JanOC at MDA
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JanOC at MDA

› Forums › General Melanoma Community › JanOC at MDA

  • Post
    • October 22, 2011 at 5:21 pm
    killmel
    Participant

    Jan,

     

    I hope things are going well. I am a little worried that you have not posted for awhile.

     

    Anyone heard from Jan?

     

    Mary

    Jan,

     

    I hope things are going well. I am a little worried that you have not posted for awhile.

     

    Anyone heard from Jan?

     

    Mary

Viewing 5 reply threads
  • Replies
      • October 22, 2011 at 7:13 pm
      RMcLegal
      Participant

      Last I knew, she and Dirk were in Houston and he's being treated at MDA.  She posted a joke photo about CT scans on her facebook page today, so that seems like a good sign.

      • October 22, 2011 at 7:13 pm
      RMcLegal
      Participant

      Last I knew, she and Dirk were in Houston and he's being treated at MDA.  She posted a joke photo about CT scans on her facebook page today, so that seems like a good sign.

      • October 22, 2011 at 7:13 pm
      RMcLegal
      Participant

      Last I knew, she and Dirk were in Houston and he's being treated at MDA.  She posted a joke photo about CT scans on her facebook page today, so that seems like a good sign.

      • October 23, 2011 at 1:59 am
      Jan in OC
      Participant

      Hey everyone…thanks for your concern.  Yeah, we are still here, just haven't been on the computer much!  I am spending more time at the hospital than home this last month or so.  Dirk had a round of BioChemo, immediately followed by 10 days of Whole Brain Radiation…a week of recovery…then another 7 days in the hospital for more BioChemo.

      This has really knocked him down, tired, no appetite, some memory loss.  His comprehension and thinking abilities have been impacted to a small degree.  I am hoping that these will return with time.

      We are scheduled for CT and MRI on Nov 1st, if scans show improvement, maybe another round or two of BioChemo and gamma knife to any leftover brain mets (hoping they are all zapped!).  Try not to look at his "spots" every day hoping for change! 

      Just trying to get through one day at a time.  Taking small walks with him to build up his strength, trying to get him to eat (a bit of nausea and loss of appetite). Dealing with hair loss and peeling skin.  All of the fun side effects of brain surgery, chemo, IL-2, Interferon and radiation!

      Feel free to email or facebook anytime cool

       Jan 

       

        • October 23, 2011 at 2:35 am
        lhaley
        Participant

        Jan,

        What is your fb?

        Linda

        • October 23, 2011 at 5:54 am
        Jan in OC
        Participant

        Sorry…look up "Jan Ernst".  If you send me a friend request, please mention MRF.  I posted my email once on here and got some mighty strange emails, so first timers can send a message thru the MRF's profile section and I will respond.

        Jan

        • October 23, 2011 at 10:24 am
        JerryfromFauq
        Participant

        Weird responses that seem to come from Postings on the MPIP should be reported to:smoneer@melanoma.org

        • October 23, 2011 at 6:36 pm
        Jan in OC
        Participant

        Thabks Jerry, for the info.  I will keep it in case of another occurrence.

        • October 23, 2011 at 6:36 pm
        Jan in OC
        Participant

        Thabks Jerry, for the info.  I will keep it in case of another occurrence.

        • October 23, 2011 at 6:36 pm
        Jan in OC
        Participant

        Thabks Jerry, for the info.  I will keep it in case of another occurrence.

        • October 23, 2011 at 10:24 am
        JerryfromFauq
        Participant

        Weird responses that seem to come from Postings on the MPIP should be reported to:smoneer@melanoma.org

        • October 23, 2011 at 10:24 am
        JerryfromFauq
        Participant

        Weird responses that seem to come from Postings on the MPIP should be reported to:smoneer@melanoma.org

        • October 23, 2011 at 12:18 pm
        Gene_S
        Participant

        Great to hear from you again Jan as I have been wondering how you and hubby are doing.  I hope you get great scan results.

        I tried the facebook thing but so many Jan Ernst and I don't know which one you are.

        Judy (loving wife and caregiver of Gene)

        • October 23, 2011 at 6:38 pm
        Jan in OC
        Participant

        Can't help the common name, blame my parents and husband!  LOL!!  My profile pic is pretty cute…a cat peeking out of the top of a PopTart box!  

        Jan

        • October 23, 2011 at 6:38 pm
        Jan in OC
        Participant

        Can't help the common name, blame my parents and husband!  LOL!!  My profile pic is pretty cute…a cat peeking out of the top of a PopTart box!  

        Jan

        • October 23, 2011 at 6:38 pm
        Jan in OC
        Participant

        Can't help the common name, blame my parents and husband!  LOL!!  My profile pic is pretty cute…a cat peeking out of the top of a PopTart box!  

        Jan

        • October 23, 2011 at 12:18 pm
        Gene_S
        Participant

        Great to hear from you again Jan as I have been wondering how you and hubby are doing.  I hope you get great scan results.

        I tried the facebook thing but so many Jan Ernst and I don't know which one you are.

        Judy (loving wife and caregiver of Gene)

        • October 23, 2011 at 12:18 pm
        Gene_S
        Participant

        Great to hear from you again Jan as I have been wondering how you and hubby are doing.  I hope you get great scan results.

        I tried the facebook thing but so many Jan Ernst and I don't know which one you are.

        Judy (loving wife and caregiver of Gene)

        • October 23, 2011 at 5:54 am
        Jan in OC
        Participant

        Sorry…look up "Jan Ernst".  If you send me a friend request, please mention MRF.  I posted my email once on here and got some mighty strange emails, so first timers can send a message thru the MRF's profile section and I will respond.

        Jan

        • October 23, 2011 at 5:54 am
        Jan in OC
        Participant

        Sorry…look up "Jan Ernst".  If you send me a friend request, please mention MRF.  I posted my email once on here and got some mighty strange emails, so first timers can send a message thru the MRF's profile section and I will respond.

        Jan

        • October 23, 2011 at 2:35 am
        lhaley
        Participant

        Jan,

        What is your fb?

        Linda

        • October 23, 2011 at 2:35 am
        lhaley
        Participant

        Jan,

        What is your fb?

        Linda

      • October 23, 2011 at 1:59 am
      Jan in OC
      Participant

      Hey everyone…thanks for your concern.  Yeah, we are still here, just haven't been on the computer much!  I am spending more time at the hospital than home this last month or so.  Dirk had a round of BioChemo, immediately followed by 10 days of Whole Brain Radiation…a week of recovery…then another 7 days in the hospital for more BioChemo.

      This has really knocked him down, tired, no appetite, some memory loss.  His comprehension and thinking abilities have been impacted to a small degree.  I am hoping that these will return with time.

      We are scheduled for CT and MRI on Nov 1st, if scans show improvement, maybe another round or two of BioChemo and gamma knife to any leftover brain mets (hoping they are all zapped!).  Try not to look at his "spots" every day hoping for change! 

      Just trying to get through one day at a time.  Taking small walks with him to build up his strength, trying to get him to eat (a bit of nausea and loss of appetite). Dealing with hair loss and peeling skin.  All of the fun side effects of brain surgery, chemo, IL-2, Interferon and radiation!

      Feel free to email or facebook anytime cool

       Jan 

       

      • October 23, 2011 at 1:59 am
      Jan in OC
      Participant

      Hey everyone…thanks for your concern.  Yeah, we are still here, just haven't been on the computer much!  I am spending more time at the hospital than home this last month or so.  Dirk had a round of BioChemo, immediately followed by 10 days of Whole Brain Radiation…a week of recovery…then another 7 days in the hospital for more BioChemo.

      This has really knocked him down, tired, no appetite, some memory loss.  His comprehension and thinking abilities have been impacted to a small degree.  I am hoping that these will return with time.

      We are scheduled for CT and MRI on Nov 1st, if scans show improvement, maybe another round or two of BioChemo and gamma knife to any leftover brain mets (hoping they are all zapped!).  Try not to look at his "spots" every day hoping for change! 

      Just trying to get through one day at a time.  Taking small walks with him to build up his strength, trying to get him to eat (a bit of nausea and loss of appetite). Dealing with hair loss and peeling skin.  All of the fun side effects of brain surgery, chemo, IL-2, Interferon and radiation!

      Feel free to email or facebook anytime cool

       Jan 

       

Viewing 5 reply threads
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