Quick Update…
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Quick Update…

› Forums › General Melanoma Community › Quick Update…

  • Post
    • August 11, 2011 at 12:22 am
    Jan in OC
    Participant

    Well, we made it to Houston…staying in a hotel and all our stuff is on the U-haul in the parking lot!!  Evidently we arrived at the busiest time for moving and have not found a place to rent yet.  Was hoping to get it done before Dirk's MD Anderson visits…oh well….I'm sure we will have a home soon!

    I have to say, our experience at MD is light years different from UCLA.  It used to take weeks to get an appointment for any tests there.  

    Well, we made it to Houston…staying in a hotel and all our stuff is on the U-haul in the parking lot!!  Evidently we arrived at the busiest time for moving and have not found a place to rent yet.  Was hoping to get it done before Dirk's MD Anderson visits…oh well….I'm sure we will have a home soon!

    I have to say, our experience at MD is light years different from UCLA.  It used to take weeks to get an appointment for any tests there.  

    We went in yesterday morning, saw Dr. "Papa", and in the afternoon went to get an MRI.  Got the call today,  tomorrow they have scheduled ECHO, Complete Pulmonary Function Test, and CT.  

    Friday, its back to meet a Dr in targeted therapy and Dr Papa again!!  Then we will decide which treatment plan to go with.  I even met our Patient Advocate and and spoke to the Social Worker yesterday. Never spoke to anyone at our last place.  

    We are still in a washout period from the E-7080, so it seems like new spots appear every day.  Dirk gets tired easily, but is very excited about the team approach and liked Dr. Papadoupolis!!  We are hoping for good things.

    Jan (formerly in OC, now a texan, LOL), wife to Dirk

Viewing 9 reply threads
  • Replies
      • August 11, 2011 at 1:04 am
      JuleFL
      Participant
      Best wishes on your new adventure!

      Jule

      • August 11, 2011 at 1:04 am
      JuleFL
      Participant
      Best wishes on your new adventure!

      Jule

      • August 11, 2011 at 11:24 am
      MariaH
      Participant

      Best wishes Jan, and keep us posted!

      • August 11, 2011 at 11:24 am
      MariaH
      Participant

      Best wishes Jan, and keep us posted!

      • August 11, 2011 at 12:26 pm
      RMcLegal
      Participant

      Best wishes for treatment success.  Is Dirk still singing "I Want A New Drug"?

      • August 11, 2011 at 12:26 pm
      RMcLegal
      Participant

      Best wishes for treatment success.  Is Dirk still singing "I Want A New Drug"?

        • August 11, 2011 at 8:47 pm
        Jan in OC
        Participant

        Yes, Thank you, he loved your lyrics!

        • August 11, 2011 at 8:47 pm
        Jan in OC
        Participant

        Yes, Thank you, he loved your lyrics!

      • August 11, 2011 at 7:24 pm
      TracyLee
      Participant

      Hi y'all,

      As a native Texan, welcome to TX! And yes, it gets THAT hot, and stays that way…

      I didn't read all of your profile, if he has lung mets the humidity will be a challenge, just be aware of that. We have had high heat here and it is tearing me up, I feel like a fish out of water.

      You moved right during college move in, I'm sure you'll find something shortly.

      Best of luck, from a tranplanted Texan who lives in Delaware.

      TracyLee

       

       

      • August 11, 2011 at 7:24 pm
      TracyLee
      Participant

      Hi y'all,

      As a native Texan, welcome to TX! And yes, it gets THAT hot, and stays that way…

      I didn't read all of your profile, if he has lung mets the humidity will be a challenge, just be aware of that. We have had high heat here and it is tearing me up, I feel like a fish out of water.

      You moved right during college move in, I'm sure you'll find something shortly.

      Best of luck, from a tranplanted Texan who lives in Delaware.

      TracyLee

       

       

        • August 11, 2011 at 8:53 pm
        Jan in OC
        Participant

        LOL…I know, I keep hearing "OMG, you moved here in August"!!!  And it happens to be the hottest week in a decade…Dirk is doing pretty good, just gets tired easily.  We are at MD all day today, he is getting his CT right now!  Back tomorrow too.  I will look again this weekend.  

        Woke up in the middle of the night to find that ants had invaded our hotel room…I HATE ANTS!!!!  And the biggest crickets ever!  Thank goodness they are slow and can't jump very high, easy to catch and throw outside 🙂  So tonite when we get back to the hotel, I will switch our stuff to a different room (while dirk takes a nap)

        Always some little drama in our lives.

        Jan

        • August 11, 2011 at 8:53 pm
        Jan in OC
        Participant

        LOL…I know, I keep hearing "OMG, you moved here in August"!!!  And it happens to be the hottest week in a decade…Dirk is doing pretty good, just gets tired easily.  We are at MD all day today, he is getting his CT right now!  Back tomorrow too.  I will look again this weekend.  

        Woke up in the middle of the night to find that ants had invaded our hotel room…I HATE ANTS!!!!  And the biggest crickets ever!  Thank goodness they are slow and can't jump very high, easy to catch and throw outside 🙂  So tonite when we get back to the hotel, I will switch our stuff to a different room (while dirk takes a nap)

        Always some little drama in our lives.

        Jan

      • August 12, 2011 at 7:23 pm
      ValinMtl
      Participant

      May this be the magic bullet for Dirk.  Best wishes, y'all  Val

      • August 12, 2011 at 7:23 pm
      ValinMtl
      Participant

      May this be the magic bullet for Dirk.  Best wishes, y'all  Val

Viewing 9 reply threads
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