donna of vermont-ipi question
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donna of vermont-ipi question

› Forums › General Melanoma Community › donna of vermont-ipi question

  • Post
    • May 7, 2011 at 4:49 pm
    killmel
    Participant

    Hi Donna,

     

    I saw an  earlier post that you said that you were going to do a 2nd round of IPI yet you are NED.

    My questions is why did you decide to do a 2nd round if you are NED w/o any tumors/subqs on your leg? Did you have scans before deciding on the 2nd round of IPI.what were the results?

     

    I wish you a good response on your 2nd round.

    Hi Donna,

     

    I saw an  earlier post that you said that you were going to do a 2nd round of IPI yet you are NED.

    My questions is why did you decide to do a 2nd round if you are NED w/o any tumors/subqs on your leg? Did you have scans before deciding on the 2nd round of IPI.what were the results?

     

    I wish you a good response on your 2nd round.

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  • Replies
      • May 9, 2011 at 2:30 am
      Vermont_Donna
      Participant

      Hi,

      My next appt is 5/11, and this will be an oncology checkup with a PET/CT scans, labs and visit with my melanoma oncologist, at the end of my 12 week period "off" Ipi…..I had my first 12 weeks "on" Ipi as part of a clinical trial (I was stage 3a with unrestable melanoma). Now that Ipi is FDA approved my clinical trial is over (I am past the 30 days past the FDA approval). The clinical trial coordinator said that my oncologist plans to offer me the chance to do a second 12 weeks "on" if I am still a "responder", meaning if I havent progressed to stage 4. I will of course wait to see my oncologist and have my scans this week. I will choose to do the second 12 weeks of Ipi if I am offered. I think the idea is to keep the immune system "revved" up.

      I will update the board after my Wednesday appt. Thank you for asking for clarification!

      Vermont_Donna, stage 3a

      • May 9, 2011 at 2:30 am
      Vermont_Donna
      Participant

      Hi,

      My next appt is 5/11, and this will be an oncology checkup with a PET/CT scans, labs and visit with my melanoma oncologist, at the end of my 12 week period "off" Ipi…..I had my first 12 weeks "on" Ipi as part of a clinical trial (I was stage 3a with unrestable melanoma). Now that Ipi is FDA approved my clinical trial is over (I am past the 30 days past the FDA approval). The clinical trial coordinator said that my oncologist plans to offer me the chance to do a second 12 weeks "on" if I am still a "responder", meaning if I havent progressed to stage 4. I will of course wait to see my oncologist and have my scans this week. I will choose to do the second 12 weeks of Ipi if I am offered. I think the idea is to keep the immune system "revved" up.

      I will update the board after my Wednesday appt. Thank you for asking for clarification!

      Vermont_Donna, stage 3a

        • May 9, 2011 at 12:34 pm
        Laurie from maine
        Participant

        HI Donna,

        I am glad you posted I was wondering how things were going for you.  Good luck on weds!!

        spring is finally here in maine – guessing same for you in vermont 🙂

        take care

        laurie from maine

        • May 9, 2011 at 12:34 pm
        Laurie from maine
        Participant

        HI Donna,

        I am glad you posted I was wondering how things were going for you.  Good luck on weds!!

        spring is finally here in maine – guessing same for you in vermont 🙂

        take care

        laurie from maine

        • May 9, 2011 at 1:12 pm
        Vermont_Donna
        Participant

        Thanks Laurie,

          Spring is slowly coming to us here. I was in Maine all weekend, moving my daughte out of college (Portland)…you are ahead of us for sure!!

        Vermont_Donna

        • May 9, 2011 at 1:12 pm
        Vermont_Donna
        Participant

        Thanks Laurie,

          Spring is slowly coming to us here. I was in Maine all weekend, moving my daughte out of college (Portland)…you are ahead of us for sure!!

        Vermont_Donna

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