Heavy Foot after ILP
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Heavy Foot after ILP

› Forums › General Melanoma Community › Heavy Foot after ILP

  • Post
    • December 26, 2011 at 3:37 am
    Camp Host
    Participant

    Just wondering how long…. it will be before the feeling in my foot returns… feels like my foot is in a brick

    toenails look like they may fall off.. Not  one of 5 docs explained this to me just what the healing process would be… 

    I know everones healing process is different… But come'on … was told the nerves re-route about 1mm a month .. 

    Just wondering how long…. it will be before the feeling in my foot returns… feels like my foot is in a brick

    toenails look like they may fall off.. Not  one of 5 docs explained this to me just what the healing process would be… 

    I know everones healing process is different… But come'on … was told the nerves re-route about 1mm a month .. 

Viewing 5 reply threads
  • Replies
      • December 26, 2011 at 7:13 pm
      Gene_S
      Participant

      Hi,

      I don't know anything about your problem but I was told from my dentist after some oral surgery that taking 2000 of Vitamin C with 2000 of Vitamin B12 a day  helps with nerve regrowth and speed up the healing process.  I had no sense of smell as it affected the the olfactory nerve and this vitamin regiment helped me regain my sense in a shorter period of time.  Hope this helps.

      Judy (loving wife and caregiver of Gene Stage IV)

      • December 26, 2011 at 7:13 pm
      Gene_S
      Participant

      Hi,

      I don't know anything about your problem but I was told from my dentist after some oral surgery that taking 2000 of Vitamin C with 2000 of Vitamin B12 a day  helps with nerve regrowth and speed up the healing process.  I had no sense of smell as it affected the the olfactory nerve and this vitamin regiment helped me regain my sense in a shorter period of time.  Hope this helps.

      Judy (loving wife and caregiver of Gene Stage IV)

        • December 26, 2011 at 11:36 pm
        Camp Host
        Participant

        Thank you Judy for the suggestion… I will add more C and B12 to my regiment… 

        Judy, Best wishes for the new Year 

        • December 26, 2011 at 11:36 pm
        Camp Host
        Participant

        Thank you Judy for the suggestion… I will add more C and B12 to my regiment… 

        Judy, Best wishes for the new Year 

        • December 27, 2011 at 1:07 am
        Gene_S
        Participant

        You are quite welcome.  I hope someone has an idea of an answer for your question.

        Best wishes for the New Year to you and your family as well.

        Judy

        • December 27, 2011 at 1:07 am
        Gene_S
        Participant

        You are quite welcome.  I hope someone has an idea of an answer for your question.

        Best wishes for the New Year to you and your family as well.

        Judy

        • December 27, 2011 at 2:38 am
        Vermont_Donna
        Participant

        Hi,

        I have written to you before about my experience with the ILP. I too have neuropathy after my ILP….. in my right foot, and parts of my leg below my knee, mostly from the ILP but also because I am type 2 diabetic. My foot and leg feel kind of "wooden" and I have to wear shoes that tie now as slip ons fall off, etc as I cant feel the shoe on my foot. I also have leg lymphadema, and wear a compression stocking. 

        I saw a neurologist recently who did nerve conduction studies on my leg and foot (this is two years post ILP), and he reccomended blood tests for several B vitamins, including B6 and B 12, I dont remember the other one. I had blood drawn but those somehow didnt get drawn at my last oncology checkup so I will do them at my next oncology checkup (I have a port). He said that sometimes those B vitamins can help. My neuropathy is probably NOT going to get better. its just something I live with. i dont think that the doctors know who will have these kinds of side effects but I certainly was told that neuropathy was a side effect that could happen and my symptoms started 20 days after my ILP procedure.  I was hospitalized one month after my ILP for 5 days due to severe neuropathic pain in my foot and a cellulitis infection in my leg. 

        I am sorry that you are having such bothersome symptoms.Perhaps your oncologist can refer you to a neurologist if you havent already seen one. Also have some Vitamin B levels done once you find out which ones are importnat to test for.

        Vermont_Donna, stage 3a, NED

        • December 27, 2011 at 2:38 am
        Vermont_Donna
        Participant

        Hi,

        I have written to you before about my experience with the ILP. I too have neuropathy after my ILP….. in my right foot, and parts of my leg below my knee, mostly from the ILP but also because I am type 2 diabetic. My foot and leg feel kind of "wooden" and I have to wear shoes that tie now as slip ons fall off, etc as I cant feel the shoe on my foot. I also have leg lymphadema, and wear a compression stocking. 

        I saw a neurologist recently who did nerve conduction studies on my leg and foot (this is two years post ILP), and he reccomended blood tests for several B vitamins, including B6 and B 12, I dont remember the other one. I had blood drawn but those somehow didnt get drawn at my last oncology checkup so I will do them at my next oncology checkup (I have a port). He said that sometimes those B vitamins can help. My neuropathy is probably NOT going to get better. its just something I live with. i dont think that the doctors know who will have these kinds of side effects but I certainly was told that neuropathy was a side effect that could happen and my symptoms started 20 days after my ILP procedure.  I was hospitalized one month after my ILP for 5 days due to severe neuropathic pain in my foot and a cellulitis infection in my leg. 

        I am sorry that you are having such bothersome symptoms.Perhaps your oncologist can refer you to a neurologist if you havent already seen one. Also have some Vitamin B levels done once you find out which ones are importnat to test for.

        Vermont_Donna, stage 3a, NED

        • December 27, 2011 at 1:34 pm
        Camp Host
        Participant

        Thank you Donna, as always your info is so very helpful… I will ask my Oncologist about the neurologist..

        Again Thank You ..Have a wonderful Day !! 

        Camp Host Janet 

        • December 27, 2011 at 1:34 pm
        Camp Host
        Participant

        Thank you Donna, as always your info is so very helpful… I will ask my Oncologist about the neurologist..

        Again Thank You ..Have a wonderful Day !! 

        Camp Host Janet 

        • December 27, 2011 at 1:34 pm
        Camp Host
        Participant

        Thank you Donna, as always your info is so very helpful… I will ask my Oncologist about the neurologist..

        Again Thank You ..Have a wonderful Day !! 

        Camp Host Janet 

        • December 27, 2011 at 2:38 am
        Vermont_Donna
        Participant

        Hi,

        I have written to you before about my experience with the ILP. I too have neuropathy after my ILP….. in my right foot, and parts of my leg below my knee, mostly from the ILP but also because I am type 2 diabetic. My foot and leg feel kind of "wooden" and I have to wear shoes that tie now as slip ons fall off, etc as I cant feel the shoe on my foot. I also have leg lymphadema, and wear a compression stocking. 

        I saw a neurologist recently who did nerve conduction studies on my leg and foot (this is two years post ILP), and he reccomended blood tests for several B vitamins, including B6 and B 12, I dont remember the other one. I had blood drawn but those somehow didnt get drawn at my last oncology checkup so I will do them at my next oncology checkup (I have a port). He said that sometimes those B vitamins can help. My neuropathy is probably NOT going to get better. its just something I live with. i dont think that the doctors know who will have these kinds of side effects but I certainly was told that neuropathy was a side effect that could happen and my symptoms started 20 days after my ILP procedure.  I was hospitalized one month after my ILP for 5 days due to severe neuropathic pain in my foot and a cellulitis infection in my leg. 

        I am sorry that you are having such bothersome symptoms.Perhaps your oncologist can refer you to a neurologist if you havent already seen one. Also have some Vitamin B levels done once you find out which ones are importnat to test for.

        Vermont_Donna, stage 3a, NED

        • December 27, 2011 at 1:07 am
        Gene_S
        Participant

        You are quite welcome.  I hope someone has an idea of an answer for your question.

        Best wishes for the New Year to you and your family as well.

        Judy

        • December 26, 2011 at 11:36 pm
        Camp Host
        Participant

        Thank you Judy for the suggestion… I will add more C and B12 to my regiment… 

        Judy, Best wishes for the new Year 

      • December 26, 2011 at 7:13 pm
      Gene_S
      Participant

      Hi,

      I don't know anything about your problem but I was told from my dentist after some oral surgery that taking 2000 of Vitamin C with 2000 of Vitamin B12 a day  helps with nerve regrowth and speed up the healing process.  I had no sense of smell as it affected the the olfactory nerve and this vitamin regiment helped me regain my sense in a shorter period of time.  Hope this helps.

      Judy (loving wife and caregiver of Gene Stage IV)

      • December 27, 2011 at 8:19 am
      Ashykay
      Participant
      Hi there

      My Mum is on Yervoy, and after a few transfusions she started complaining of numbness in her left foot. This was scary as mum has melanoma on her sacrum which has led to pain/loss of feeling in her right leg similar to a paraplegic. However, when I looked ups some of the side effects of Yervoy, numbness is common.

      I hope that she does regain some feeling in her left leg – everyone’s tips here are encouraging – thanks all.

      Ashley

      • December 27, 2011 at 8:19 am
      Ashykay
      Participant
      Hi there

      My Mum is on Yervoy, and after a few transfusions she started complaining of numbness in her left foot. This was scary as mum has melanoma on her sacrum which has led to pain/loss of feeling in her right leg similar to a paraplegic. However, when I looked ups some of the side effects of Yervoy, numbness is common.

      I hope that she does regain some feeling in her left leg – everyone’s tips here are encouraging – thanks all.

      Ashley

        • December 27, 2011 at 5:47 pm
        boot2aboot
        Participant

        thanks…i have hand and foot neuropathy and will up my c and bs…no sugar vitamin water is good…i also crush my cs and bs in a morter and pestle and stick it in my yogurt cause my stomach hurts…

        boots

        • December 27, 2011 at 5:47 pm
        boot2aboot
        Participant

        thanks…i have hand and foot neuropathy and will up my c and bs…no sugar vitamin water is good…i also crush my cs and bs in a morter and pestle and stick it in my yogurt cause my stomach hurts…

        boots

        • December 27, 2011 at 5:47 pm
        boot2aboot
        Participant

        thanks…i have hand and foot neuropathy and will up my c and bs…no sugar vitamin water is good…i also crush my cs and bs in a morter and pestle and stick it in my yogurt cause my stomach hurts…

        boots

      • December 27, 2011 at 8:19 am
      Ashykay
      Participant
      Hi there

      My Mum is on Yervoy, and after a few transfusions she started complaining of numbness in her left foot. This was scary as mum has melanoma on her sacrum which has led to pain/loss of feeling in her right leg similar to a paraplegic. However, when I looked ups some of the side effects of Yervoy, numbness is common.

      I hope that she does regain some feeling in her left leg – everyone’s tips here are encouraging – thanks all.

      Ashley

Viewing 5 reply threads
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