was very smart of your family to see both Dr. Hamid & Dr. Ribas. You are absolutely correct that picking a doctor is very personal & Jeff should do that.

        My own experience is that I too had 2nd opinions with both doctors & I picked Dr. Ribas. I did not care for Dr.Hamids beside manner. After asking Dr.Hamid  questions about the trial, I felt that he was pushing some clinical trials because he needed to fill some slots. Dr.Hamid seemed impatient and bothered that I was questioning him.

        I am in the Braf/Mek trial with Dr. Ribas and have remained NED for 8 months. I love Dr. Ribas because he really cares. He spends the time with you and your family. UCLA  has the newest trials. Many trials sponsors respect Dr.Ribas research & he gets  the news trials that are coming out.

        I live in Las Vegas and have to pay for airfare to UCLA.

        I read one of your  earlier post about PALS. Is Jeff getting his airfare to LA picked up by any cancer helping group?

        God Bless Jeff & his family.

        Ann

        • April 21, 2012 at 4:48 pm
        killmel
        Participant

        Hi Maria,

        It was very smart of your family to see both Dr. Hamid & Dr. Ribas. You are absolutely correct that picking a doctor is very personal & Jeff should do that.

        My own experience is that I too had 2nd opinions with both doctors & I picked Dr. Ribas. I did not care for Dr.Hamids beside manner. After asking Dr.Hamid  questions about the trial, I felt that he was pushing some clinical trials because he needed to fill some slots. Dr.Hamid seemed impatient and bothered that I was questioning him.

        I am in the Braf/Mek trial with Dr. Ribas and have remained NED for 8 months. I love Dr. Ribas because he really cares. He spends the time with you and your family. UCLA  has the newest trials. Many trials sponsors respect Dr.Ribas research & he gets  the news trials that are coming out.

        I live in Las Vegas and have to pay for airfare to UCLA.

        I read one of your  earlier post about PALS. Is Jeff getting his airfare to LA picked up by any cancer helping group?

        God Bless Jeff & his family.

        Ann

        • April 21, 2012 at 4:48 pm
        killmel
        Participant

        Hi Maria,

        It was very smart of your family to see both Dr. Hamid & Dr. Ribas. You are absolutely correct that picking a doctor is very personal & Jeff should do that.

        My own experience is that I too had 2nd opinions with both doctors & I picked Dr. Ribas. I did not care for Dr.Hamids beside manner. After asking Dr.Hamid  questions about the trial, I felt that he was pushing some clinical trials because he needed to fill some slots. Dr.Hamid seemed impatient and bothered that I was questioning him.

        I am in the Braf/Mek trial with Dr. Ribas and have remained NED for 8 months. I love Dr. Ribas because he really cares. He spends the time with you and your family. UCLA  has the newest trials. Many trials sponsors respect Dr.Ribas research & he gets  the news trials that are coming out.

        I live in Las Vegas and have to pay for airfare to UCLA.

        I read one of your  earlier post about PALS. Is Jeff getting his airfare to LA picked up by any cancer helping group?

        God Bless Jeff & his family.

        Ann

        • April 21, 2012 at 4:51 pm
        killmel
        Participant

        Bridgette, I am sorry for the mistake with your name.

        • April 21, 2012 at 4:51 pm
        killmel
        Participant

        Bridgette, I am sorry for the mistake with your name.

        • April 21, 2012 at 4:51 pm
        killmel
        Participant

        Bridgette, I am sorry for the mistake with your name.

        • April 22, 2012 at 2:31 am
        NYKaren
        Participant
        Bridgette,
        What great news. I’m so happy for you all!
        • April 22, 2012 at 2:31 am
        NYKaren
        Participant
        Bridgette,
        What great news. I’m so happy for you all!
        • April 22, 2012 at 2:31 am
        NYKaren
        Participant
        Bridgette,
        What great news. I’m so happy for you all!
      • April 20, 2012 at 10:55 am
      MeNDave
      Participant

      That's wonderful!   I hope you contine to keep getting good news!

      All our best,

      Maria

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