The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

What is the status of access to treatments in EU?

Forums General Melanoma Community What is the status of access to treatments in EU?

  • Post
    pati
    Participant

    Dear Melanoma Patients, Advocates, Carers, 

    I am a stage IV melanoma patient residing in Belgium. I am the president and founder of the melanoma independent community advisory board (M-ICAB). Our purpose is to develop innovative approaches and solutions for melanoma patients that would not be achievable by single actors alone, based on a true and meaningful partnership with researchers/clinicians, the pharmaceutical/diagnostic companies, the EU and regulatory bodies.

    Dear Melanoma Patients, Advocates, Carers, 

    I am a stage IV melanoma patient residing in Belgium. I am the president and founder of the melanoma independent community advisory board (M-ICAB). Our purpose is to develop innovative approaches and solutions for melanoma patients that would not be achievable by single actors alone, based on a true and meaningful partnership with researchers/clinicians, the pharmaceutical/diagnostic companies, the EU and regulatory bodies.

    Given the recent approval by FDA and EMA of innovative therapies for advanced melanoma we are conducting a short survey (6 question maximum 7 minutes) to get a better understanding of the condition of access to these new treatments across Europe. This information is essential for EU melanoma patient advocates whom are fighting for their right to a better quality of life.  To facilitate the completion of the survey you can go to the following link:https://www.surveymonkey.com/s/Z7J22F7






    We would greatly appreciate your time and partnership if you have EU patients accessing your boards,

    Best

    Patricia Garcia-Prieto

    President and founder

    Melanoma Independent Community Advisory Board


    http://www.m-icab.org

    Volunteer Patient Advocate

    European Cancer Patient Coalition

    contact: patricia.garcia@ecpc-online.org

Viewing 2 reply threads
  • Replies
Viewing 2 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics