The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Jerry from Cape Cod Update

Forums General Melanoma Community Jerry from Cape Cod Update

  • Post
    Charlie S
    Participant

    Spoke with Jerry this afternoon.  He bled out twice over the weekend and had to be revived both times and is stable right now……………….a DNR for this guy is Do Not Retreat.

    He has a super team in Boston that are on him like scum on a pond and he is responding.

    To clarify, he has both complications from melanoma and complications of treatment. Right now, his team is working to stabilize the cascading complications of treatment and actual treatment of disease is probably about another week to ten days out.

    Spoke with Jerry this afternoon.  He bled out twice over the weekend and had to be revived both times and is stable right now……………….a DNR for this guy is Do Not Retreat.

    He has a super team in Boston that are on him like scum on a pond and he is responding.

    To clarify, he has both complications from melanoma and complications of treatment. Right now, his team is working to stabilize the cascading complications of treatment and actual treatment of disease is probably about another week to ten days out.

    For those of you that are unaware, Jerry is the poster boy for ipilimumab in Boston. He was one of the first to get it in development trials before mergers and aquisitions and is one of very few long term documented cases that can be measured not in days, weeks or months, but now years.

    He has also been a contibuting voice at the New England Melanoma Foundation throughout his travails. 

    Quite the guy, please keep him in your thoughts.

    Cheers,

    Charlie S

     

     

Viewing 14 reply threads
  • Replies
      triciad
      Participant

      Thanks Charlie for the update.

       

      C'mon Jerry…show the beast who's boss!!!!  You are in my prayers!

      Tricia

      triciad
      Participant

      Thanks Charlie for the update.

       

      C'mon Jerry…show the beast who's boss!!!!  You are in my prayers!

      Tricia

      triciad
      Participant

      Thanks Charlie for the update.

       

      C'mon Jerry…show the beast who's boss!!!!  You are in my prayers!

      Tricia

      Charlie S
      Participant

      Forgot, he is able to access his email on his iPad via voice recognition software if you would like to hit him up.  

      http://jerry@jerrysullivancapecod.com

      Cheers,

      Charlie S

      Charlie S
      Participant

      Forgot, he is able to access his email on his iPad via voice recognition software if you would like to hit him up.  

      http://jerry@jerrysullivancapecod.com

      Cheers,

      Charlie S

      Charlie S
      Participant

      Forgot, he is able to access his email on his iPad via voice recognition software if you would like to hit him up.  

      http://jerry@jerrysullivancapecod.com

      Cheers,

      Charlie S

      Lori C
      Participant

      Healing thoughts for Jerry, who has always give me great support and info, and I know has done the same for so many others.  Just another bump in the road and you will get past this one too!

      Lori

        Laurie from maine
        Participant

        strong prayers coming your way from maine jerry!!   you have been there for all of us with support and info, we are all there for you!!

        laurie from maine

        Laurie from maine
        Participant

        strong prayers coming your way from maine jerry!!   you have been there for all of us with support and info, we are all there for you!!

        laurie from maine

        Laurie from maine
        Participant

        strong prayers coming your way from maine jerry!!   you have been there for all of us with support and info, we are all there for you!!

        laurie from maine

      Lori C
      Participant

      Healing thoughts for Jerry, who has always give me great support and info, and I know has done the same for so many others.  Just another bump in the road and you will get past this one too!

      Lori

      Lori C
      Participant

      Healing thoughts for Jerry, who has always give me great support and info, and I know has done the same for so many others.  Just another bump in the road and you will get past this one too!

      Lori

      dian in spokane
      Participant

      Thanks for posting Charlie. I haven't been as diligent in my reading the last few months, and had no idea that Jerry has had this kind of set back.

      I'll keep him in my thoughts

      dian

      dian in spokane
      Participant

      Thanks for posting Charlie. I haven't been as diligent in my reading the last few months, and had no idea that Jerry has had this kind of set back.

      I'll keep him in my thoughts

      dian

      dian in spokane
      Participant

      Thanks for posting Charlie. I haven't been as diligent in my reading the last few months, and had no idea that Jerry has had this kind of set back.

      I'll keep him in my thoughts

      dian

      killmel
      Participant

      Hi

      I have been traveling & trying to catch up. I am so sad to hear Jerry is having problems.

      Charlie, any update on his condition.  I will pray from him.

      I and other  are i very interested if IPI side effect, etc caused Jerry his medical problems. Many Mpipers are on  IPI. Jerry was on IPI for a long time if I remember correctly.

      Charlie Any insight or your point of view regarding IPI causing Jerry problems would be helpful.

      David

      killmel
      Participant

      Hi

      I have been traveling & trying to catch up. I am so sad to hear Jerry is having problems.

      Charlie, any update on his condition.  I will pray from him.

      I and other  are i very interested if IPI side effect, etc caused Jerry his medical problems. Many Mpipers are on  IPI. Jerry was on IPI for a long time if I remember correctly.

      Charlie Any insight or your point of view regarding IPI causing Jerry problems would be helpful.

      David

      killmel
      Participant

      Hi

      I have been traveling & trying to catch up. I am so sad to hear Jerry is having problems.

      Charlie, any update on his condition.  I will pray from him.

      I and other  are i very interested if IPI side effect, etc caused Jerry his medical problems. Many Mpipers are on  IPI. Jerry was on IPI for a long time if I remember correctly.

      Charlie Any insight or your point of view regarding IPI causing Jerry problems would be helpful.

      David

Viewing 14 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics