Wounded Warrior returns from IL-2
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Wounded Warrior returns from IL-2

› Forums › General Melanoma Community › Wounded Warrior returns from IL-2

  • Post
    • October 3, 2011 at 10:34 pm
    NYKaren
    Participant

    Hi all,

    Returned last (not this) past Saturday nite from second session of IL-2 at Yale.  It took about a week until I could function at all–it was correct that the second time is harder.

    I didn't have many side effects the first time, just itching and a little diarhhea.

    This time, the itch was there from day 1 (and hasn't stopped yet) the diahhrea accured much sooner.

    I experienced much more confusion.  No appetite whatsoever.  Bringing protein drinks was a great idea.

    Hi all,

    Returned last (not this) past Saturday nite from second session of IL-2 at Yale.  It took about a week until I could function at all–it was correct that the second time is harder.

    I didn't have many side effects the first time, just itching and a little diarhhea.

    This time, the itch was there from day 1 (and hasn't stopped yet) the diahhrea accured much sooner.

    I experienced much more confusion.  No appetite whatsoever.  Bringing protein drinks was a great idea.

    And yet, Dr. Sznol said that very few peope finish all the bags.  Now he tells me–as if I had a choice!

    Today was the first day I drove and tomorrow I'm going to attempt work.  Normally I'd wait till next Monday, but I want to make sure I have time left for the rest of the year.

     

    I'm still using Aldera, and much of the area has scabbed over and fallen off.  Still pigment underneath–can't tell if they're flat or not.  Called Sznol's office; he said keep using it.

    So, scans again in 7 weeks, then decide if we do this again

    Thanks all for your support; I'll keep ya posted.

    karen

     

     

Viewing 7 reply threads
  • Replies
      • October 3, 2011 at 11:45 pm
      triciad
      Participant

      Good luck and keep up the positive attitude!  If you are a responder…totally worth it!  You're in my prayers for a complete response.

      Tricia

      • October 3, 2011 at 11:45 pm
      triciad
      Participant

      Good luck and keep up the positive attitude!  If you are a responder…totally worth it!  You're in my prayers for a complete response.

      Tricia

      • October 4, 2011 at 12:40 am
      Karin L
      Participant

      If this helps, I felt REAL good in the 3rd week after treatment each round.  Hang in there Karen!  Keep in mind side affects are cumulative with IL2 but overall tolerable.

       

      Karin

      • October 4, 2011 at 12:40 am
      Karin L
      Participant

      If this helps, I felt REAL good in the 3rd week after treatment each round.  Hang in there Karen!  Keep in mind side affects are cumulative with IL2 but overall tolerable.

       

      Karin

      • October 4, 2011 at 7:30 am
      JerryfromFauq
      Participant

      I was told the average # of bags taken per week is 7.  My Onc (Who haas worked with IL-2 since the 1980's) discussed whether or not to take each bag with me.  If the bloodwork, blood presssure  and urine output were not within proper limits he would not do them, otherwise he left it up to me whether or not I felt up to takiing each bag.

      • October 4, 2011 at 7:30 am
      JerryfromFauq
      Participant

      I was told the average # of bags taken per week is 7.  My Onc (Who haas worked with IL-2 since the 1980's) discussed whether or not to take each bag with me.  If the bloodwork, blood presssure  and urine output were not within proper limits he would not do them, otherwise he left it up to me whether or not I felt up to takiing each bag.

      • October 4, 2011 at 3:04 pm
      jim Breitfeller
      Participant

      Karen,

      When doiing HD IL-2, listen to your body. It will tell you when to stop the treatment/Bags.

      More doesn't mean better. You can over tax your immune system and cause major problems with autoimmuinity among other things.

      As for the Aldera, here are some of my Pics.

       

      Best regards,

      Jimmy B

      • October 4, 2011 at 3:04 pm
      jim Breitfeller
      Participant

      Karen,

      When doiing HD IL-2, listen to your body. It will tell you when to stop the treatment/Bags.

      More doesn't mean better. You can over tax your immune system and cause major problems with autoimmuinity among other things.

      As for the Aldera, here are some of my Pics.

       

      Best regards,

      Jimmy B

        • October 4, 2011 at 8:06 pm
        NYKaren
        Participant

        Thanks, guys.  Jimmy, the only time the Aldera caused any reaction whatsover was once I started the IL-2.  I mean nothing!  As soon a I was on both, it all crusted over.  a lot of it has fallen off, leaving flat, pigmented skin.  Boy do I hope this works!

        • October 4, 2011 at 8:06 pm
        NYKaren
        Participant

        Thanks, guys.  Jimmy, the only time the Aldera caused any reaction whatsover was once I started the IL-2.  I mean nothing!  As soon a I was on both, it all crusted over.  a lot of it has fallen off, leaving flat, pigmented skin.  Boy do I hope this works!

        • October 4, 2011 at 8:06 pm
        NYKaren
        Participant

        Thanks, guys.  Jimmy, the only time the Aldera caused any reaction whatsover was once I started the IL-2.  I mean nothing!  As soon a I was on both, it all crusted over.  a lot of it has fallen off, leaving flat, pigmented skin.  Boy do I hope this works!

Viewing 7 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.